Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hi Terri, my name is Patty and I have a 12 year old son here in Phoenix. My son has CVID. I am not aware of the husband and wife physician you are speaking of but would LOVE to find out if there is going to be another immunologist here in Phoenix. I am only aware of the immunologist we see and I am not thrilled with the infusion set up we must tolerate every 3 weeks. Please tell me more if and when you get more information. Patty > > From: " cerdaclan " <tcerda@...> > Date: 2006/04/20 Thu PM 05:12:27 EDT > > Subject: Anyone in Arizona??? > > Our family is getting ready to move to Tucson in the end of June. > We need to find a good pediatrician and a good immunologist. We > understand that there is a husband/wife pediatric immunology team > that has been recruited to Pheonix children's hospital beginning in > June. We also understand that there is a good infusion center in > the event, taht God help us, we need an infusion center again. > > We also need to find out about the school system and how it is set > up to deal with these kids that either cannot go to school or miss a > lot of school. Right now, the jury is out on whether or not Molly > will be able to start 1st grade next year....they want her to go a > solid three months without getting pnuemonia before they release her > to begin school. We also heard that the state has a program similar > to what one of the other posts mentioned that can defer some of the > costs of our medical care....eg: the kids are able to go on SS > Disability completely independant of my husband or I and can recieve > secondary medicare coverage. We are not eligeable for SSI due to > our income...but in Arizona, I understand our income may not > matter...that they have a whole different way of looking at things. > > I would love to find someone living in Arizona that can help us find > all the resources we need to hook into when we get there. > > Terri Mom (46), Molly (5) and Maggie (3) and Dog with PID>...it must > be in the air...... > > > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hi Terri, my name is Patty and I have a 12 year old son here in Phoenix. My son has CVID. I am not aware of the husband and wife physician you are speaking of but would LOVE to find out if there is going to be another immunologist here in Phoenix. I am only aware of the immunologist we see and I am not thrilled with the infusion set up we must tolerate every 3 weeks. Please tell me more if and when you get more information. Patty > > From: " cerdaclan " <tcerda@...> > Date: 2006/04/20 Thu PM 05:12:27 EDT > > Subject: Anyone in Arizona??? > > Our family is getting ready to move to Tucson in the end of June. > We need to find a good pediatrician and a good immunologist. We > understand that there is a husband/wife pediatric immunology team > that has been recruited to Pheonix children's hospital beginning in > June. We also understand that there is a good infusion center in > the event, taht God help us, we need an infusion center again. > > We also need to find out about the school system and how it is set > up to deal with these kids that either cannot go to school or miss a > lot of school. Right now, the jury is out on whether or not Molly > will be able to start 1st grade next year....they want her to go a > solid three months without getting pnuemonia before they release her > to begin school. We also heard that the state has a program similar > to what one of the other posts mentioned that can defer some of the > costs of our medical care....eg: the kids are able to go on SS > Disability completely independant of my husband or I and can recieve > secondary medicare coverage. We are not eligeable for SSI due to > our income...but in Arizona, I understand our income may not > matter...that they have a whole different way of looking at things. > > I would love to find someone living in Arizona that can help us find > all the resources we need to hook into when we get there. > > Terri Mom (46), Molly (5) and Maggie (3) and Dog with PID>...it must > be in the air...... > > > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Terri, I have an adult patient friend in Tucson that I hope to see in L.A. at the IDF leadership conference on the 26th. I'll get her contact information and pass it on to you. She has CVID and lives in Tucson -- so I assume she's found an immuologist somewhere! Or you can call IDF and ask to speak to a peer support who lives in Tucson. Their number is 1-800-296-4433. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 That would be soooooo great Dale! You are fantastic! Thanks > > Terri, I have an adult patient friend in Tucson that I hope to see in > L.A. at the IDF leadership conference on the 26th. I'll get her contact > information and pass it on to you. She has CVID and lives in Tucson -- > so I assume she's found an immuologist somewhere! Or you can call IDF > and ask to speak to a peer support who lives in Tucson. Their number is > 1-800-296-4433. > > In His service, > dale > Quote Link to comment Share on other sites More sharing options...
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