Praying for Blake

[Guest guest]

,

I wanted you to know I'll be praying for Blake as he faces surgery on

Thurs. Being new to the group, and lately not having time to jump into

any discussions, I thought this is the least I could do is pray for a

child and let the parent know! We've been on the receiving end of much

prayer and know it helps. May you sense the help also. I plan to check

out your webpage soon. Check out ours whenever you get the chance!

~ (Mom to : Kaitlyn,13 -healthy, double BMT donor

,10 - XHIM, 9 mos. post BMT

, 5 - XHIM, 9 mos. post BMT)

In response to:

From: marie

Sent: Monday, January 23, 2006 4:28 PM

Subject: Blake S.

Hi All!!

Just wanted to touch base with you all as far as Blake is concerned

We took Blake to the ENT on Jan. 12. He finally sat still & let the

ENT clean out his " bad " ear....YEAH. Only thing is he was sooo sick

the day we went to get this done. We also took the last 2 CT Scans

that were done(we were told to). The ENT said he was not gonna look

at them. I thought, well you told us to bring them. Instead, he sent

us up the hall to the BEST ENT in SC. The ENT took one look at the

scans & told us that Blake was totally blocked in ALL sinuses!!! He

said it was no wonder that all of the antibiotics the child had been

on were not working past stopping day. he changed Blake to IV

Tobramycin & IV Cipro then told us he needed to get Blake to surgery

ASAP. Due to already being totally booked in the OR on the days he

does the surgery. Blake will go this Thursday, Jan. 26th to have

surgery done. The Dr. said that due to the extensiveness of Blake's

needs, he will most likely keep him over the weekend.

Blake saw the ENT again since being on the Tobi & the dose he is on

(205 mg 3 times daily), this morning.......He wants to keep Blake

for a full week. Since Blake got IVIG this past Fri. it means he

will be scheduled for IVIG again on Feb. 3rd & go home from there.

We are not too keen on the " whole week " thing. Blake's birthday is

Jan. 31. if Blake stays til the 3rd, I bet mom & dad will not hear

the end of the " birthday in the hospital " . Blake will turn 14.

Oh well, we will do what is necessary for Blake to get " off' the IV

antibiotics.

Please pray that the surgery will go well & we can get home sooner

than " expected " !!

Thank You

S(mom to Blake, 14 in 9 days. CVID with Complete T-Cell

Dysfunction & more......)