curious

[Guest guest]

so, again with the beating an idea to death with a stick.

ok, so 3 of my 4 kids have CVID. Since the onset of asthma last yr, I

have been sick sick sick. Although I have never been overly healthy,

this last year has been really bad, and a lot of what is going on with

me is not explainable(translation:I am beginning to feel crazy).

So anyway, since my pulmo also does immuno, once he got the kids

history, he thought for sure I had some kind of immune def. He ran a

fairly intense panel for Ig's, complements, etc. Looking at that, I

seem ok by the numbers. We have not done any study to see about

vaccination titers, I dont even know if they do that with adults(shows

what I know).

So, the kids inf dis drs have asked for family histories when we first

started seeing them, and they thought maybe I had some immune problem,

I told them I had been worked up, they thought it warranted further

investigation. Pulmo says.........I have worked you up down and

sideways, I dont know what else I can test. So I dropped it.

Interestingly, I had to go for my yearly GYN appt today, and my GYN

has NO idea about the kids health issues at all. We were talking about

some other stuff, and I asked him something about yeast infections(as

in, I get one every month before I start, every time I use an

antibiotic, even for just a few days, every time I use steroids, etc)

and that recently I also had a horrendous case of thrush in the mouth,

all over, even the roof of my mouth, and down my throat.....7 days of

200 mgs diflucan, and I am already in the midst of another yeast

infection. The over the counter creams do nothing for me, unless I use

like 3 in a row.

He stares at my charts a minute, and says....... " HEY, is there anybody

in your immediate family with an immune problem of any kind? like an

immune deficiency? "

So, what should I make of that? Should I leave this issue dropped, or

keep pushing it? I dont WANT any immune disorder, but it seems like it

keeps coming back up, from even other drs.

My GYN, after telling him the kids have CVID, said to get myself to an

immuno, pronto and get checked out......I told him I have been worked

up, and he says..........eh, something is missing there. You arent

right with this.......

So I just dont know what to think. this GYN is a good dr, he is the

one who found my bladder disease......incidentally, he also figured

out today that the left side pain I thought might be another cyst, is

my colon and about fell off his chair when I told him its been going

on for a year............I KNOW I know.........so he seems pretty " in

the know " about lots of other things besides his usual specialty.If I

walk back into my next pulmo appt and say, now my GYN thinks there is

an immune problem, he is going to think I am nutty. What else could we

test? Any ideas?

Valarie

mom to

Olivia, asthma, allergies

Savannah, asthma, allergies, CVID

Donovan, asthma, allergies, CVID, TBM

Brennan, asthma, allergies, CVID, TBLM