Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 they thought maybe a cilliary disfunction. Amy, Have they tested for Immotile Cilia Syndrome( I think) it's relatively easy, they just stick a probe up the nose to get some cilia and see under a scope if it's alive. OK, hard to test a little one, was tested twice but both times her cilia was dead, but also her nose was never clear always junky, so we never got a definitive answer. I know they can also test under a general, in the lungs, doing a biopsy, I wouldn't go for that unless there was some other surgery already needed, so we never had that done. Mom to - CVID, asthma, GERD Quote Link to comment Share on other sites More sharing options...
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