Olivias introduction

[Guest guest]

Hi everyone,

I was introduced to this group from , mom. My daughter Olivia will

be 4 on June 7th. We have recently found out she has some sort of immune

defieiency, our first set of bloodwork showed no protection to diptheria,

tetnus, c pox and only protection to 2 out of the 7 prevnar. We re-did the

vaccanations and at 6 weeks rechecked them...they were actully pretty good. We

rechecked them 6 weeks later and her diptheria titers are gone, tetnus was much

lower and will loose that shortly and the pneumovax she only has protection to 6

out of the 23 subclasses. Also, she has a lower T-cell count (dont know the

exact #) and the immunologist said it appears that she does not have significant

activation in her T-cell population, and she also has double neg T-cells. Olivia

also has numerous other issues including fat malasorption, RAD, reflux (nissen)

and is FTT. So far they just tell me she has an unknown immune disorder...Im

just SO frustrated!!!

She is going to be starting IVIG soon (need to call today and get that set up)

and her immunologist gave me a name of Dr. Bill Grossman at Childrens Hospital

of Wisconsin and said she would like his input on her case. We are going to be

going out there anyways to meet with a motitily doctor re: Olivias bloating and

retching.

Its so hard to find other people to talk to about immune issues, some just look

at you like you nuts and overreacting about everything. I look forward to

talking with all of you and getting to know you.

BTW...where is this IDF conference in MN? Im also from MN and would love to go

to it. Thanks.

I would love to get any input on her situation.

10

Olivia 3.5 ~ FTT, fat malasorption, RAD, many food intorlerances, allergies,

chronic sinusitis and reflux.

Sydney 2 ~ reflux, former FTT & G-tuber now a whopping 32#

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