Guest guest Posted August 21, 2006 Report Posted August 21, 2006 Hi Lorna, I will pencil in quarter markings on the back of your patches... so you can go up or down in dose as needed--- some of the patches are off center so I will FIRST find center then mark from that point.... I would recommend removing the paper on the back so 1/2 is exposed the first day. I don't think he will have much problem with that-- but if he does...put back 1/4 of the paper so only 1/4 is exposed at a time... even back to an 1/8 if necessary. Easy to control the detox symptoms that way. Use tape to make sure it stays on since only part of the patch is exposed. When you put on that SAME patch 2 days later, remove another 1/2 paper off and reattach with flexible clear "hospital type tape" or whatever kind you like...again. If he can tolerate them... long term will yield the best results.. so I'm told. But it's hard to know at this point... we can only hope & pray. You may send it to Sue Thorpe, 1528 E. Colonial Pkwy. Roseville CA 95661 but you don't have to send the check until you receive the patches ... What is YOUR address?? Hope the above is understandable, Sue PS--- Is your 16 yr. old son with DS taking MB12nasal spray, too? ...if not I would go with one thing added at a time... to give each a test.... Have you ever tried the liquid zinc available through Infinity Health at 1-800-733-9293 ? You can spray it on transdermally.... I just replace the cap & put in a sprayer.. works good for my older son... 25 who loves therapeutic brushing with the zinc ... --Since your son reacts to oral zinc. Glutathione Patches Thanks for your reply, Sue. Yes, I would like to take you up on your offer for 3 trial patches/$11.95. I am wondering whether you would rec. starting slowly on the patches with my DS. He is 16 yo, high functioning PDD-NOS & highly sensitive to a lot of the biomed interventions we've tried. Gets nausea & headachey from even fairly low doses of zinc, selenium, methionine, etc. He had testing (hair & blood ) through Pfeiffer Treatment Institute & it seemed like his toxic load was low. (but if it's tissue-bound, how do you know?). So I guess my question is, are unpleasant detox reactions quite common w/the patches. We can prepare him for that. Do some people find energy improvement with the patches? I was slow getting on the biomed intervention bandwagon because it wasn't really a big-time movement back in 1991 when we first noticed the social & play glitches w/my DS (no language or developmental delays, at all). And despite numerous psychology evals over the yrs., did not get a firm spectrum dx until last yr., at a University Clinic. My DS has been GF since age 10, when he was found to have a severe "gluten allergy" -- it's IgE based, and since GF diet cleared up gastro probs that had he'd had since the gitgo, I'm guessing he was even reacting to something in breast milk. He's had 3 separate trials of GF + CF, the longest lasting 6 mos. If anything, for him CF led to worsening of energy/fatigue issues. He does respond very well to a special whey supplement -- it may be something that boosts his glutathione a bit. Yes, his glutathione is very low. On a reference scale of 10 - 200, where you expect healthy young people to score neare the high end, his GSH metabolites are 5. He gets quite ill, bedridden when exposed to chemicals, fresh paint, etc. Fortunately he was born into a family with a health-nut, organic-prone Mom. But the impaired glutathione makes it hard for him to go on extended car rides (gets lasting nausea & headache). We've also reached sort of a teen impasse on oral supplements. Partly because they make him feel sick. But he does take fish oil caps & a good quality multivite w/minerals. He did take more when he was younger, hopefully that did some long-term good. Anyway, so I am looking at other routes, sprays, patches, what else can we do ... He did take CLO when younger & I wish I could convince him to get back on it. We gave it not knowing anything about G-alpha proteins at the time, just as a sensible "mothering" thing to try. DS had a shock reaction to pertussis (series not completed) & has a number of continuing visual issues (not stims, more sensitivities). He was most symptom-free on CLO, but now thinks of it as baby stuff. If you'll please send me your mailing address, I will send you the money for the patches. Any other comments/advice you have would be appreciated. Thanks. Lorna. Quote
Guest guest Posted August 21, 2006 Report Posted August 21, 2006 Hi Lorna, I will pencil in quarter markings on the back of your patches... so you can go up or down in dose as needed--- some of the patches are off center so I will FIRST find center then mark from that point.... I would recommend removing the paper on the back so 1/2 is exposed the first day. I don't think he will have much problem with that-- but if he does...put back 1/4 of the paper so only 1/4 is exposed at a time... even back to an 1/8 if necessary. Easy to control the detox symptoms that way. Use tape to make sure it stays on since only part of the patch is exposed. When you put on that SAME patch 2 days later, remove another 1/2 paper off and reattach with flexible clear "hospital type tape" or whatever kind you like...again. If he can tolerate them... long term will yield the best results.. so I'm told. But it's hard to know at this point... we can only hope & pray. You may send it to Sue Thorpe, 1528 E. Colonial Pkwy. Roseville CA 95661 but you don't have to send the check until you receive the patches ... What is YOUR address?? Hope the above is understandable, Sue PS--- Is your 16 yr. old son with DS taking MB12nasal spray, too? ...if not I would go with one thing added at a time... to give each a test.... Have you ever tried the liquid zinc available through Infinity Health at 1-800-733-9293 ? You can spray it on transdermally.... I just replace the cap & put in a sprayer.. works good for my older son... 25 who loves therapeutic brushing with the zinc ... --Since your son reacts to oral zinc. Glutathione Patches Thanks for your reply, Sue. Yes, I would like to take you up on your offer for 3 trial patches/$11.95. I am wondering whether you would rec. starting slowly on the patches with my DS. He is 16 yo, high functioning PDD-NOS & highly sensitive to a lot of the biomed interventions we've tried. Gets nausea & headachey from even fairly low doses of zinc, selenium, methionine, etc. He had testing (hair & blood ) through Pfeiffer Treatment Institute & it seemed like his toxic load was low. (but if it's tissue-bound, how do you know?). So I guess my question is, are unpleasant detox reactions quite common w/the patches. We can prepare him for that. Do some people find energy improvement with the patches? I was slow getting on the biomed intervention bandwagon because it wasn't really a big-time movement back in 1991 when we first noticed the social & play glitches w/my DS (no language or developmental delays, at all). And despite numerous psychology evals over the yrs., did not get a firm spectrum dx until last yr., at a University Clinic. My DS has been GF since age 10, when he was found to have a severe "gluten allergy" -- it's IgE based, and since GF diet cleared up gastro probs that had he'd had since the gitgo, I'm guessing he was even reacting to something in breast milk. He's had 3 separate trials of GF + CF, the longest lasting 6 mos. If anything, for him CF led to worsening of energy/fatigue issues. He does respond very well to a special whey supplement -- it may be something that boosts his glutathione a bit. Yes, his glutathione is very low. On a reference scale of 10 - 200, where you expect healthy young people to score neare the high end, his GSH metabolites are 5. He gets quite ill, bedridden when exposed to chemicals, fresh paint, etc. Fortunately he was born into a family with a health-nut, organic-prone Mom. But the impaired glutathione makes it hard for him to go on extended car rides (gets lasting nausea & headache). We've also reached sort of a teen impasse on oral supplements. Partly because they make him feel sick. But he does take fish oil caps & a good quality multivite w/minerals. He did take more when he was younger, hopefully that did some long-term good. Anyway, so I am looking at other routes, sprays, patches, what else can we do ... He did take CLO when younger & I wish I could convince him to get back on it. We gave it not knowing anything about G-alpha proteins at the time, just as a sensible "mothering" thing to try. DS had a shock reaction to pertussis (series not completed) & has a number of continuing visual issues (not stims, more sensitivities). He was most symptom-free on CLO, but now thinks of it as baby stuff. If you'll please send me your mailing address, I will send you the money for the patches. Any other comments/advice you have would be appreciated. Thanks. Lorna. Quote
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