Re: referral to Infectious disease doctor?

[Guest guest]

Hi Amy! My son sees an ID locally in addition to his immunologist out of

town. She's a great help really. She's great at finding out why he's getting

things and what the infections will respond to and how best to handle them.

She doesn't get real involved with the basic cause of the infections like

the immunolgist does, but is invaluable in the treatment and prevention of

them. Good Luck!

-- referral to Infectious disease doctor?

We called the ENT about his nose being green and thick and he is running a

fever after 3 days post-op. They said the preliminary culture taken from

the sinuses showed a bunch of different bacteria but they were waiting on

the final reports and to keep taking the omnicef. Well today I get a call

from the ENT saying that he doesn't know what else to do for Nick and is

sending him to an infectious disease doctor. The doc we are seeing is the

same one that treated for all his line infections so I really like

him. I am concerned tho, what does that mean? Why couldn't the ENT help

him? Anyone else go to an ID?

Amy, mom to:

, 20 months old. CVID, MSPI, GERD, Asthma.. on Neocate, prevacid,

claritin, flovent, xopenex, and IVIG sub Q every two weeks (Carimune NF)

[Guest guest]

My husband Les (CVID) was initially referred to an ID doc. He had about

three appointments with him before the ID doc admitted that with the PID

being long term that he was better equipped to treat the infections that

were part of having a PID but not the actual PID itself. He told us in

order to be more proactive about living with PID that we should find an

adult Immunologist for Les. We did, but 3 hrs away from our house. After

two appointments there was enough of a treatment plan that Les sees his

family practice doc for most everything and she refers to the immunologist

as needed. It's worked very well.

Ursula Holleman

mom to (11 yrs old) and Macey (9 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

Conner was initially referred to Infectious Disease, we evidentally don't

have too many docs who do immunology around here. Now he sees a

hematologist/immunologist and infectious disease and the ID handles more

acute infection problems. However, our ID guy does treat several CVID kids,

he does their infusions and acts as their immunologist.

Mom to Conner (10, Asperger's, mild CP, partial seizures, asthma, GERD, and

CVID),

Hayden (10, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (10, mild hearing loss/unaided),

and Kelsey - surviving triplet (8, hearing - but not listening!)

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[Guest guest]

-Hi Amy, Buddy had chronic ear infections that our ENT wasn't able to

treat. One day I went into Immunologist and said " here his ears stink

and this infection won't go away " . They cultured his ears and he had

MRSA. We ended up working with the infectious diseases doctor. Buddy

ended up with a PICC line vancomycin and then lenzolid.

Buddy 2 1/2 ED,EC,GERD,GP, and functional antibody deficiency

-- In , " Amy Bolich " <amyjo4181@m...> wrote:

> We called the ENT about his nose being green and thick and he is

running a fever after 3 days post-op. They said the preliminary

culture taken from the sinuses showed a bunch of different bacteria

but they were waiting on the final reports and to keep taking the

omnicef. Well today I get a call from the ENT saying that he doesn't

know what else to do for Nick and is sending him to an infectious

disease doctor. The doc we are seeing is the same one that treated

for all his line infections so I really like him. I am

concerned tho, what does that mean? Why couldn't the ENT help him?

Anyone else go to an ID?

>

> Amy, mom to:

> , 20 months old. CVID, MSPI, GERD, Asthma.. on Neocate,

prevacid, claritin, flovent, xopenex, and IVIG sub Q every two weeks

(Carimune NF)

>

>