Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 > Brittany got her first IVIG on Tuesday. It went great. She had a small > headache so the nurse gave her tylonal. She even ate a pot pie while she was sitting > back in her comfortable recliner. Well half of it:) > I was very worried since Britt doesn't have any IGA and I never heard of > Carimune. Are any of you familer with it? > She goes back in 4 weeks to get her second treatment. > > Janet, mom to Brittany, CVID, age 13 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 I never heard of Carimune. Are any of you familer with it? So, since no one replied, I guess no one has heard of carimone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 My son gets Carimune NF, he hasn't done very well with it though, first time he got a rash even with the prophylactic Benedryl, second time he had a seizure. Now for the third time the doc said he will admit him and infuse over 12 hours instead of 4. We go on Thursday June 3rd. Good luck with everything Nickell, son 2yrs old with hypogammaglobulinemia and asthma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 In a message dated 5/31/2004 6:36:47 PM Eastern Daylight Time, FLWN@... writes: Now for the third time the doc said he will admit him and infuse over 12 hours instead of 4. We go on Thursday June 3rd. Thank you for repling . I hope all goes well with your son's next infusion. Keep us posted on how it went. Janet, mom to Brittany, CVID, age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 > > I never heard of > Carimune. Are any of you familer with it? > So, since no one replied, I guess no one has heard of carimone. !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I myself have never heard the name Carimune used concerning IVIG. My son Blake is 12 yrs. old he has been getting IVIG for 5 yrs. as of this month. He has used Gamimmune & Polygam unsuccessfully. He is now getting Gamagard 10%. He gets 10gms. He has been pre-treated with Solucortef, IV benadryl & IV Zantac. He has been on the gamagard for 18 mos. now because he had gotten to where the Polygam would be started on him & just as you think all is gonna go well, he starts reacting. So, we had to take him off this brand(I think this is the Red Cross brand) Gamagard is by Baxter. We have tried Gamimmune & he had an immediate anaphalactic reaction so it was never used again!!! Blake is infused every 2 weeks, he has been for the past 3 yrs. starting this past February. Sorry that I can be of no help to you about this brand. Blake's Immunologist did ask if we had " heard " of the Gammunex. Weh had, but our Hospital says they are having a hard time getting it due to the fact that it will cost $20.00 more per gm. Then the Immuno. said he is not willing to change Blake that quick to begin with, but will keep it an option if need arises & we can't get Gamagard. Take Care & good luck!!! (mom to Blake,12 CVID with Complete T-Cell Dysfunction(IVIG 5 yrs), Severe Asthma, CAPD, Asperger's Syndrome/ADHD/OCD/Major Intersensory Motor skill Delays, GERD(surgery done 11/04/03), Esophageal Dismotility, VERY smart & now in the 6th grade on complete Homebound) Quote Link to comment Share on other sites More sharing options...
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