Guest guest Posted March 8, 2006 Report Posted March 8, 2006 I dont know what the relation there would be, but it sems like the worse the asthma, the worse the leg pains, and I mean, waking up in the night and screaming for hours leg pains, the child cannot walk at all when they occur What does the doctors say about this? Maybe she should see a neurologist. Janet mom to Brittany CVID age 15 Quote
Guest guest Posted March 8, 2006 Report Posted March 8, 2006 " Does anyone else whose kid has asthma develop horrific leg pains during an asthma flare?...waking up in the night and screaming for hours leg pains, the child cannot walk at all when they occur. " Valarie - This is not a wierd question... My daughter has experienced something similar. When she had flares of her GI problems, she would have excruciating leg pain and wake up screaming bloody hell. This is NOT growing pain. She now uses words to describe how it feels and it breaks my heart. We were logging the pain for months and it seemed to coincide with lower IgG (trough from IVIG) but not always. She also gets severe leg pain with any type of fever or infection. Last week, she started with a sore throat and hit the floor screaming -- and holding onto her legs for dear life. So, what is this? Well, we were told that it might be an " autoimmune " flair up. During a flair up, the " unknown trigger " can cause systemic problems throughout the entire body. Micro-organisms and allergens can contribute to flair-ups. You may to consider talking with a rheumatologist (they can check for JRA, etc.) -- one that knows immunology -- just to be safe. In our case, the doc determined that the best we can do is keep her IgG levels up (> 800) and avoid infections -- or anything that could negatively affect her gut. There are many reasons for muscular, joint, bone pain and if you are concerned about this, you could get it checked. Many children have joint pain as their main sign of a dysregulated immune system. Sorry your child is going through this. (mom to CVIDer) Quote
Guest guest Posted March 11, 2006 Report Posted March 11, 2006 In a message dated 3/11/2006 7:45:51 AM Pacific Standard Time, osdbmom@... writes: I myself have RLS,though I just found out about this yr.Its wonderful to finally have a med that helps it so much , One of my best friends has RLS--he is much older, though. I was just curious as to what you take that works?? Sandi, Mom to --age 13--CVID Quote
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