Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi from a long time lurker. Dayna, my daughter also has a low IgA level (17) and doesn't produce antibodies to polysaccarhide coated antigens. I can tell you that her life has improved dramatically since beginning regular IVIg infusions 5 years ago. Although life is still not normal - for example she was so sick that she missed the whole last couple of weeks of eight grade last year; the dance, graduation, everything - the quality is amazing compared to pre-IVIg. I will warn you that because of her low IgA level she does have some trouble receiving her infusions...but we have worked so that she can receive them over a reasonable amount of time with a reasonable amount of discomfort. It is scarey and overwhelming in the beginning, but this group can make it a lot less so. Belinda, just a quick thought. I noticed that Cassie receives her infusions every 28 days. I know that we can't keep Jess healthy with anything more than every 21 days. Sometimes even that is too long. Have you ever considered having the infusions closer together? Jess is 14 and receives 20g every 21 days. Kim, mom to -selective antibody deficiency Quote Link to comment Share on other sites More sharing options...
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