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Chiari malformations?

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Posted

Anyone have a child with a chiari malformation?

went to the Ped today and this was noted on his CT report-- the final report is

still being dictated. is being scheduled for an MRI.

Just thought I would see how many folks had this. It is also listed on the NORD

website -just as is SDS www.rarediseases.org or something like that

+JMJ+

Peace Be With You,

><>Pattie

Piedmont Triad, NC

Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and

ph age 8, Shwachman-Diamond Syndrome.

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