Guest guest Posted April 22, 2006 Report Posted April 22, 2006 My name is and I am new to this group. My 3.5 year old son has been dxd with FG Syndrome after many metabolic and genetic tests have ruled him out of some really bad stuff. When we got the dx of FGS, we were told by Dr. Opitz to have his Immune system checked as well, cause some FGS kids have some problems. We did this and so far we know that he is IgA deficent, shows low numbers to pneumo and not indicated to the MMR. We have received the boosters and are awaiting a re-test in 4 weeks. Jacen has chronic sinus infections, chronic ear infections and both are becoming resistant to the usual abx. He has also had 3 bouts of pneumonia in the last 2 years. Only one requiring hospitalization. Also, he is chronically constipated, has reflux, is moderatly MR, completely non-verbal, has many behavior issues, and is Autistic as well. I am new to Immune issues and hope to learn so much from this group. Thanks, and Jacen Quote
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