Re: 'silent' ear infections

[Guest guest]

my daughter Breanna has had 1000's of ear infection (she is 11) and very

rarely does she have pain which baffles the drs. The way I tell with her is

her tongue has what they call a strawberry look so then it is off to the dr

s Breanna eas seem to stay infected they clear up for 2-3 days if I am lucky

and then the tongue has that strawberry look again,they have tried many meds

and nothing seems to keep them clear so her ped is to the point that I can

call and say what is going on and she will call in meds for her otherwise we

would be there every day

Laurie L . DeSouto

l.desouto@...

203-730-1556- home office

203-942-9513 - cell phone

203-797-8961 - fax

-- 'silent' ear infections

has had two very bad ear infections in the past 6 weeks but we had no

idea until the dr looked in her ears. The dr asked if her ears were sore

but was adament both times they were'nt.

The first instance, the eardrum was about to burst and the other ear was red

(she was at the drs for mycoplasma pneumonia). The second instance only

involved one ear (at the drs for croup). I know from past threads here that

this is not such an uncommon thing with our pid children who deal with such

a high amount of ongoing illness, but it made me relise that all those

really puzzling times I have smelt 'sinus breathe' on , without a

resulting sinus infection, may have been in all probability EAR breathe.

Does this sound familiar? Also, for those who are in similiar situations,

how do you manage these 'silent' ear infections? In all probability

has had many of her ear infections missed- all those times of 'sinus breathe

and flushed face/out of sorts/tiredness.... I am feeling really guilty here

, mum to (8), low C3 and no IgA, and Ricahrd (6) selective

antibody def/low C4/ no IgA

[Guest guest]

In a message dated 8/12/04 7:26:56 AM Pacific Daylight Time,

l.desouto@... writes:

The way I tell with her is

her tongue has what they call a strawberry look

Hi Laurie,

Is the strawberry tongue related to her ear infections or throat

infections?? I thought " straberry tongue " was a sign of strep?? This is

interesting if

it occurs with ear infections only.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

[Guest guest]

In a message dated 8/12/04 7:26:56 AM Pacific Daylight Time,

l.desouto@... writes:

The way I tell with her is

her tongue has what they call a strawberry look

Hi Laurie,

Is the strawberry tongue related to her ear infections or throat

infections?? I thought " straberry tongue " was a sign of strep?? This is

interesting if

it occurs with ear infections only.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

[Guest guest]

when she gets strawberry tongue it is related to her ears, she rarely gets

strep. but I know if her tongue is like that she has ear infections, the

other thing is that she doesn't run a fever with these ear infections either

Laurie L . DeSouto

l.desouto@...

203-730-1556- home office

203-942-9513 - cell phone

203-797-8961 - fax

-- Re: 'silent' ear infections

In a message dated 8/12/04 7:26:56 AM Pacific Daylight Time,

l.desouto@... writes:

The way I tell with her is

her tongue has what they call a strawberry look

Hi Laurie,

Is the strawberry tongue related to her ear infections or throat

infections?? I thought " straberry tongue " was a sign of strep?? This is

interesting if

it occurs with ear infections only.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

[Guest guest]

Hi ,

Funny ,I was just thinking about you, I haven't seen you post in a long time, I

hope all is well with you and the kids. Just a quick note, please don't feel

guilty about anything, you are a great Mom to your kids, we can't always pick up

on everything, especially when the symptoms aren't clear cut. I think we can all

miss things at times, but we do the best we can for our kids. They sure don't

make this parenting thing easy. Take care.

- Mom to - CVID, asthma, gerd

'silent' ear infections

has had two very bad ear infections in the past 6 weeks but we had no

idea until the dr looked in her ears. The dr asked if her ears were sore but

was adament both times they were'nt.

The first instance, the eardrum was about to burst and the other ear was red

(she was at the drs for mycoplasma pneumonia). The second instance only

involved one ear (at the drs for croup). I know from past threads here that

this is not such an uncommon thing with our pid children who deal with such a

high amount of ongoing illness, but it made me relise that all those really

puzzling times I have smelt 'sinus breathe' on , without a resulting sinus

infection, may have been in all probability EAR breathe.

Does this sound familiar? Also, for those who are in similiar situations,

how do you manage these 'silent' ear infections? In all probability has

had many of her ear infections missed- all those times of 'sinus breathe' and

flushed face/out of sorts/tiredness.... I am feeling really guilty here.

, mum to (8), low C3 and no IgA, and Ricahrd (6) selective

antibody def/low C4/ no IgA