Aspergers/PID link

[Guest guest]

Rogena--just passing this along--Amy was going to write to you, but

she is on her way to ER with her little guy--- I hope he is OK!!-but

she did notice your post and will get to you when she can. She has a

TON of info--I could just kick myself---she had sent me a slew of info

on aspergers awhile back b/c of something else---and I must have

deleted it, b/c I checked all thru my mail and its of course gone,

sorry!!!

I just want you to know your post and concerns are not unnoticed.

valarie

[Guest guest]

: Thanks for the response. I do think that all this quirky

behavior is very possibly just " toddler " stuff that I was fortunate

enough to not have to deal with with the other boys! The ped was a

bit distraught at the " checking out " fit he threw in her office.

That is what got me concerned. My DH has been concerned for some

time now. It looks like I have some research to do before we persue

this issue further with the docs.

-Rogena (Mom to 4 boys, including Cole -Partial IgA Def, GERD,

possible Celiac)

>

> Rogena, I have no experience at all with this, but I know that Amy

and

> if isnt too busy readying for surgery on Fri she will pipe

in

> too. Amy's little boy I think was about that age when dx'd.

> Some of those traits remind me of savannah, and she has no autistic

> problems at all--but the not wanting to be held as a baby, (she was

> happiest naked, in the dark, alone--which made me feel like a

terrible

> mom)--clung to me as a toddler, screamed a LOT, and would often

throw

> those fits where all I could do was hold her down and wait for her

to

> scream it out--sometimes for hours.

> So maybe its normal--but the " looking thru you and not seeing you "

> sounds like something questionable--if not autistic tendency---I

have

> several in my family with epilepsy(possibly donovan, his EEg was

> abnormal and we are waiting for the drs appt to hear it all)--and

> there is such a thing as " staring seizures " --my niece used to do

> that,especially when mad--it was CREEPY--later on, we found out it

was

> epilepsy. So I think you are right to be concerned---and if

nothing is

> wrong, well, all you did was your best for your son.

> and dont worry, you arent dogging your baby--wait till I spew

about my

> 4 yr old Brennan sometimes!!LOL

> Valarie

> mom to

> olivia--asthma, allergies

> savannah--asthma, allergies, CVID

> donovan--asthma, allergies, CVID, TBM

> brennan--asthma, allergies, CVID, TBLM

>

[Guest guest]

: Thanks for the response. I do think that all this quirky

behavior is very possibly just " toddler " stuff that I was fortunate

enough to not have to deal with with the other boys! The ped was a

bit distraught at the " checking out " fit he threw in her office.

That is what got me concerned. My DH has been concerned for some

time now. It looks like I have some research to do before we persue

this issue further with the docs.

-Rogena (Mom to 4 boys, including Cole -Partial IgA Def, GERD,

possible Celiac)

>

> Rogena, I have no experience at all with this, but I know that Amy

and

> if isnt too busy readying for surgery on Fri she will pipe

in

> too. Amy's little boy I think was about that age when dx'd.

> Some of those traits remind me of savannah, and she has no autistic

> problems at all--but the not wanting to be held as a baby, (she was

> happiest naked, in the dark, alone--which made me feel like a

terrible

> mom)--clung to me as a toddler, screamed a LOT, and would often

throw

> those fits where all I could do was hold her down and wait for her

to

> scream it out--sometimes for hours.

> So maybe its normal--but the " looking thru you and not seeing you "

> sounds like something questionable--if not autistic tendency---I

have

> several in my family with epilepsy(possibly donovan, his EEg was

> abnormal and we are waiting for the drs appt to hear it all)--and

> there is such a thing as " staring seizures " --my niece used to do

> that,especially when mad--it was CREEPY--later on, we found out it

was

> epilepsy. So I think you are right to be concerned---and if

nothing is

> wrong, well, all you did was your best for your son.

> and dont worry, you arent dogging your baby--wait till I spew

about my

> 4 yr old Brennan sometimes!!LOL

> Valarie

> mom to

> olivia--asthma, allergies

> savannah--asthma, allergies, CVID

> donovan--asthma, allergies, CVID, TBM

> brennan--asthma, allergies, CVID, TBLM

>