Guest guest Posted August 21, 1999 Report Share Posted August 21, 1999 Janet - I feel really dumb asking this, but what does nbsp stand for? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 I can relate to your husbands' itching problem. I too had a dreadful time with it especially in the summer. Nothing over the counter worked for me so I went to the doc and ha gave me an antihistamine which didn't work either. I am HCV pos. and when I first found out I started right off with Milk Thistle and within one week all signs of rash and itch were GONE. I have not had an itch problem since. I also used Lamisol for fungus and it helped some. The best of luck. KT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 's disease is a build up of copper in the system. It can cause many symptoms (forgetfulness, muscle and nerve problems, speech problems...). She will probably have a gold-like ring around her iris's in her eyes. Hope that this is helpful. Sorry to hear about your mom. Justice - When you get what you deserve Mercy - When you don't get what you deserve Grace - When you get what you don't deserve " Hunger hurts but starving works when it costs too much to love........ " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Dear Reindeer, 's syndrome is not the same thing as 's disease. But that's about all I do know. Mona --- Reindeer12@... wrote: > 's disease is a build up of copper in the > system. It can cause many > symptoms (forgetfulness, muscle and nerve problems, > speech problems...). She > will probably have a gold-like ring around her > iris's in her eyes. Hope that > this is helpful. Sorry to hear about your mom. > > > > Justice - When you get what you deserve > Mercy - When you don't get what you deserve > Grace - When you get what you don't deserve > > " Hunger hurts but starving works when it costs > too much to love........ " > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Happy, happy, happiest birthday Emma from your pal Eli!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Hi , Good for you to vent -- that's the way to deal with this. And you found a great cure: hubby cooking dinner! This DS thing often comes up and bites me in the butt, to be blunt. Like during down time, those rare times when my husband and I are out alone. It takes my breath away: can you believe we have a child with Down Syndrome? Can you believe we had twins and one of them has DS? And we already had a toddler? I remember when they were born we thought it was like a sunday night Hallmark hall of fame movie.....but it's our life. You just have to try to keep perspective. And when that goes out of whack, do what you did which was vent. It will always be there. Hope things are settling down a bit. I'm thinking of you with empathy and compassion. I'm writing this late Sunday night, so have a good week! love Debbi, mom to Logan 5 1/2 Eli (DS) and Milo, 3 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 I'd love to have the cornsilk info, too. Diane RainyDaySoap > Re: Cornsilk in soap > > >>Also, > what properties does cornsilk add to the soap?<< > > I'd like to know this also. Sounds interesting. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Hi Everybody, I have a " newbie " question: I've tried making soap from kits and with pre-made white glycerin soap (melt-and-pour), working up my nerve to make the real thing, complete with trace. I even made a soap in the blander with lye and played with kitchen food coloring. It turned out flesh-colored and with an over-slippery texture. My question is: If you make clear glycerin soaps with colored glycerin " strips " embedded within the clear bar, how come the strips don't melt. Thanks for the information. Please e-mail it to me privately, as well as to the list, as I sometimes miss the list. Snowdon P.S. My co-worker is jealous of and intrigued with my soap-making efforts and that was the first question out of her mouth, too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2000 Report Share Posted July 6, 2000 Anyone in Alaska?????? At 5 Jul 2000 09:06:38 -0000, you wrote: > >------------------------------------------------------------------------ >Need a credit card? >Instant Approval and 0% intro APR with Aria! >1/6034/4/_/659983/_/962787998/ >------------------------------------------------------------------------ > >VISIT www./community/ for informative FILES, LINKS page, and ARCHIVE searches. You will need your password for egroups to use these services. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Marty I'm with you and agree whole heartedly and am on the band wagon. I have my little fingers working right now on it and they will continue. Thanks again - we must stick together on this effort. Keep those informative articles coming please and if you have any special ideas include me. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Marty I'm with you and agree whole heartedly and am on the band wagon. I have my little fingers working right now on it and they will continue. Thanks again - we must stick together on this effort. Keep those informative articles coming please and if you have any special ideas include me. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Marty I'm with you and agree whole heartedly and am on the band wagon. I have my little fingers working right now on it and they will continue. Thanks again - we must stick together on this effort. Keep those informative articles coming please and if you have any special ideas include me. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Marty I'm with you and agree whole heartedly and am on the band wagon. I have my little fingers working right now on it and they will continue. Thanks again - we must stick together on this effort. Keep those informative articles coming please and if you have any special ideas include me. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Dear Winnie: I was writing, and sent it off based on the article I saw. I am not complaining, and I am not sure whether I misunderstood or not, but, the article starts off with the idea that this is sexually transmitted, and that needs to be corrected. My " pet peeve " is that the vast majority of articles, or TV stories make HCV to be a disease that either is from IV drugs, alcoholism because of the cirrhosis, and even have seen it stated as a " gay " disease. It does not emphasize that prior to 1992, anyone receiving blood or blood by products may have been contaminated, etc. Most misinformation make this out to be a disease caused by " less desirable " activities or people who have engaged in activities that are not are not " socially correct " , and that is the myth I think needs to be addressed. People are not being tested because of the misinformation, and that is not good also. That is why I believe we all need to get involved. Marty essage: 13 Date: Fri, 28 Jul 2000 04:32:39 EDT From: RLWINNE@... Subject: Marty Marty I printed off what you wrote to me and after reading it again I think you missunderstood - I am happy with the short article in the USA Today Paper for not mentioning about it being sexually transmitted ect. I am furious with the Intelihealth page that we all read. There are others out there that I am not happy with either and will work on them but wanted to clear that up with you. If I'm wrong I'm sorry. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Dear Winnie: I was writing, and sent it off based on the article I saw. I am not complaining, and I am not sure whether I misunderstood or not, but, the article starts off with the idea that this is sexually transmitted, and that needs to be corrected. My " pet peeve " is that the vast majority of articles, or TV stories make HCV to be a disease that either is from IV drugs, alcoholism because of the cirrhosis, and even have seen it stated as a " gay " disease. It does not emphasize that prior to 1992, anyone receiving blood or blood by products may have been contaminated, etc. Most misinformation make this out to be a disease caused by " less desirable " activities or people who have engaged in activities that are not are not " socially correct " , and that is the myth I think needs to be addressed. People are not being tested because of the misinformation, and that is not good also. That is why I believe we all need to get involved. Marty essage: 13 Date: Fri, 28 Jul 2000 04:32:39 EDT From: RLWINNE@... Subject: Marty Marty I printed off what you wrote to me and after reading it again I think you missunderstood - I am happy with the short article in the USA Today Paper for not mentioning about it being sexually transmitted ect. I am furious with the Intelihealth page that we all read. There are others out there that I am not happy with either and will work on them but wanted to clear that up with you. If I'm wrong I'm sorry. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Dear Winnie: I was writing, and sent it off based on the article I saw. I am not complaining, and I am not sure whether I misunderstood or not, but, the article starts off with the idea that this is sexually transmitted, and that needs to be corrected. My " pet peeve " is that the vast majority of articles, or TV stories make HCV to be a disease that either is from IV drugs, alcoholism because of the cirrhosis, and even have seen it stated as a " gay " disease. It does not emphasize that prior to 1992, anyone receiving blood or blood by products may have been contaminated, etc. Most misinformation make this out to be a disease caused by " less desirable " activities or people who have engaged in activities that are not are not " socially correct " , and that is the myth I think needs to be addressed. People are not being tested because of the misinformation, and that is not good also. That is why I believe we all need to get involved. Marty essage: 13 Date: Fri, 28 Jul 2000 04:32:39 EDT From: RLWINNE@... Subject: Marty Marty I printed off what you wrote to me and after reading it again I think you missunderstood - I am happy with the short article in the USA Today Paper for not mentioning about it being sexually transmitted ect. I am furious with the Intelihealth page that we all read. There are others out there that I am not happy with either and will work on them but wanted to clear that up with you. If I'm wrong I'm sorry. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Dear Winnie: I was writing, and sent it off based on the article I saw. I am not complaining, and I am not sure whether I misunderstood or not, but, the article starts off with the idea that this is sexually transmitted, and that needs to be corrected. My " pet peeve " is that the vast majority of articles, or TV stories make HCV to be a disease that either is from IV drugs, alcoholism because of the cirrhosis, and even have seen it stated as a " gay " disease. It does not emphasize that prior to 1992, anyone receiving blood or blood by products may have been contaminated, etc. Most misinformation make this out to be a disease caused by " less desirable " activities or people who have engaged in activities that are not are not " socially correct " , and that is the myth I think needs to be addressed. People are not being tested because of the misinformation, and that is not good also. That is why I believe we all need to get involved. Marty essage: 13 Date: Fri, 28 Jul 2000 04:32:39 EDT From: RLWINNE@... Subject: Marty Marty I printed off what you wrote to me and after reading it again I think you missunderstood - I am happy with the short article in the USA Today Paper for not mentioning about it being sexually transmitted ect. I am furious with the Intelihealth page that we all read. There are others out there that I am not happy with either and will work on them but wanted to clear that up with you. If I'm wrong I'm sorry. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Grant; I just wanted to encourage you on the flax-oil and cottage cheese mixture. KEEP IT UP!!!!! My Uncle Joe, that has the same thing as you have, and is 91 years young, WAS on it for several months. While he was taking it, the drs, that had tried to get him to take the chemo, told him whatever you're doing, keep it up!!! His blood count and hemoglobin were getting better all the time. Until one day, he decided that the thought of eating one more bite of cottage cheese would make him sick, so he stopped taking it! Needless to say, now he's on the chemo. But he did get great results from the oil only as long as he took it. Just wanted to share this with you! Your friend, Fw: DEATH RATE = 100% > > > > GENEVA, SWITZERLAND--World Health Organization officials expressed > disappointment Monday at the group's finding that, despite the enormous > efforts of doctors, rescue workers and other medical professionals > worldwide, the global death rate remains constant at 100 percent. > > Death, a metabolic affliction causing total shutdown of all life > functions, has long been considered humanity's number one health concern. > Responsible for 100 percent of all recorded fatalities worldwide, the > condition has no cure. > > " I was really hoping, what with all those new radiology treatments, > rescue helicopters, aerobics TV shows and what have you, that we might at > least make a dent in it this year, " WHO Director General Dr. Gernst Bladt > said. " Unfortunately, it would appear that the death rate remains constant > and total, as it has inviolably since the dawn of time. " > > Many are suggesting that the high mortality rate represents a massive > failure on the part of the planet's health care workers. > > " The inability of doctors and scientists to adequately address this > issue of death is nothing less than a scandal, " concerned parent Marcia > Gretto said. " Do you have any idea what a full-blown case of death looks > like? Well, I do, and believe me, it's not pretty. In prolonged cases, total > decomposition of the corpse is the result. " > > " What about the children? " the visibly moved Gretto added. > > " At this early date, I don't want to start making broad > generalizations, " Citizens for Safety's Hemmlin said, " but it is > beginning to seem possible that birth--as well as the subsequent life cycle > that follows it--may be a serious safety risk for all those involved. " > > Death, experts say, affects not only the dead, but the non-dead as > well. > > " Those who suffer from death can be highly traumatized by it, often so > severely that it kills them, " noted therapist Eli Wasserbaum said. " But it > can also be very traumatic for the still-living who are left behind. The > sudden cessation of metabolic activity characteristic of terminal cases of > death often leaves the dead person in a position where they are unable to > adequately provide for the emotional needs of their loved ones. " > > > Death (above) has long been considered humanity's number one > health concern. Responsible for 100 percent of all recorded fatalities > worldwide, the condition has no cure. > > In the most serious cases of death, Wasserbaum explained, the trauma > inflicted upon these still-living victims of death may continue throughout > their entire lives, until their own deaths. " Thus, " Wasserbaum said, " the > 'vicious cycle' of death trauma continues indefinitely. " > > " Everybody talks about death, " Sen. Pete Domenici (R-NM) said, " but > nobody seems to actually be doing anything about it. I propose we stop > molly-coddling death, not to mention the multi-billion-dollar hospital, > mortuary, funeral and burial industries that reap huge profits from it. " > > Under Domenici's new bill, all federal funds will be withheld from the > medical industry until it " gets serious and starts cracking down on death. " > > Consumer rights advocate and staunch anti-death activist Ralph Nader > agreed with Domenici. > > " Why should we continue to spend billions of dollars a year on a > health care industry whose sole purpose is to prevent death, only to find, > once again, that death awaits us all? " Nader said in an impassioned address > to several suburban Californians. " That's called a zero percent return on > our investment, and that's not fair. Its time the paying customer stood up > to the HMOs and to the so-called 'medical health professionals' and said: > 'Enough is enough. I'm paying through the nose here, and I don't want to > die.' " > > > © Copyright 2000 Onion, Inc., All rights reserved. http://www.theonion.com/ > Ad Info | Copyright > © Copyright 2000 Onion, Inc., All rights reserved. Masthead | Contact > Information | Privacy Policy > > > > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > > > > > Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Dear Cliff; Stories like yours reaffirm my decision to stop all traditional forms of treatment and go with more natural ways to treat my cancer ( stage 111 multiple myeloma ). The chemo was killing me to and I noticed myself going further downhill after every treatment. I got a book on Natural Hygiene and what a proper diet can do and became a vegetarian. Since that moment , Aug. 1/2000, my blood has come back to normal levels and my body now has the energy to fight the cancer. Thanks for your story. Grant http://homepage.ntlworld.com/bryan.c/grant/index.html Fw: DEATH RATE = 100% GENEVA, SWITZERLAND--World Health Organization officials expressed disappointment Monday at the group's finding that, despite the enormous efforts of doctors, rescue workers and other medical professionals worldwide, the global death rate remains constant at 100 percent. Death, a metabolic affliction causing total shutdown of all life functions, has long been considered humanity's number one health concern. Responsible for 100 percent of all recorded fatalities worldwide, the condition has no cure. " I was really hoping, what with all those new radiology treatments, rescue helicopters, aerobics TV shows and what have you, that we might at least make a dent in it this year, " WHO Director General Dr. Gernst Bladt said. " Unfortunately, it would appear that the death rate remains constant and total, as it has inviolably since the dawn of time. " Many are suggesting that the high mortality rate represents a massive failure on the part of the planet's health care workers. " The inability of doctors and scientists to adequately address this issue of death is nothing less than a scandal, " concerned parent Marcia Gretto said. " Do you have any idea what a full-blown case of death looks like? Well, I do, and believe me, it's not pretty. In prolonged cases, total decomposition of the corpse is the result. " " What about the children? " the visibly moved Gretto added. " At this early date, I don't want to start making broad generalizations, " Citizens for Safety's Hemmlin said, " but it is beginning to seem possible that birth--as well as the subsequent life cycle that follows it--may be a serious safety risk for all those involved. " Death, experts say, affects not only the dead, but the non-dead as well. " Those who suffer from death can be highly traumatized by it, often so severely that it kills them, " noted therapist Eli Wasserbaum said. " But it can also be very traumatic for the still-living who are left behind. The sudden cessation of metabolic activity characteristic of terminal cases of death often leaves the dead person in a position where they are unable to adequately provide for the emotional needs of their loved ones. " Death (above) has long been considered humanity's number one health concern. Responsible for 100 percent of all recorded fatalities worldwide, the condition has no cure. In the most serious cases of death, Wasserbaum explained, the trauma inflicted upon these still-living victims of death may continue throughout their entire lives, until their own deaths. " Thus, " Wasserbaum said, " the 'vicious cycle' of death trauma continues indefinitely. " " Everybody talks about death, " Sen. Pete Domenici (R-NM) said, " but nobody seems to actually be doing anything about it. I propose we stop molly-coddling death, not to mention the multi-billion-dollar hospital, mortuary, funeral and burial industries that reap huge profits from it. " Under Domenici's new bill, all federal funds will be withheld from the medical industry until it " gets serious and starts cracking down on death. " Consumer rights advocate and staunch anti-death activist Ralph Nader agreed with Domenici. " Why should we continue to spend billions of dollars a year on a health care industry whose sole purpose is to prevent death, only to find, once again, that death awaits us all? " Nader said in an impassioned address to several suburban Californians. " That's called a zero percent return on our investment, and that's not fair. Its time the paying customer stood up to the HMOs and to the so-called 'medical health professionals' and said: 'Enough is enough. I'm paying through the nose here, and I don't want to die.' " © Copyright 2000 Onion, Inc., All rights reserved. http://www.theonion.com/ Ad Info | Copyright © Copyright 2000 Onion, Inc., All rights reserved. Masthead | Contact Information | Privacy Policy [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 , How do you test how much restriction you have if you don't sit up and eat your applesauce? Yesterday they did have me sit up again and had me drink water three times, and then eat about 1/2 of one of those little cups of applesauce. After all of that, I felt restriction and said maybe we should stop. Once I laid back down on the table the feeling of fullness went completely away, so I said I might want a little more in the band. The doctor got pretty miffed and said that he was told by his nurse that I had restriction, now WHAT WAS CORRECT. Then the nurse said, , you laid down, you won't be lying down when you eat so remember that. Intimidated, I said fine and let them remove the needle. Do you eat lying down during your fills? If so, I will refuse to sit up next time and see if it makes a difference or if maybe some of the fluid is shifting. How many cc's do you have in your band? Thank you for the info, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 I do eat and drink laying down (the nurse gets me a bendable straw for the water and feeds me the applesauce with a spoon). I'm not saying that sitting up will have the same effect for everyone that it does for me, but my experience is that if I sit up with the needle in then I lose all my restriction. On Tuesday this week I went in with 1.4 in my band for a fill of 1.9. When I got home that night I had no restriction whatsoever and could eat as much as I wanted. I went back the next day to have them look at it again and discovered there was nothing in my band and so I had them fill me again without sitting up and now I have excellent restriction. Dr Rumbaut June 5 2002 352/316/165 3rd Fill - 1.9cc Re: Digest Number 234 > , > > How do you test how much restriction you have if you don't sit up and eat > your applesauce? Yesterday they did have me sit up again and had me drink > water three times, and then eat about 1/2 of one of those little cups of > applesauce. After all of that, I felt restriction and said maybe we should > stop. Once I laid back down on the table the feeling of fullness went > completely away, so I said I might want a little more in the band. The > doctor got pretty miffed and said that he was told by his nurse that I had > restriction, now WHAT WAS CORRECT. Then the nurse said, , you laid > down, you won't be lying down when you eat so remember that. Intimidated, I > said fine and let them remove the needle. > > Do you eat lying down during your fills? If so, I will refuse to sit up > next time and see if it makes a difference or if maybe some of the fluid is > shifting. > How many cc's do you have in your band? > > Thank you for the info, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 In a message dated 12/17/2002 5:23:44 AM Eastern Standard Time, writes: > They are thrilled to be coming since my husband just got home from > Afghanistan on Friday and they want to see him so bad! We usually have a > small get together on Christmas Eve and invite friends, neighbors, and > whatever single soldiers aren't going home for Christmas. I can't stand the > thought of them being alone in the barracks on any holiday, so I cook a > little more and open my home. Jeni, I just had to comment on this part of your letter even though it wasn't directed towards me. I can only imagine how happy you all are to have your hubby home for Christmas. I hope you all have the best Christmas ever. I think it's great that you invite the singles to your home so that they won't be alone. If I were closer to a base I'd do so too. I hope we'll all remember those guys and gals that won't be home in our prayers during the holidays and every day. Please give your husband and fellow soldiers a big hug and thank you from this very thankful " Georgia Peach " for all that they do. Happy Holidays and Peace to All on this list and their loved ones. You're all in my prayers. Vickie 0:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 I second that, Vickie. Re: Digest Number 234 In a message dated 12/17/2002 5:23:44 AM Eastern Standard Time, writes: > They are thrilled to be coming since my husband just got home from > Afghanistan on Friday and they want to see him so bad! We usually have a > small get together on Christmas Eve and invite friends, neighbors, and > whatever single soldiers aren't going home for Christmas. I can't stand the > thought of them being alone in the barracks on any holiday, so I cook a > little more and open my home. Jeni, I just had to comment on this part of your letter even though it wasn't directed towards me. I can only imagine how happy you all are to have your hubby home for Christmas. I hope you all have the best Christmas ever. I think it's great that you invite the singles to your home so that they won't be alone. If I were closer to a base I'd do so too. I hope we'll all remember those guys and gals that won't be home in our prayers during the holidays and every day. Please give your husband and fellow soldiers a big hug and thank you from this very thankful " Georgia Peach " for all that they do. Happy Holidays and Peace to All on this list and their loved ones. You're all in my prayers. Vickie 0:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 I don't post often, but I do read and stay informed. I had revision surgery three years ago at the age of 43, original h-rod fusion in 1973 (15 yr.old), now fused to T-5 to S-1. I am living an almost full (minus any sports) and relatively pain free life (positively speaking), although I did experience some nerve damage during surgery which manifests itself in my feet....buzzing, numbness, tightness, I help control this pain and hip/buttocks pain with a low dose of neurontin and 50mg of vioxx daily. I say to all of you, thank-you for the abundance of info and support. I did not find any help or information regarding my condition on the web until 2 months after my revision surgery. And then it was like a gift from God....finally others who knew what I was experiencing and who spoke my language. (I first found Kathleen's twisted sister sight......THANK-YOU!) Suzi, I wish you the best with your revision in May and add me to your email list. I am more than happy to share and support during your recovery. And thanks for all your efforts, you can share anytime, because thats what support is all about. We all need to be supportive, because quite truthfully sights like these are going to be the only real support we get from anyone...family, doctors, friends, significant others included. Thank-you revision friends. The mostly silent, but ever watching twisted sister in Utah, Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Thanks for writing, Diane. I think of you often and remember you fondly. You provided some terrific support for me between your revision surgery and my own. I know you had an excellent surgical experience, and--did I ever follow up with you on this?--I actually tried to get to the same surgeon. My insurance carrier, however, did not cover that particular facility despite its stature and the wide respect it has earned. I had some truly hairy and interesting experiences with various other surgeons, at least one of them urged upon me by my HMO's IME advisors at the bitter end of the long appeal I was pressing. (Ultimately I had to switch to a PPO under the same carrier--which appears, at last, to be ante-ing up for a bunch of unpaid costs in connection with my precertified 2001 revision procedure.) Some of the people I saw seemed very eager to add to their cumulative revision-surgery experience by doing some CME on my own extremely complex spine-- eeekk!!! Again, I must reiterate that I am tremendously blessed to have found my way to Dr. Rand at New England Baptist (teaching appointment at Harvard Medical School). That's Rand, MD, all you guys seeking heartfelt recommendations. I am so tickled to hear how well you are doing at this stage of your recovery from some very major revision surgery, Diane. I can also empathize with your buzzying nerves. One of my docs hypothesized that my own persistent paresthesias are a sign of ongoing nerve- regeneration. Eliana > I don't post often, but I do read and stay informed. I had revision surgery > three years ago at the age of 43, original h-rod fusion in 1973 (15 yr.old), > now fused to T-5 to S-1. I am living an almost full (minus any sports) and > relatively pain free life (positively speaking), although I did experience > some nerve damage during surgery which manifests itself in my > feet....buzzing, numbness, tightness, I help control this pain and > hip/buttocks pain with a low dose of neurontin and 50mg of vioxx daily. > > I say to all of you, thank-you for the abundance of info and support. I did > not find any help or information regarding my condition on the web until 2 > months after my revision surgery. And then it was like a gift from > God....finally others who knew what I was experiencing and who spoke my > language. (I first found Kathleen's twisted sister sight......THANK- YOU!) > > Suzi, I wish you the best with your revision in May and add me to your email > list. I am more than happy to share and support during your recovery. And > thanks for all your efforts, you can share anytime, because thats what > support is all about. > > We all need to be supportive, because quite truthfully sights like these are > going to be the only real support we get from anyone...family, doctors, > friends, significant others included. Thank-you revision friends. > > The mostly silent, but ever watching twisted sister in Utah, > > Dana Quote Link to comment Share on other sites More sharing options...
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