Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hi, my name is Rogena and I am new to this group. I am a devoted mother to four wonderful boys (well, five if you include my husband, lol). Our 3 year old, Cole, was diagnosed in October 2005 with Selective IgA with a subclass IgG deficiency. He had his baseline bloodwork done then and we do a follow up bloodtest in April. At that time the doctors are also going to test him for Celiac disease. I had him back to the ENT yesterday and we decided to give him a second set of ear tubes and give him an adenoidectomy in three weeks. While this whole PID thing is new to us, I am becoming increasingly amazed at how little the pediatricians seem to understand about this disorder. I seem to have to be my childs own advocate. I have never been one to rush to the doctor for childhood illnesses, but I find myself fighting to get my son the help he needs. The pediatrician we have is great, but she tends to treat him more as your typical healthy toddler, not one with a deficiency. I have pretty much had to request all the tests he has had thus far. My biggest medical partner has been the ENT. He actually is the one who questioned the PID and got the ball rolling. I have not found a local support group, but am excited to find this group...which I wouldn't have found if it hadn't been for www.midf.org. THANKS! Quote Link to comment Share on other sites More sharing options...
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