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I live in MI, and many other states have a program that is tied to

medicaid. Its a branch only for chronically ill children, and its

income guidelines are much higher than for traditional medicaid. This

is what we do.....we have a primary, then the special medicaid. IT

covers drs office copays, and script copays, and it will cover the

IVIG 100%. I was back to work when Brennan was 4 weeks old just to pay

for donovans meds before we found out about that

insurance...........and now, if we didnt have it , just our COPAYS

would be over $2,000 a MONTH. yeah, just the copays. It might be worth

looking into.

YOu could try to apply for yourself. we were denied twice, hired a

legal rep, went to a court hearing to win this. I dont like the idea

of being on it, I am educated and had good job skills. I have tried

working, and all I end up doing is calling in at the last minute and

missing time which no employer likes. I dont like the situation, but

dont know what else to do right now.

vk

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