Guest guest Posted May 15, 2006 Report Posted May 15, 2006 Sandi - I understand your circumstances re: insurance and know you are trying to do the best for Bri. If you try SQ, you will need to be firm and give your doc instructions. Even the best immunos are not so well versed in SQ. For example, you have to get the levels high enough with IVIG before going to SQ. Since he is currently ill, I would encourage you to speak with a home health rep and see what they suggest. My guess is that they will tell you to get his levels up -- or get him stable before changing to SQ. Also, some of the products require that the doc order 125% of the regular dose spread over 3 weeks. A good home health nurse will push your doc to make sure Bri gets the right treatment. You really need an advocate here. There are many options for home health but there is a mom in this group who happens to work for NuFactor. Perhaps she could connect you with a good nurse advocate... Best wishes, mom CVIDer Quote
Guest guest Posted May 16, 2006 Report Posted May 16, 2006 In a message dated 5/15/2006 8:54:29 PM Pacific Daylight Time, dietdoc@... writes: A good home health nurse will push your doc to make sure Bri gets the right treatment. You really need an advocate here. ______________________________________________________________________________ Thanks, . You're right, I am the only one who is pushing this Doc and he doesn't take it too well. If we had an advocate, that would be awesome!! Sandi, Mom to --age 13--CVID Quote
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