Guest guest Posted August 8, 2006 Report Posted August 8, 2006 Terri, I know ....I think....somewhat of how you feel. My husband and I are " helper people " . Thats not to wave a flag and say HEY LOOK AT US, WE HELP PEOPLE OUT!! its not. Its just the cut of us, they way we have always been. In my senior book, I put down as my favorite hobby, " helping my friends with their problems " LOL We have had more friends sleep on our couch(or floor) than I can count, we have contacted local radio stations for gifts at holidays for friends in bad circumstances....last yr, my 10 yr old and I used donated material to sew dresses and things to barter with that radio station in order to get my sister plane tickets to visit her son that she hasnt seen in a yr, b/c she is a single mom working as a waitress, and her son moved to AZ from MI. My husband is the type of guy who picks up people on the rd to drive them to a gas station and then helps them fill up the car....to buy a Big Mac for the guy standing on the corner with a " work for food " sign.....we have organized benefits at our kids school for a teachers son with cancer......this is normal to us. ITs just the way we are, and the way we hope our kids will learn to be as adults. We have never asked for anything in return, or even thought of it. And it seems like every time we turn around, we are getting the short end of the stick AGAIN. I try to be patient, and learn from it, but it hurts......seems like we can never catch a break. Sometimes we think something special will happen, and then it falls thru. Sometimes you think........maybe we would be better off if my husband quit his good job and went to work at Mc'D's........then we would not be in that limbo of just a bit too high for assistance but too broke to make it work. This yr, when after 3 yrs of fighting, we finally were approved for the boys SSI, I about had a heart attack. I kept waiting for a letter saying it was a mistake, they really didnt approve us. Then we found out about the AC and all of that, i nearly fell apart..........I guess you get so used to bad news, you cant figure out how to take good news.I still go downstairs and look at all of that, and think......I feel like I am looking at something neat in a store, not that its really mine........cant be. And then they call me and tell me they bought us new furniture.......I started sobbing and dropped the phone...my poor husband thought someone died!! and picked it up.......asking who it was, and what the heck was going on, and why was his wife weeping in the bathroom? LOL but I just didnt know what to do. It really is a wonderful feeling, to know people care. Hopefully, once your story gets out, you'll get an outpouring of love..in fact, now that we are getting the new furniture, I have a spare couch....already gave the loveseat to it away though...if only we lived closer!!! My Rite Aid tech tried to get her sister on Extreme Makeover, and they were going to do it, but then found out her sisters house was made from bricks from a historic landmark, so they cant touch it. If she is in tomorrow, maybe I can get the email address from her. And you are right, Terri, we have blessings all around us. We can hold our children, watch them splash in the bathtub, give us sloppy, ketchuppy kisses, and read them stories. I ache for the people who dont have that right now. Sometimes I think............I just never thought I would be in this situation.....I never even HEARD of PID before....and I surely never thought 3 of my kids would have it. But then, Brennan comes up to me to show me the caterpillar he found, or Savannah wants to show me her near perfect cartwheel, or Donovan has built the BIGGEST LEGO TOWER EVER IN THE WORLD, and my heart swells with that joy. Thats not something that can be bought. and so what if the movies we rent are the free kind from the library? and so what if we have a picnic instead of a gourmet restuarant meal? we are together, and our kids know they are loved and cared for. NOw, I am the one babbling, but its 2 a.m. and I cant sleep for the life of me!! Not to be nosey, but have you tried applying for SSI? It took us 3 tries, hiring a legal rep(who waved his upfront fees) and two yrs waiting for a court date, but it sure has been worth it. Valarie Quote
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