Question

March 8, 2006

Excuse the cross-posting

A question for you SCIGers-- we have the boys infusions running now.

ph has never had a problem getting everything started-he's got lots of

fat. He's not fat-he's just solid and has something to work with.

OTOH is Scrawny y---- not much fat. The first 4 SCIGs went great

other than one site leaking.. Last week, the first injection on seemed

fine-when I checked the return, there was no blood. Took the needle out

(catheter still in place) and blood started backing up in the line. So I

closed the line off and put a new mini med set on, flushed the line and got

him going no problem. The NuFactor nurse had already told us what to do

it if happened.. So I knew that-but I remember her saying that it rarely

happened, so not to worry.

Well... tonight I got ph going and started on . The first mini med

set? The sticky on the butterfly came completely off-and because we had

leaking with his 3rd infusion, I wanted it to stick to be sure there was

less chance of the catheter coming out and/or kinking. so I got the second

mini-med set out. injected, pulled back to check the return. no blood.

Pulled the needle out and blood came back up in the line. So, I removed it

and changed it out- everything is fine now-but I wonder if I am not picking

sites correctly?

I can pinch more than an inch!!! And I make sure I have the area pinched

up with enough to inject---- Does this just happen or am I doing something

wrong? This has never happened with ph so I am wondering if 1) it is

because is so skinny (see our family website for pictures) or 2) if

is just more vascular or 3) a combination of both-maybe he is more

vascular because he has less fat?????

Any tips would be appreciated. This is the second week in a row we've

dipped into our ER kit :-)

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

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