IVIG Infusions

[Guest guest]

Hi All!!

I was wonder if anyone is using the Gamma-Gard Liquid?

Blake usually gets Gammagard S/D 10%. We were informed that the

Pharmacy at the Day Hospital can not give Blake the gammagard S/D

any more. The Immunologist was informed of this just last week as

were we. Blake will still get it every 2 weeks. We had to run it

slower than usual due to the reactions/side effects. We were there

from 8:30 am to 5:00 pm, making Thursday on very long tiring day The

Dr. wanted Blake to also take Benadryl with this first dose as well.

We opted for the Dye Free oral.

The only problems he has had with it is flushing & he complained

that he was achy. he also has a mild headache(he says he does not

need the Tylenol because he can " handle " it right now)

I went over to the Blood Disorder Center(just around the corner) to

see if they would get a Lovenox Level some time this week because we

have not been able to draw back any blood in 3 weeks. He was suppose

to get his IgG Levels done(every other treatment for us that equals

once a month) but we will try on March 31 since they cold get no

blood this time.

The Nurse told me that any one getting IVIG at this hospital will be

switched to the Liquid brands of IVIG(gammunex, gammagard) by the

end of the month. But she was surprised that Blake was switched

because they were told HE would stay on the " powder " due to his

total IgA Deficiency. We will see what transpires. I hope we can

continue with the " liquid " it was all ready when we arrived & all

they did was " pop the top " & get it started!!!

(mom to Blake 14)