Sick AGAIN...

May 17, 2006

I am just so worn out. Sebastian has been sick since March. He gets over

one thing and two days later it's something new!!! Doctor is suspecting

that he had Mono. So in the past month he's had Strep, viral

tonsillitis, and today he has a fever and big lacy rash on his cheeks.

His Immune labs came back totally normal but I don't know the numbers.

The only figure that came back slightly high was his IgG which our Pulmo

said was typical in asthmatics. I know there are more labs that can be

done. Does anyone have a suggestion on who to see? Our pulmo recommends

the Children's Allergy/Immunologist that diagnosed his Bee/Wasp allergy.

But I understand that Allergy/Immuno's are different that just regular

immunologists?

The other thing is this...the school nurse sent home a flyer stating he

is not only " at risk " for obesity, he is already overweight according to

his Body Mass Index. I mean he is big for his age [6 years, 49 inches

and 67 lbs]. But we've always been told he is " solid " . When he's naked,

he has no " fat " on him. His wrists are already bigger than mine. His

bone age taken a year ago came back borderline for being too big. But

endocrinology ruled out any abnormalities. The kid barely eats as it is

with his sensory problems. OY!

I just feel like we are constantly hitting walls with this kids health.

No one can figure him out. He should not be this sick for no reason. I

know I shouldn't complain. He has never been hospitalized for anything.

He's always just cut it close. That's us...not quite sick enough for a

diagnosis, yet too sick to be considered normal. AAAAGGGHHHH....

Sorry for the rant..it's just really really frustrating!

Amy C.

--

Amy C.

Mom to Sebastian, 6 years - Asperger Syndrome, Asthma, Gastroparesis, GERD and

Allergies

Blow the Whistle on Asthma Walk - May 20, 2006

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