more questions

[Guest guest]

ok, I appreciate those explanations. I KNOW the IVIG, should it work,

and I expect it to, would be worth the trade off of this mess we have

been living in. Brennan has been sick his entire life. I mean, he gets

MORE sick and LESS sick, but there is always SOME degree of sick going

on. He should have the chance to be as " normal " as he can get.

Granted, he's pretty quirky, so I dont know how close he might come LOL

Savannah has had so much asthma trouble since she was diagnosed, that

her lungs currently function(saps) at 30-40%,..........so, would

something with the potential to alleviate her asthma symptoms and stop

long term damage and possibly help her screaming stomach and leg pains

be worth it? you betcha. WE have been discussing this for over a yr

with the pulmo, for brennan, and now we all feel like its really time.

I guess I am still thrown for a loop with savannah b/c she USED to be

so healthy, and now,forgive the poor grammer, its like the kid keeps

getting brokener and brokener every yr.

I guess anticipating it is making me more worked up than the actual

event, and that is what always happens. We will just have to wait and

see how it goes, expect the best, knowing there is potential for a

fluke , and trust we are with ones who will best know what to do for

them. and I do trust them, and our pulmo will be in clinic that day

and promised to be there should any kind of problem occur,and I know

she will take care of it.

I am just trying to get a handle on all of it at once, so I am

prepared should some event happen(and with my kids, esp. brennan, if

something is going to go the wrong way, it generally does, medically)

so I am not freaked out if it does happen.

thanks again,

valarie

mom to

Olivia, 9 asthma allergies GERD

Savannah 8 asthma, cvid, allergies

Donovan, 5 asthma, low iga and igm, allergies, TBM

Brennan 3 asthma, hypogamm, TBLM, allergies