Melinda

[Guest guest]

In a message dated 4/26/2006 9:01:52 PM Pacific Daylight Time,

tigerk829@... writes:

At age 4

his titers were done and he did not make titers for Prevnar so he was

revaccinated. Connor has also had allergy testing done 3 times and

currently takes weekly allergy shots. He has also had his tonsils

and adenoids removed, 3 sets of tubes placed, and has had sinus

surgery.

IVIG has been mentioned but because Connor's infections are not life

threatening his doctor has treated his infections aggressively

Hi Melinda,

I just wanted to let you know our story--because your sounds so familiar to

me! My son, , started getting chronic sinus infections at the age of 5.

This was when his Adenoids were removed. By age six, the ear infections had

started in addition to sinus. By age 10, he had constant strep although he

had his tonsils removed two years previously. He also had two sinus surgeries

and four sets of ear tubes. None of these surgeries worked--he still got

infections. He was infected with sinus, ears or strep (two or all of these at

once) every two to three weeks. It was slowly deteriorating his sunny

disposition to say the least. His quality of life was almost nonexistent.

His ex-Ped told me that he had a PID, but IVIG wouldn't help him. I didn't

believe him so I fired him and found and Immuno to see my son. The result

was a diagnosis of CVID and treatment of IVIG.

Since starting on IVIG he has not had one single ear infection or one case

of strep. He has sinus infections still, but not like he did previous to the

IVIG.

Some Docs will tell you that it's all about the life-threatening

infections. No doubt, those infections need to be treated. But the every day,

chronic

infections must also be taken into consideration. At least, if it were the

Doc's child, I'm sure he/she would take them into consideration!!

Because my son was treated aggressively with antibiotics and he also has

drug allergies, he has only three or four antibiotics left that can be taken

orally. The others were given too often and are no longer effective. If we

hadn't gone on IVIG, we wouldn't have antibiotics to treat him with unless they

were IV.

I wish I hadn't waited so long. I thank God every day for IVIG!! Of

course, you have to decide what is best for Connor. But since I have been where

you are--don't let the Docs decide for you. Do what you think is best. If you

are in doubt, you could always try a trial of IVIG to see if/how it works.

You may need a second opinion for this.

Take care--

Sandi, Mom to --age 13--CVID