Judy re: SCIG/Port

[Guest guest]

Judy,

I don't know of a particular website dealing with Subcutaneous infusion of

IG (SCIG), sorry. We've never dealt with a port, but you mentioned Cody is

getting tired of being stuck. However, he will still be stuck with a port

because a port lies under the skin and must be accessed for infusion,

meaning a stick. I hope Cody's doctors were clear on this with you. The

only way to COMPLETELY eliminate a stick for infusion is to have a permanent

central line placed surgically. One of the benefits of SCIG is avoiding

surgery, and other things like infection, which is one of the risks of

having a port. I hope you have all available information regarding all

types of infusion sites/devices/processes before your son has surgery. I

would do anything to keep my son out of surgery if there is another option.

Antipov

mother to , 4 years old, X-SCID, 2 BMTS @ Duke, normal T cell

function, SCIG weekly