Dawn

March 8, 2006

Dawn,

Have you checked into starting SCIG instead? It's much less expensive. For

Conner his monthly SCIG cost was $2,000, his IVIG cost is $6,000. Conner

started treatment on SCIG, he had never done IVIG (except for the IVIG bolus

during his first SCIG - his numbers were so low!). So I know you can do

that just starting out. Heck some people just do daily injections, maybe

look into that too. Good luck!

Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

Hashimoto's disease, hypogammaglobulinemia, complement deficiency, antibody

deficiency, NK cell defect, and resolved adrenal insufficiency),

Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, asthma and mild hearing loss/unaided),

and Kelsey - (10, asthma)

>From: Dawn Souza <nwd30@...>

>Reply-

>

>Subject: Re:

>Date: Wed, 8 Mar 2006 11:09:12 -0800 (PST)

>

>Thanks so much for the reply. Does your insurance cover the treatment? My

>son has secondary insurance and I have blue cross, they have told me they

>would cover 80% of ivig treatment leaving me with the 700.00 monthly

>co-pay? This will stop me from getting treatment. I certainly cannot

>aford to pay that. My poor husband already works two jobs . I am having

>severe breathing issues now. I had pnuemonia and was in icu in Jan. I

>thought I could come off the inhalers and singular (I am nieve I guess) I

>thought I could return to normal lung function. So I know have to take

>strong antibiotics, steroids, on top of the other meds. I am scared to

>death to get treatment....Dawn cvid mother to

>hypogammaglobulinamia, acid reflux, asthma, develop. delay, sensory dys.

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