Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Care: Unfortunately the results of one test will not tell you everything... think of this as one part of a whole series of answers. That was one of the things that frustrated me so much in the beginning, I wanted all the answers in black and white, I wanted them NOW and I wanted a crystal ball to see how this was all going to turn out. Instead, there are many many tests they do to look at many of the facets of the immune system, and it is a longish road to diagnosis sometimes. I learned the hard way (I could not accept that this was going to take so long and drive me so nuts!!) that the answers come very slowly and sometimes they are clear as mud and just when you adjust to those answers, they seem to change!!! I'm sorry that your son has so many issues. You've come to the right place, here you will find parents who have gone through similar experiences and can relate. One thought as I read your post related to food allergies. My children both get reflux in response to dairy. My youngest is more sensitive and reacts in several ways (face rash, diarrhea, reflux, sometimes hives) and has to avoid it completely. But my oldest only gets reflux as a reaction and only if she's had a lot of dairy recently or if she's had yogurt. If they avoid dairy totally, no reflux at all, ever. My thought is that dairy is in most processed foods, so is your son on a diet that *totally* eliminates dairy in all its hidden forms? My oldest was on Zantac as an infant but had we known it was a dairy reaction (in hindsight it's a no-brainer but the doc didn't make the connections) we could have avoided the meds. Hope that helps -- (mom to , age 5-1/2, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, born 9/19/02, dairy intolerant) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Ok, so I am so new to this. The doc did a tetanus delayed hypersensitivity test on Davin and I had to read the results. I thought that it was huge, but was wrong. The redness around the lump was 16mm but the lump was just under 4 mm. I am told that under 5mm is negative, but what does that mean. Does that mean his immune system is ok with that or not. I can't wait for the doc to tell me, it is driving me insane. I put in a call to them but they won't return it until the end of the day. I am shocked that the redness is so big and the lump is so small. Care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 I am not sure.. had this and he had no reaction to it. I was told that was not normal but they never said anything else about it. Let us know what the doc says.. Amy, mom to , 19 months old. CVID, MSPI, GERD, Asthma.. on Neocate, prevacid, claritin, flovent, xopenex, and IVIG sub Q every two weeks (Carimune NF) Community Host on Parent-2-Parent and Reflux in Children http://www.parent-2-parent.com/forum/index.php<http://www.parent-2-parentcom/for\ um/index.php> measured hypersensitivity skin test and was negative Ok, so I am so new to this. The doc did a tetanus delayed hypersensitivity test on Davin and I had to read the results. I thought that it was huge, but was wrong. The redness around the lump was 16mm but the lump was just under 4 mm. I am told that under 5mm is negative, but what does that mean. Does that mean his immune system is ok with that or not. I can't wait for the doc to tell me, it is driving me insane. I put in a call to them but they won't return it until the end of the day. I am shocked that the redness is so big and the lump is so small. Care This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages<PedP\ ID/messages> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Care: I have gone to mostly made-from-scratch food. It's better nutritionally, cheaper too. Takes more time of course, but not nearly as much as I thought it would. Use the crock pot for time savings, cook in large batches and freeze extra. Should have done this years ago! One idea is if there are grains he can handle, make " pancakes " with whatever other ingredients he tolerates. When my youngest started refusing to eat vegetables, I just chopped them up into pancakes. You make big batches (I was using a rice flour pancake/baking mix from health food section of grocery store) and divide into little bowls, adding different ingredients to each bowl. So one set of pancakes would be chicken/broccoli, one pumpkin/cinnamon, etc. etc. Put in baggies and use a drinking straw to suck out the air in the bag before freezing. Write type of pancake on the bag w/a sharpie. They break apart from each other nicely when frozen so you don't have to defrost a whole bag. Just an idea that worked for us! (mom to , age 5-1/2, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, born 9/19/02, dairy intolerant) Quote Link to comment Share on other sites More sharing options...
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