Re: introducing myself and need more information / Australian mums

October 20, 2011

Dear Rinita,Early Treatment with EDF/Mehta casting is the most effective treatment approach to progressive infantile scoliosis. Have the doctors ruled out congenital scoliosis? If so, what kind of surgery are they recommending? EDF casts are being applied at the Melbourne & Sydney Childrens Hospitals in Australia. I know that once the Australian mums in this group see this post, they will help guide you to both hospitals/docs.Please learn all you can on Early Treatment w/ Mehta casting right now, so you have the ammunition you need to help get your precious son the care he needs. Start with reading the “Growth as a corrective force in the early treatment of progressive infantile scoliosis” article by Mehta, MD, FRCS which can be found in the Files section of this group…Also, view A New Direction DVD which can be found in the youtube portion of www.infantilescoliosis.org (in 3 parts). Let us know if you have questions on either of these items.You’ve come to right place in gathering solid info on progressive infantile scoliosis and ET Mehta casting.Stay strong…You can do this.Sincerely,HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of rinita aswinSent: Wednesday, October 19, 2011 11:12 PMinfantile scoliosis treatment Subject: Re: introducing myself and need more information Dear all, Hi, firstly let me introduce myself, my name is Rinita and i have an 18 months old son, who had infantile scoliosis. Living in a third world country, scoliosis is something new and rarely people ever talked about. I have meet with many orthopedic surgeon here in Indonesia, and they solution bring doubt in my heart. my son is currently 18 degrees laying down, and they all suggest that if the curve increase by 7 degrees within 6 month then he must proceed to surgery. My biggest doubt is that i can not imagine an 18 months old going through such pain. He just started walking by himself and really enjoying such activity, meanwhile after a surgery there's a main possibility he would have to postponed such activity for a while, how can you explained that to an 18 month old boy?. Therefore I've search in internet whether there is another alternative to cure his scoliosis or at least stop the curve to increase which finally lead me to find this group which is also recommended by ISOP. My greatest hope is that i am able to find that alternative. I currently lived in Jakarta, Indonesia, for those who don't know where that is, well its around 24 hour drive from Bali. I have a few question relating with the cast that most people in this group had discussed, can anyone explained to me about the cast, and how it is done and whether it is effective as an alternative? I have also heard there's a hospital in Melbourne that can apply this cast (that is the nearest from a country where I lived) who can apply this cast, please correct me if I'm wrong but if it is true can anyone tell me which hospital? Thank you all, i really admired all the moms who has joined this group and hopefully i can be as strong as you are. Best RegardsRinita From: Tame Olson <dazies2001@...>infantile scoliosis treatment Sent: Thursday, 20 October 2011 5:17 AMSubject: Re: Re: SLC Oct. 17?It gets so frustrating sometimes.... Maybe it was just a bad xray?? Do you take them standing? We just went through a big episode w our son. The doc wanted to stop casting and brace bc of a plateau of 3 casts w no change and we really had to push to continue but I'm glad we did bc this cast he grew 3 inches and although we opted not to xray I know his curve had to decrease a little.... My long winded point is that you really just never know what each cast will bring and although it's an emotional roller coaster progress is possible. Can you discuss regression via email w the RN or maybe move up your next cast date. I know it's sooo ridiculously hard sometimes:( Im sorry I can't help more! If I had a back fixing wand I would wave it across the universe.TameSent from my iPhoneOn Oct 19, 2011, at 8:48 AM, " hallmark13 " <hallmark13@...> wrote:Well...we kind of got some rough news on Monday with Cast #8. Jonas was around 25 degrees in cast #7 but once they applied cast #8 his xray showed around 40 degrees!! Not being completely satisfied w/ the results Dr. D'A made some adjustments which included some padding on one side and cutting off a peice under the under of the other side. They did not do another xray after the adjustments were made so we have no clue where is curve is now. My husband and I left there feeling very confused on what to do next. And b/c the docs were so busy we didn't even get to hear how they felt about the possible regression. I am going to call today. My heart can't stand to watch and wait...if the cast isn't holding him anymore. :-(HollieMama of Jonas 3 yo in cast #8. Between 30*-40* down from 73*and a baby of the way.------------------------------------

October 22, 2011

Dear Rinita,

’s questions are very good (Have the

doctors ruled out congenital scoliosis? If so, what kind of surgery are

they recommending?) I would try to find answers to those questions.

Meanwhile, try to contact the hospitals in Melbourne and Sydney, and Shriners

in Salt Lake City, Utah, USA.

They may have programs to help families who live in other countries and need

travel assistance.

Your instincts as a mother are right on

target! I would search for an alternative to surgery, too, and ask as

many questions as you can!!!

Sherry

Re:

Re: SLC Oct. 17?

It gets so frustrating sometimes.... Maybe it was just a bad xray?? Do you take

them standing? We just went through a big episode w our son. The doc wanted to

stop casting and brace bc of a plateau of 3 casts w no change and we really had

to push to continue but I'm glad we did bc this cast he grew 3 inches and

although we opted not to xray I know his curve had to decrease a little.... My

long winded point is that you really just never know what each cast will bring

and although it's an emotional roller coaster progress is possible. Can you

discuss regression via email w the RN or maybe move up your next cast date. I

know it's sooo ridiculously hard sometimes:( Im sorry I can't help more! If I

had a back fixing wand I would wave it across the universe.

Tame

Sent from my iPhone

On Oct 19, 2011, at 8:48 AM, " hallmark13 " <hallmark13@...> wrote:

Well...we kind of got some rough news on Monday with Cast #8. Jonas was

around 25 degrees in cast #7 but once they applied cast #8 his xray showed

around 40 degrees!! Not being completely satisfied w/ the results Dr. D'A made

some adjustments which included some padding on one side and cutting off a

peice under the under of the other side. They did not do another xray after the

adjustments were made so we have no clue where is curve is now. My husband and

I left there feeling very confused on what to do next. And b/c the docs

were so busy we didn't even get to hear how they felt about the possible

regression. I am going to call today. My heart can't stand to watch

and wait...if the cast isn't holding him anymore. :-(

Hollie

Mama of Jonas 3 yo in cast #8. Between 30*-40* down from 73*

and a baby of the way.

------------------------------------

October 23, 2011

I have the costs for the doctor and the casting, but will need to find out

hospital costs for you. I will get back to you

Sent from mobile

October 24, 2011

Dear and sherry, I have consult with an orthopedic in Singapore, by sending them my son's x-ray result and they confirmed that my son scoliosis is not a congenital scoliosisRegardsrinita From: SR Clancy <svale88@...>infantile scoliosis treatment Sent: Saturday, 22 October 2011

10:58 PMSubject: RE: introducing myself and need more information / Australian mums

Dear Rinita,

â€™s questions are very good (Have the