Re: Please help me understand immune system testing

[Guest guest]

Dawn - giving the the pneumonia vaccine while on IVIG is pointless. IVIG

contains the serotypes that a child would mount to those same bacterias. If

the vaccine is given and in order to get a reliable result to testing the

child must be off IVIG for 3 months. After 3 months all IVIG treatments

will be out of the system and the vaccine will hopefully trigger the body to

make its own antibodies. Then another set of levels are done and these

would show the patients true ability. Not fake numbers brought on by the

infusions being pumped in.

Ursula Holleman

mom to (11 yrs old) and Macey (8 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

The pneumococcal antibody test being poor does show that while her IgG

numbers are normal they may not work right. My husband has that problem

(diagnosis). He does not mount a response to his vaccinations but his IgG

and IgA are normal (IgM is deficient). Since IgG is what produces

antibodies then it stands to reason that if there are no antibodies then the

IgG must be " duds " . Still just as difficult a deficiency to live with.

There is the thought of more extensive t-cell testing. Looking at CD4,CD8

and complement levels. Also look to see if there is a neutrophil problem.

Does your daughter see a pediatric immunologist?

Ursula Holleman

mom to (11 yrs old) and Macey (8 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

[Guest guest]

<<<In , " Ursula Holleman " <uahollem1@c...> wrote:

>

> There is the thought of more extensive t-cell testing. Looking at

CD4,CD8

> and complement levels. Also look to see if there is a neutrophil

problem.

> Does your daughter see a pediatric immunologist?

>

> Ursula Holleman

Ursula,

My daughter does see a pediatric immunologist/allergist. However, she

has only been seeing him briefly during the IVIG infusions. I haven't

scheduled an appointment outside of the IVIG setting at this point. I

feel like I'm still trying to understand her immune deficiency.

Although, I certainly can see firsthand the improvement the IVIG is

giving my daughter for the most part.

Thank you very much for the info about t-cell testing, CD4, CD8,

complement levels and neutrophil problems. It gives me the jumping

off point I needed for more web surfing.

Sandy

Mom to Riley - age 12, selective antibody deficieny, IVIG, asthma

[Guest guest]

<<<In , " Ursula Holleman " <uahollem1@c...> wrote:

>

> There is the thought of more extensive t-cell testing. Looking at

CD4,CD8

> and complement levels. Also look to see if there is a neutrophil

problem.

> Does your daughter see a pediatric immunologist?

>

> Ursula Holleman

Ursula,

My daughter does see a pediatric immunologist/allergist. However, she

has only been seeing him briefly during the IVIG infusions. I haven't

scheduled an appointment outside of the IVIG setting at this point. I

feel like I'm still trying to understand her immune deficiency.

Although, I certainly can see firsthand the improvement the IVIG is

giving my daughter for the most part.

Thank you very much for the info about t-cell testing, CD4, CD8,

complement levels and neutrophil problems. It gives me the jumping

off point I needed for more web surfing.

Sandy

Mom to Riley - age 12, selective antibody deficieny, IVIG, asthma