Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 from Dale, Mom to Katy, CVID, age 20 O , that WAS extreme! That's enough to traumatize and exhaust any parent! Go ahead and cry -- it hurts! Katy's first 3 IV's were extremely painful -- but it was because they were running it way too fast. I was told her vitals were fine -- but I knew that SHE wasn't. If you ran it over 8 hours -- I can't imagine it being too fast. I'm so glad you are already set up for Sub-Q and already know what's involved. Looks like that's going to be the only way to go with Conner. We also learned that Katy was allergic to Benadryl -- so giving that complicated everything! It caused her extreme body pain and made her rage uncontrollably ( growling and threatening to bite). You might want to check his reaction to Benadryl at a more neutral time and see if the Benadryl contributed to the problem. Glad that one is over -- now to get Conner to understand that that won't happen again! I'm glad he's 10 and not 2! I want you to watch for something in Conner. I want you to watch over the next month and see if Conner heals emotionally from this trauma or whether he continues to exhibit fear of Cleveland or fear of that particular doctor. I just don't want him to be permanently fearful of doctors -- because 8 years from now, he'll be deciding whether to see a doctor or not. If the fear is still there after a month, I think you need to communicate to the doctor who was with you that day and ask him to meet with Conner one-on-one for a man-to-man discussion about what happened and why it happened. Most pediatricians will gladly do an intervention when they realize that these kids need to learn to work with doctors for the rest of their lives and it's never to early to start the " good " relationship. In His service, Dale >He also says that he never wants to go back to Cleveland >again! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 He also says that he never wants to go back to Cleveland >again! I can't say I blame him, poor guy. What a horrible experience! May I ask what the doctors name was that you saw in Cleveland? Janet, mom to Brittany, CVID, age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 ((((hugs))) I am glad Conner is feeling better now!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 >From: pamannmoran@... > >((((hugs))) I am glad Conner is feeling better now!!! Thanks, he is doing much better, but did start running a low fever again. I guess that can be " normal " , but still makes me nervous! Mom to Conner (10, Asperger's, MD, partial seizures, asthma, GERD, and immunodeficiency-CVID), Hayden (10, PDD-NOS, IBS and moderate hearing loss/aided), Evan (10, mild hearing loss/unaided), and Kelsey - surviving triplet (8, hearing - but not listening!) _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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