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Re: Digest Number 234

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  • 4 months later...

I can relate to your husbands' itching problem. I too had a dreadful time

with it especially in the summer. Nothing over the counter worked for me so

I went to the doc and ha gave me an antihistamine which didn't work either.

I am HCV pos. and when I first found out I started right off with Milk

Thistle and within one week all signs of rash and itch were GONE. I have not

had an itch problem since. I also used Lamisol for fungus and it helped

some. The best of luck.

KT

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  • 2 weeks later...

's disease is a build up of copper in the system. It can cause many

symptoms (forgetfulness, muscle and nerve problems, speech problems...). She

will probably have a gold-like ring around her iris's in her eyes. Hope that

this is helpful. Sorry to hear about your mom.

Justice - When you get what you deserve

Mercy - When you don't get what you deserve

Grace - When you get what you don't deserve

" Hunger hurts but starving works when it costs

too much to love........ "

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Dear Reindeer,

's syndrome is not the same thing as 's

disease. But that's about all I do know.

Mona

--- Reindeer12@... wrote:

> 's disease is a build up of copper in the

> system. It can cause many

> symptoms (forgetfulness, muscle and nerve problems,

> speech problems...). She

> will probably have a gold-like ring around her

> iris's in her eyes. Hope that

> this is helpful. Sorry to hear about your mom.

>

>

>

> Justice - When you get what you deserve

> Mercy - When you don't get what you deserve

> Grace - When you get what you don't deserve

>

> " Hunger hurts but starving works when it costs

> too much to love........ "

>

>

>

__________________________________________________

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  • 1 month later...
Guest guest

Hi , Good for you to vent -- that's the way to deal with this. And you

found a great cure: hubby cooking dinner!

This DS thing often comes up and bites me in the butt, to be blunt. Like

during down time, those rare times when my husband and I are out alone. It

takes my breath away: can you believe we have a child with Down Syndrome?

Can you believe we had twins and one of them has DS? And we already had a

toddler? I remember when they were born we thought it was like a sunday

night Hallmark hall of fame movie.....but it's our life.

You just have to try to keep perspective. And when that goes out of whack,

do what you did which was vent. It will always be there.

Hope things are settling down a bit. I'm thinking of you with empathy and

compassion. I'm writing this late Sunday night, so have a good week!

love Debbi, mom to Logan 5 1/2 Eli (DS) and Milo, 3 1/2

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  • 1 month later...
Guest guest

I'd love to have the cornsilk info, too.

Diane

RainyDaySoap

> Re: Cornsilk in soap

>

> >>Also,

> what properties does cornsilk add to the soap?<<

>

> I'd like to know this also. Sounds interesting.

>

>

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Guest guest

Hi Everybody,

I have a " newbie " question: I've tried making soap from kits and with

pre-made white glycerin soap (melt-and-pour), working up my nerve to make the

real thing, complete with trace. I even made a soap in the blander with lye

and played with kitchen food coloring. It turned out flesh-colored and with

an over-slippery texture.

My question is: If you make clear glycerin soaps with colored glycerin

" strips " embedded within the clear bar, how come the strips don't melt.

Thanks for the information. Please e-mail it to me privately, as well as to

the list, as I sometimes miss the list.

Snowdon

P.S. My co-worker is jealous of and intrigued with my soap-making efforts

and that was the first question out of her mouth, too.

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  • 2 months later...
Guest guest

Anyone in Alaska??????

At 5 Jul 2000 09:06:38 -0000, you wrote:

>

>------------------------------------------------------------------------

>Need a credit card?

>Instant Approval and 0% intro APR with Aria!

>1/6034/4/_/659983/_/962787998/

>------------------------------------------------------------------------

>

>VISIT www./community/ for informative FILES, LINKS page, and

ARCHIVE searches. You will need your password for egroups to use these

services.

>

>

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  • 3 weeks later...
Guest guest

Marty

I'm with you and agree whole heartedly and am on the band wagon. I have my

little fingers working right now on it and they will continue. Thanks again

- we must stick together on this effort. Keep those informative articles

coming please and if you have any special ideas include me.

Winne

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Guest guest

Marty

I'm with you and agree whole heartedly and am on the band wagon. I have my

little fingers working right now on it and they will continue. Thanks again

- we must stick together on this effort. Keep those informative articles

coming please and if you have any special ideas include me.

Winne

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Guest guest

Marty

I'm with you and agree whole heartedly and am on the band wagon. I have my

little fingers working right now on it and they will continue. Thanks again

- we must stick together on this effort. Keep those informative articles

coming please and if you have any special ideas include me.

Winne

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Guest guest

Marty

I'm with you and agree whole heartedly and am on the band wagon. I have my

little fingers working right now on it and they will continue. Thanks again

- we must stick together on this effort. Keep those informative articles

coming please and if you have any special ideas include me.

Winne

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Guest guest

Dear Winnie:

I was writing, and sent it off based on the article I saw. I am not

complaining, and I am not sure whether I misunderstood or not, but, the

article starts off with the idea that this is sexually transmitted, and

that needs to be corrected. My " pet peeve " is that the vast majority of

articles, or TV stories make HCV to be a disease that either is from IV

drugs, alcoholism because of the cirrhosis, and even have seen it stated

as a " gay " disease.

It does not emphasize that prior to 1992, anyone receiving blood or

blood by products may have been contaminated, etc. Most misinformation

make this out to be a disease caused by " less desirable " activities or

people who have engaged in activities that are not are not " socially

correct " , and that is the myth I think needs to be addressed. People are

not being tested because of the misinformation, and that is not good

also.

That is why I believe we all need to get involved. Marty

essage: 13

Date: Fri, 28 Jul 2000 04:32:39 EDT

From: RLWINNE@...

Subject: Marty

Marty

I printed off what you wrote to me and after reading it again I think

you

missunderstood - I am happy with the short article in the USA Today

Paper

for not mentioning about it being sexually transmitted ect. I am

furious

with the Intelihealth page that we all read. There are others out there

that

I am not happy with either and will work on them but wanted to clear

that

up

with you. If I'm wrong I'm sorry.

Winne

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Guest guest

Dear Winnie:

I was writing, and sent it off based on the article I saw. I am not

complaining, and I am not sure whether I misunderstood or not, but, the

article starts off with the idea that this is sexually transmitted, and

that needs to be corrected. My " pet peeve " is that the vast majority of

articles, or TV stories make HCV to be a disease that either is from IV

drugs, alcoholism because of the cirrhosis, and even have seen it stated

as a " gay " disease.

It does not emphasize that prior to 1992, anyone receiving blood or

blood by products may have been contaminated, etc. Most misinformation

make this out to be a disease caused by " less desirable " activities or

people who have engaged in activities that are not are not " socially

correct " , and that is the myth I think needs to be addressed. People are

not being tested because of the misinformation, and that is not good

also.

That is why I believe we all need to get involved. Marty

essage: 13

Date: Fri, 28 Jul 2000 04:32:39 EDT

From: RLWINNE@...

Subject: Marty

Marty

I printed off what you wrote to me and after reading it again I think

you

missunderstood - I am happy with the short article in the USA Today

Paper

for not mentioning about it being sexually transmitted ect. I am

furious

with the Intelihealth page that we all read. There are others out there

that

I am not happy with either and will work on them but wanted to clear

that

up

with you. If I'm wrong I'm sorry.

Winne

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Guest guest

Dear Winnie:

I was writing, and sent it off based on the article I saw. I am not

complaining, and I am not sure whether I misunderstood or not, but, the

article starts off with the idea that this is sexually transmitted, and

that needs to be corrected. My " pet peeve " is that the vast majority of

articles, or TV stories make HCV to be a disease that either is from IV

drugs, alcoholism because of the cirrhosis, and even have seen it stated

as a " gay " disease.

It does not emphasize that prior to 1992, anyone receiving blood or

blood by products may have been contaminated, etc. Most misinformation

make this out to be a disease caused by " less desirable " activities or

people who have engaged in activities that are not are not " socially

correct " , and that is the myth I think needs to be addressed. People are

not being tested because of the misinformation, and that is not good

also.

That is why I believe we all need to get involved. Marty

essage: 13

Date: Fri, 28 Jul 2000 04:32:39 EDT

From: RLWINNE@...

Subject: Marty

Marty

I printed off what you wrote to me and after reading it again I think

you

missunderstood - I am happy with the short article in the USA Today

Paper

for not mentioning about it being sexually transmitted ect. I am

furious

with the Intelihealth page that we all read. There are others out there

that

I am not happy with either and will work on them but wanted to clear

that

up

with you. If I'm wrong I'm sorry.

Winne

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Guest guest

Dear Winnie:

I was writing, and sent it off based on the article I saw. I am not

complaining, and I am not sure whether I misunderstood or not, but, the

article starts off with the idea that this is sexually transmitted, and

that needs to be corrected. My " pet peeve " is that the vast majority of

articles, or TV stories make HCV to be a disease that either is from IV

drugs, alcoholism because of the cirrhosis, and even have seen it stated

as a " gay " disease.

It does not emphasize that prior to 1992, anyone receiving blood or

blood by products may have been contaminated, etc. Most misinformation

make this out to be a disease caused by " less desirable " activities or

people who have engaged in activities that are not are not " socially

correct " , and that is the myth I think needs to be addressed. People are

not being tested because of the misinformation, and that is not good

also.

That is why I believe we all need to get involved. Marty

essage: 13

Date: Fri, 28 Jul 2000 04:32:39 EDT

From: RLWINNE@...

Subject: Marty

Marty

I printed off what you wrote to me and after reading it again I think

you

missunderstood - I am happy with the short article in the USA Today

Paper

for not mentioning about it being sexually transmitted ect. I am

furious

with the Intelihealth page that we all read. There are others out there

that

I am not happy with either and will work on them but wanted to clear

that

up

with you. If I'm wrong I'm sorry.

Winne

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  • 1 month later...

Grant;

I just wanted to encourage you on the flax-oil and cottage cheese mixture.

KEEP IT UP!!!!! My Uncle Joe, that has the same thing as you have, and is 91

years young, WAS on it for several months. While he was taking it, the drs,

that had tried to get him to take the chemo, told him whatever you're doing,

keep it up!!! His blood count and hemoglobin were getting better all the

time. Until one day, he decided that the thought of eating one more bite of

cottage cheese would make him sick, so he stopped taking it! Needless to

say, now he's on the chemo. But he did get great results from the oil only

as long as he took it. Just wanted to share this with you!

Your friend,

Fw: DEATH RATE = 100%

>

>

>

> GENEVA, SWITZERLAND--World Health Organization officials expressed

> disappointment Monday at the group's finding that, despite the enormous

> efforts of doctors, rescue workers and other medical professionals

> worldwide, the global death rate remains constant at 100 percent.

>

> Death, a metabolic affliction causing total shutdown of all life

> functions, has long been considered humanity's number one health concern.

> Responsible for 100 percent of all recorded fatalities worldwide, the

> condition has no cure.

>

> " I was really hoping, what with all those new radiology treatments,

> rescue helicopters, aerobics TV shows and what have you, that we might at

> least make a dent in it this year, " WHO Director General Dr. Gernst Bladt

> said. " Unfortunately, it would appear that the death rate remains constant

> and total, as it has inviolably since the dawn of time. "

>

> Many are suggesting that the high mortality rate represents a

massive

> failure on the part of the planet's health care workers.

>

> " The inability of doctors and scientists to adequately address this

> issue of death is nothing less than a scandal, " concerned parent Marcia

> Gretto said. " Do you have any idea what a full-blown case of death looks

> like? Well, I do, and believe me, it's not pretty. In prolonged cases,

total

> decomposition of the corpse is the result. "

>

> " What about the children? " the visibly moved Gretto added.

>

> " At this early date, I don't want to start making broad

> generalizations, " Citizens for Safety's Hemmlin said, " but it is

> beginning to seem possible that birth--as well as the subsequent life

cycle

> that follows it--may be a serious safety risk for all those involved. "

>

> Death, experts say, affects not only the dead, but the non-dead as

> well.

>

> " Those who suffer from death can be highly traumatized by it, often

so

> severely that it kills them, " noted therapist Eli Wasserbaum said. " But it

> can also be very traumatic for the still-living who are left behind. The

> sudden cessation of metabolic activity characteristic of terminal cases of

> death often leaves the dead person in a position where they are unable to

> adequately provide for the emotional needs of their loved ones. "

>

>

> Death (above) has long been considered humanity's number one

> health concern. Responsible for 100 percent of all recorded fatalities

> worldwide, the condition has no cure.

>

> In the most serious cases of death, Wasserbaum explained, the trauma

> inflicted upon these still-living victims of death may continue throughout

> their entire lives, until their own deaths. " Thus, " Wasserbaum said, " the

> 'vicious cycle' of death trauma continues indefinitely. "

>

> " Everybody talks about death, " Sen. Pete Domenici (R-NM) said, " but

> nobody seems to actually be doing anything about it. I propose we stop

> molly-coddling death, not to mention the multi-billion-dollar hospital,

> mortuary, funeral and burial industries that reap huge profits from it. "

>

> Under Domenici's new bill, all federal funds will be withheld from

the

> medical industry until it " gets serious and starts cracking down on

death. "

>

> Consumer rights advocate and staunch anti-death activist Ralph Nader

> agreed with Domenici.

>

> " Why should we continue to spend billions of dollars a year on a

> health care industry whose sole purpose is to prevent death, only to find,

> once again, that death awaits us all? " Nader said in an impassioned

address

> to several suburban Californians. " That's called a zero percent return on

> our investment, and that's not fair. Its time the paying customer stood up

> to the HMOs and to the so-called 'medical health professionals' and said:

> 'Enough is enough. I'm paying through the nose here, and I don't want to

> die.' "

>

>

> © Copyright 2000 Onion, Inc., All rights reserved.

http://www.theonion.com/

> Ad Info | Copyright

> © Copyright 2000 Onion, Inc., All rights reserved. Masthead | Contact

> Information | Privacy Policy

>

>

>

>

>

> [This message contained attachments]

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

>

>

>

>

> Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

>

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  • 5 weeks later...

Dear Cliff; Stories like yours reaffirm my decision to stop all traditional

forms of treatment and go with more natural ways to treat my cancer ( stage

111 multiple myeloma ). The chemo was killing me to and I noticed myself

going further downhill after every treatment. I got a book on Natural

Hygiene and what a proper diet can do and became a vegetarian. Since that

moment , Aug. 1/2000, my blood has come back to normal levels and my body

now has the energy to fight the cancer.

Thanks for your story.

Grant

http://homepage.ntlworld.com/bryan.c/grant/index.html

Fw: DEATH RATE = 100%

GENEVA, SWITZERLAND--World Health Organization officials expressed

disappointment Monday at the group's finding that, despite the enormous

efforts of doctors, rescue workers and other medical professionals

worldwide, the global death rate remains constant at 100 percent.

Death, a metabolic affliction causing total shutdown of all life

functions, has long been considered humanity's number one health concern.

Responsible for 100 percent of all recorded fatalities worldwide, the

condition has no cure.

" I was really hoping, what with all those new radiology treatments,

rescue helicopters, aerobics TV shows and what have you, that we might at

least make a dent in it this year, " WHO Director General Dr. Gernst Bladt

said. " Unfortunately, it would appear that the death rate remains constant

and total, as it has inviolably since the dawn of time. "

Many are suggesting that the high mortality rate represents a massive

failure on the part of the planet's health care workers.

" The inability of doctors and scientists to adequately address this

issue of death is nothing less than a scandal, " concerned parent Marcia

Gretto said. " Do you have any idea what a full-blown case of death looks

like? Well, I do, and believe me, it's not pretty. In prolonged cases, total

decomposition of the corpse is the result. "

" What about the children? " the visibly moved Gretto added.

" At this early date, I don't want to start making broad

generalizations, " Citizens for Safety's Hemmlin said, " but it is

beginning to seem possible that birth--as well as the subsequent life cycle

that follows it--may be a serious safety risk for all those involved. "

Death, experts say, affects not only the dead, but the non-dead as

well.

" Those who suffer from death can be highly traumatized by it, often so

severely that it kills them, " noted therapist Eli Wasserbaum said. " But it

can also be very traumatic for the still-living who are left behind. The

sudden cessation of metabolic activity characteristic of terminal cases of

death often leaves the dead person in a position where they are unable to

adequately provide for the emotional needs of their loved ones. "

Death (above) has long been considered humanity's number one

health concern. Responsible for 100 percent of all recorded fatalities

worldwide, the condition has no cure.

In the most serious cases of death, Wasserbaum explained, the trauma

inflicted upon these still-living victims of death may continue throughout

their entire lives, until their own deaths. " Thus, " Wasserbaum said, " the

'vicious cycle' of death trauma continues indefinitely. "

" Everybody talks about death, " Sen. Pete Domenici (R-NM) said, " but

nobody seems to actually be doing anything about it. I propose we stop

molly-coddling death, not to mention the multi-billion-dollar hospital,

mortuary, funeral and burial industries that reap huge profits from it. "

Under Domenici's new bill, all federal funds will be withheld from the

medical industry until it " gets serious and starts cracking down on death. "

Consumer rights advocate and staunch anti-death activist Ralph Nader

agreed with Domenici.

" Why should we continue to spend billions of dollars a year on a

health care industry whose sole purpose is to prevent death, only to find,

once again, that death awaits us all? " Nader said in an impassioned address

to several suburban Californians. " That's called a zero percent return on

our investment, and that's not fair. Its time the paying customer stood up

to the HMOs and to the so-called 'medical health professionals' and said:

'Enough is enough. I'm paying through the nose here, and I don't want to

die.' "

© Copyright 2000 Onion, Inc., All rights reserved. http://www.theonion.com/

Ad Info | Copyright

© Copyright 2000 Onion, Inc., All rights reserved. Masthead | Contact

Information | Privacy Policy

[This message contained attachments]

________________________________________________________________________

________________________________________________________________________

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  • 2 years later...

,

How do you test how much restriction you have if you don't sit up and eat

your applesauce? Yesterday they did have me sit up again and had me drink

water three times, and then eat about 1/2 of one of those little cups of

applesauce. After all of that, I felt restriction and said maybe we should

stop. Once I laid back down on the table the feeling of fullness went

completely away, so I said I might want a little more in the band. The

doctor got pretty miffed and said that he was told by his nurse that I had

restriction, now WHAT WAS CORRECT. Then the nurse said, , you laid

down, you won't be lying down when you eat so remember that. Intimidated, I

said fine and let them remove the needle.

Do you eat lying down during your fills? If so, I will refuse to sit up

next time and see if it makes a difference or if maybe some of the fluid is

shifting.

How many cc's do you have in your band?

Thank you for the info,

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I do eat and drink laying down (the nurse gets me a bendable straw for the

water and feeds me the applesauce with a spoon). I'm not saying that

sitting up will have the same effect for everyone that it does for me, but

my experience is that if I sit up with the needle in then I lose all my

restriction. On Tuesday this week I went in with 1.4 in my band for a fill

of 1.9. When I got home that night I had no restriction whatsoever and

could eat as much as I wanted. I went back the next day to have them look

at it again and discovered there was nothing in my band and so I had them

fill me again without sitting up and now I have excellent restriction.

Dr Rumbaut

June 5 2002

352/316/165

3rd Fill - 1.9cc

Re: Digest Number 234

> ,

>

> How do you test how much restriction you have if you don't sit up and eat

> your applesauce? Yesterday they did have me sit up again and had me drink

> water three times, and then eat about 1/2 of one of those little cups of

> applesauce. After all of that, I felt restriction and said maybe we

should

> stop. Once I laid back down on the table the feeling of fullness went

> completely away, so I said I might want a little more in the band. The

> doctor got pretty miffed and said that he was told by his nurse that I had

> restriction, now WHAT WAS CORRECT. Then the nurse said, , you laid

> down, you won't be lying down when you eat so remember that. Intimidated,

I

> said fine and let them remove the needle.

>

> Do you eat lying down during your fills? If so, I will refuse to sit up

> next time and see if it makes a difference or if maybe some of the fluid

is

> shifting.

> How many cc's do you have in your band?

>

> Thank you for the info,

>

>

>

>

>

>

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  • 1 month later...

In a message dated 12/17/2002 5:23:44 AM Eastern Standard Time,

writes:

> They are thrilled to be coming since my husband just got home from

> Afghanistan on Friday and they want to see him so bad! We usually have a

> small get together on Christmas Eve and invite friends, neighbors, and

> whatever single soldiers aren't going home for Christmas. I can't stand the

> thought of them being alone in the barracks on any holiday, so I cook a

> little more and open my home.

Jeni, I just had to comment on this part of your letter even though it wasn't

directed towards me. I can only imagine how happy you all are to have your

hubby home for Christmas. I hope you all have the best Christmas ever. I

think it's great that you invite the singles to your home so that they won't

be alone. If I were closer to a base I'd do so too. I hope we'll all remember

those guys and gals that won't be home in our prayers during the holidays and

every day. Please give your husband and fellow soldiers a big hug and thank

you from this very thankful " Georgia Peach " for all that they do. Happy

Holidays and Peace to All on this list and their loved ones. You're all in my

prayers. Vickie 0:)

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I second that, Vickie.

Re: Digest Number 234

In a message dated 12/17/2002 5:23:44 AM Eastern Standard Time,

writes:

> They are thrilled to be coming since my husband just got home from

> Afghanistan on Friday and they want to see him so bad! We usually have a

> small get together on Christmas Eve and invite friends, neighbors, and

> whatever single soldiers aren't going home for Christmas. I can't stand

the

> thought of them being alone in the barracks on any holiday, so I cook a

> little more and open my home.

Jeni, I just had to comment on this part of your letter even though it

wasn't

directed towards me. I can only imagine how happy you all are to have your

hubby home for Christmas. I hope you all have the best Christmas ever. I

think it's great that you invite the singles to your home so that they

won't

be alone. If I were closer to a base I'd do so too. I hope we'll all

remember

those guys and gals that won't be home in our prayers during the holidays

and

every day. Please give your husband and fellow soldiers a big hug and

thank

you from this very thankful " Georgia Peach " for all that they do. Happy

Holidays and Peace to All on this list and their loved ones. You're all in

my

prayers. Vickie 0:)

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  • 2 months later...
Guest guest

I don't post often, but I do read and stay informed. I had revision surgery

three years ago at the age of 43, original h-rod fusion in 1973 (15 yr.old),

now fused to T-5 to S-1. I am living an almost full (minus any sports) and

relatively pain free life (positively speaking), although I did experience

some nerve damage during surgery which manifests itself in my

feet....buzzing, numbness, tightness, I help control this pain and

hip/buttocks pain with a low dose of neurontin and 50mg of vioxx daily.

I say to all of you, thank-you for the abundance of info and support. I did

not find any help or information regarding my condition on the web until 2

months after my revision surgery. And then it was like a gift from

God....finally others who knew what I was experiencing and who spoke my

language. (I first found Kathleen's twisted sister sight......THANK-YOU!)

Suzi, I wish you the best with your revision in May and add me to your email

list. I am more than happy to share and support during your recovery. And

thanks for all your efforts, you can share anytime, because thats what

support is all about.

We all need to be supportive, because quite truthfully sights like these are

going to be the only real support we get from anyone...family, doctors,

friends, significant others included. Thank-you revision friends.

The mostly silent, but ever watching twisted sister in Utah,

Dana

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Guest guest

Thanks for writing, Diane. I think of you often and remember you

fondly. You provided some terrific support for me between your

revision surgery and my own.

I know you had an excellent surgical experience, and--did I ever

follow up with you on this?--I actually tried to get to the same

surgeon. My insurance carrier, however, did not cover that

particular facility despite its stature and the wide respect it has

earned.

I had some truly hairy and interesting experiences with various other

surgeons, at least one of them urged upon me by my HMO's IME advisors

at the bitter end of the long appeal I was pressing. (Ultimately I

had to switch to a PPO under the same carrier--which appears, at

last, to be ante-ing up for a bunch of unpaid costs in connection

with my precertified 2001 revision procedure.) Some of the people I

saw seemed very eager to add to their cumulative revision-surgery

experience by doing some CME on my own extremely complex spine--

eeekk!!!

Again, I must reiterate that I am tremendously blessed to have found

my way to Dr. Rand at New England Baptist (teaching appointment at

Harvard Medical School). That's Rand, MD, all you guys seeking

heartfelt recommendations.

I am so tickled to hear how well you are doing at this stage of your

recovery from some very major revision surgery, Diane. I can also

empathize with your buzzying nerves. One of my docs hypothesized that

my own persistent paresthesias are a sign of ongoing nerve-

regeneration.

Eliana

> I don't post often, but I do read and stay informed. I had revision

surgery

> three years ago at the age of 43, original h-rod fusion in 1973 (15

yr.old),

> now fused to T-5 to S-1. I am living an almost full (minus any

sports) and

> relatively pain free life (positively speaking), although I did

experience

> some nerve damage during surgery which manifests itself in my

> feet....buzzing, numbness, tightness, I help control this pain and

> hip/buttocks pain with a low dose of neurontin and 50mg of vioxx

daily.

>

> I say to all of you, thank-you for the abundance of info and

support. I did

> not find any help or information regarding my condition on the web

until 2

> months after my revision surgery. And then it was like a gift from

> God....finally others who knew what I was experiencing and who

spoke my

> language. (I first found Kathleen's twisted sister sight......THANK-

YOU!)

>

> Suzi, I wish you the best with your revision in May and add me to

your email

> list. I am more than happy to share and support during your

recovery. And

> thanks for all your efforts, you can share anytime, because thats

what

> support is all about.

>

> We all need to be supportive, because quite truthfully sights like

these are

> going to be the only real support we get from anyone...family,

doctors,

> friends, significant others included. Thank-you revision friends.

>

> The mostly silent, but ever watching twisted sister in Utah,

>

> Dana

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