RE: emailing docs?

[Guest guest]

It depends on the doctor and his or her personality. Some are very open to

emails and have secure servers where you can freely discuss your children,

while others do not have secure servers and you have to use initials when

discussing your kids! LOL..THANK YOU HIPAA! Our hem probably shares the

most info via email (secure server), one of our immuno's emails, too. but

prefers to have me send info to him via email and then writes a letter back

via snail mail, the ped emails me (not a secure server) and we use initials

and don't go into great detail. The GI emails us, too-but lately it has

been more about getting the cigars that picked up for him in Honduras

to him than anything else! <roaring laughter>

How well do you know him? For instance when we were setting things up with

NuFactor, I was able to tell them to email our hem and his nurse as much

info as they wanted/needed because I knew they worked well with that medium.

I did not give them our immuno's contact (he doesn't order the IG anyway) or

the ped's email because I knew it was not their favorite medium to discuss

my children. That being said-our ped does email-but will call us and

discuss the boys rather than email-which works out better for all of us.

So, I guess I am not giving you any answers.sorry.. you have to figure out

the entire situation and decide for yourself what medium you feel is best to

communicate with her doctors. Another note: for " formal " issues, I write a

letter and mail it. Regular letters still seem to have more weight than

email.. So when the hem was considering a trial off of IVIG, I wrote a

formal letter and CC'd the other doctors-- email, at least to me, is a less

formal means of communication. I keep all of our doctors current with the

latest medical articles relating to SDS via email, too.

AND.yet with all that being said.I never emailed with our last hem that

retired.some doctors still use the phone! LOL AND.I don't email a doctor

until I have built up a relationship with him or her. Not all doctors give

out their email to all patients. we've had several give us their

home/private emails as we have gotten to know them. Of course at bigger

universities you can find their emails on-line easy enough.

I'll shut up now.

Peace Be With You,

Pattie

Don't let your past dictate who you are now, but let it be a part of who you

will become.

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I was wondering if I could get your opinion on this. As I posted

yesterday we are waiting for Ana's immunization responses to see what

the docs want to do. If they are low at all, we will be starting

IGIV. If they are not low, she said we will have to discuss it. But

she told me to call in a week and talk to the nurse to get the

results. I am afraid if they are normal, there will not be much of a

discussion, just more confusion on my part. So my question is this:

Is it jumping the gun to email our immuno the reasons why I feel Ana

should be started on IGIV either way? Is this a conversation better

had in person? I just feel so sure this is what we need to do, I feel

like we could be getting things set up while we wait. Or does the

insurance need to see those numbers in order to get it all set up.

The doc is so sweet and humors me with my zillion questions and color

coded charts that I don't want to bug her too much. Do you think I

should just wait for the results, I am just so anxious. I hate

waiting, but I know everyone does.

Thanks

Ana, IgG etc etc

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