Guest guest Posted October 17, 2006 Report Posted October 17, 2006 Well, I heard from the dr. at last, and praise the Lord, it was relatively good news! He said that the biopsy showed mild inflammation, mild fibrosis (1-2) and no significant scarring. Basically, he said that I have plenty of time to decide about treatment, esp. since I have a year's worth of it to look forward to given my 1b geno. I think I will see what new treatments come out in the next 6 months to a year, although my impulse is always to jump right in. There are so many new things in the works, I see from Liz's and other's posts - we should all be buying Roche stock, because they are obviously seeing dollar signs right now with the insidious nature of this virus. The main thing I want to say is this -I am so grateful for the advice I received from Jax, Janet and others to get the biopsy done. I feel very equipped to make decisions now that I know what is going on " in there " ! The dr. says that the inflammation is reversible, but the fibrosis is not, so my game plan right now is to continue the " clean and healthy living plan " to get my liver to try and repair what it can. Oh, yeah, I told the dr. I want copies of my labs and biopsy report and he said " of course, great idea, you should have copies of everything! " . He also apologized for the non-existent bedside manner of his " office girl " who returns the phone calls. It's Dr. Najarian in Irvine, CA, by the way. Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 Actually Vertex is the one to jump in on ....lol There is nothing that is going to be available until 2008 in the way of new meds . There is allot of consensus theory that the earlier you treat the more tolerable it is , and the higher the chances of clearing .Your doc sounds familiar to me , I come from So Cal area . Biopsy -Part Deux Well, I heard from the dr. at last, and praise the Lord, it was relatively good news! He said that the biopsy showed mild inflammation, mild fibrosis (1-2) and no significant scarring. Basically, he said that I have plenty of time to decide about treatment, esp. since I have a year's worth of it to look forward to given my 1b geno.I think I will see what new treatments come out in the next 6 months to a year, although my impulse is always to jump right in. There are so many new things in the works, I see from Liz's and other's posts - we should all be buying Roche stock, because they are obviously seeing dollar signs right now with the insidious nature of this virus.The main thing I want to say is this -I am so grateful for the advice I received from Jax, Janet and others to get the biopsy done. I feel very equipped to make decisions now that I know what is going on "in there"! The dr. says that the inflammation is reversible, but the fibrosis is not, so my game plan right now is to continue the "clean and healthy living plan" to get my liver to try and repair what it can.Oh, yeah, I told the dr. I want copies of my labs and biopsy report and he said "of course, great idea, you should have copies of everything!". He also apologized for the non-existent bedside manner of his "office girl" who returns the phone calls. It's Dr. Najarian in Irvine, CA, by the way. Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 Thanks for that insight; I meet with the dr. again in 2 weeks to talk about whether or not to treat - he is definitely not pushing me in any direction. If it is true that I have more chance of clearing now rather than later then I would not want to wait. Especially if it will be a few years until " better " meds come along. By then, who knows...I may not be in as good a position to a) tolerate treatment and pay for it. Right now I have good health insurance and an understanding employer. I suppose I can try it and if I have a really bad experience I can stop? I see posts from some folks who really appear to be suffering through the tx and some who are sailing through, so I guess there is no way to tell how I will respond til I try. > > Actually Vertex is the one to jump in on ....lol There is nothing that is going to be available until 2008 in the way of new meds . There is allot of consensus theory that the earlier you treat the more tolerable it is , and the higher the chances of clearing .Your doc sounds familiar to me , I come from So Cal area . > Biopsy -Part Deux > > > Well, I heard from the dr. at last, and praise the Lord, it was > relatively good news! He said that the biopsy showed mild > inflammation, mild fibrosis (1-2) and no significant scarring. > Basically, he said that I have plenty of time to decide about > treatment, esp. since I have a year's worth of it to look forward to > given my 1b geno. > > I think I will see what new treatments come out in the next 6 months > to a year, although my impulse is always to jump right in. There are > so many new things in the works, I see from Liz's and other's posts - > we should all be buying Roche stock, because they are obviously > seeing dollar signs right now with the insidious nature of this virus. > > The main thing I want to say is this -I am so grateful for the advice > I received from Jax, Janet and others to get the biopsy done. I feel > very equipped to make decisions now that I know what is going on " in > there " ! The dr. says that the inflammation is reversible, but the > fibrosis is not, so my game plan right now is to continue the " clean > and healthy living plan " to get my liver to try and repair what it > can. > > Oh, yeah, I told the dr. I want copies of my labs and biopsy report > and he said " of course, great idea, you should have copies of > everything! " . He also apologized for the non-existent bedside manner > of his " office girl " who returns the phone calls. It's Dr. Najarian > in Irvine, CA, by the way. > > > Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 Forearmed now, at least something to work with, good! Hang In.. Blessings, Sheena marvindamartian05 <marvindamartian05@...> wrote: Well, I heard from the dr. at last, and praise the Lord, it was relatively good news! He said that the biopsy showed mild inflammation, mild fibrosis (1-2) and no significant scarring. Basically, he said that I have plenty of time to decide about treatment, esp. since I have a year's worth of it to look forward to given my 1b geno.I think I will see what new treatments come out in the next 6 months to a year, although my impulse is always to jump right in. There are so many new things in the works, I see from Liz's and other's posts - we should all be buying Roche stock, because they are obviously seeing dollar signs right now with the insidious nature of this virus.The main thing I want to say is this -I am so grateful for the advice I received from Jax, Janet and others to get the biopsy done. I feel very equipped to make decisions now that I know what is going on "in there"! The dr. says that the inflammation is reversible, but the fibrosis is not, so my game plan right now is to continue the "clean and healthy living plan" to get my liver to try and repair what it can.Oh, yeah, I told the dr. I want copies of my labs and biopsy report and he said "of course, great idea, you should have copies of everything!". He also apologized for the non-existent bedside manner of his "office girl" who returns the phone calls. It's Dr. Najarian in Irvine, CA, by the way. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2ยข/min or less. Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 Hi ,, well I HAD to throw my 2 cents in when I read your post about 'giving it a try and if you have a really bad experience, you can stop"... I HAVE to tell you that you canNOT start tx with THAT attitude honey... IF you start and stop tx, THAT causes the virus to mutate and then you will play hell (sorry janet for swearing but it fits here) trying to kill it. IF you decide to do tx,, YOU have to go at it with the attitude of "come hell or high water, Ill finish" in order to make it through tx... This virus is not one you can mess around with in regards to starting and stopping tx... However,,, you may be one of the lucky ones who does not have a lot of side effects,, and then ,, you might not be so lucky.. what you have to do is to make sure that YOUR doc will treat your side effects... Most gastro's wont write script for sides, they want you to deal with your regular MD.. So what I WOULD do is to speak with your MD and make sure HE WOULD be willing to give you whatever you need in order to be able to finish tx...I would make sure he would be willing to give you pain meds if the body aches get severe,, MINE DID,, and tylenol and advil wouldnt even touch it,,, and if he would give you anti-depressants , actually you should be on them BEFORE you start tx because the Interferon depletes your brain of the seretonin,, and its NOT YOU, its the meds,,, you will probably need sleeping meds also because of the drain of seretonin,, insomnia is awful on tx... you might need other meds too,, its hard to say but I'd MAKE SURE that you MD would cover those for you. I'd also make sure you can get Procrit and Neupogen for your reds and whites if you become anemic,, and almost everyone does... So basically what Im saying is that IF you decide to tx,, YOU have to go at it ALL THE WAY.. even if it means you have to stop working in order to finish the treatment... once you start, you really should NOT stop unless you have a REAL life threatening event or condition that rears its ugly head like Liz did with her heart.. this virus can and does mutate and can figure out how to get around tx if you dont hit it hard enough and long enough... You have minimal damage,, thank God so you have time to really think about this.. make sure your life is in a stable place cuz this treatment really does upset the apple cart... I was so lucky cuz my new hubby was able to take over everything,, I stayed in bed for a year,, HE did all the laundry, ALL the cleaning, ALL the shopping,ALL the cooking and took care of everything else you can think of,,, I became too anemic to drive so he drove me to every doc appt, every lab draw, etc,, Can your spouse and children take care of the house for you,, can they cook for themselves? These are things you must consider... Ok, thats my 2 cents hon,, and IF you do decide to tx,,, Im here for ya,,, ALL the way,,, jaxmarvindamartian05 <marvindamartian05@...> wrote: Thanks for that insight; I meet with the dr. again in 2 weeks to talkabout whether or not to treat - he is definitely not pushing me in anydirection. If it is true that I have more chance of clearing nowrather than later then I would not want to wait. Especially if it willbe a few years until "better" meds come along. By then, who knows...Imay not be in as good a position to a) tolerate treatment and payfor it. Right now I have good health insurance and an understandingemployer. I suppose I can try it and if I have a really bad experienceI can stop? I see posts from some folks who really appear to besuffering through the tx and some who are sailing through, so I guessthere is no way to tell how I will respond til I try.>> Actually Vertex is the one to jump in on ....lol There is nothingthat is going to be available until 2008 in the way of new meds .There is allot of consensus theory that the earlier you treat the moretolerable it is , and the higher the chances of clearing .Your docsounds familiar to me , I come from So Cal area .> Biopsy -Part Deux> > > Well, I heard from the dr. at last, and praise the Lord, it was > relatively good news! He said that the biopsy showed mild > inflammation, mild fibrosis (1-2) and no significant scarring. > Basically, he said that I have plenty of time to decide about > treatment, esp. since I have a year's worth of it to look forward to > given my 1b geno.> > I think I will see what new treatments come out in the next 6 months > to a year, although my impulse is always to jump right in. There are > so many new things in the works, I see from Liz's and other's posts - > we should all be buying Roche stock, because they are obviously > seeing dollar signs right now with the insidious nature of this virus.> > The main thing I want to say is this -I am so grateful for the advice > I received from Jax, Janet and others to get the biopsy done. I feel > very equipped to make decisions now that I know what is going on "in > there"! The dr. says that the inflammation is reversible, but the > fibrosis is not, so my game plan right now is to continue the "clean > and healthy living plan" to get my liver to try and repair what it > can.> > Oh, yeah, I told the dr. I want copies of my labs and biopsy report > and he said "of course, great idea, you should have copies of > everything!". He also apologized for the non-existent bedside manner > of his "office girl" who returns the phone calls. It's Dr. Najarian > in Irvine, CA, by the way.> > >Jackie Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 WAY to go,, thats wonderful news honey,,,, you do have time,,, Cirrhosis is what is supposed to be irreversible,, but you know what? MINE DID,,, its gone and I had "nodules wrapped in fibrous bands consistent with cirrhosis",,, and its all gone!!!!marvindamartian05 <marvindamartian05@...> wrote: Well, I heard from the dr. at last, and praise the Lord, it was relatively good news! He said that the biopsy showed mild inflammation, mild fibrosis (1-2) and no significant scarring. Basically, he said that I have plenty of time to decide about treatment, esp. since I have a year's worth of it to look forward to given my 1b geno.I think I will see what new treatments come out in the next 6 months to a year, although my impulse is always to jump right in. There are so many new things in the works, I see from Liz's and other's posts - we should all be buying Roche stock, because they are obviously seeing dollar signs right now with the insidious nature of this virus.The main thing I want to say is this -I am so grateful for the advice I received from Jax, Janet and others to get the biopsy done. I feel very equipped to make decisions now that I know what is going on "in there"! The dr. says that the inflammation is reversible, but the fibrosis is not, so my game plan right now is to continue the "clean and healthy living plan" to get my liver to try and repair what it can.Oh, yeah, I told the dr. I want copies of my labs and biopsy report and he said "of course, great idea, you should have copies of everything!". He also apologized for the non-existent bedside manner of his "office girl" who returns the phone calls. It's Dr. Najarian in Irvine, CA, by the way.Jackie Quote
Guest guest Posted October 17, 2006 Report Posted October 17, 2006 That's true , each person tolerates treatment differently so you never know how its gonna work for you until you try . And yes once your on treatment if you get so sick that you just can't handle it physically then you can stop . Treatment is a personal decision we each have to make for ourselves , so don't rush into treating or not treating until you get as much information as you need to make the right choice for you . In 2008 the capsase/protease inhibitors will be available but they are used in conjunction with interferon type of drugs and rebatol. Biopsy -Part Deux> > > Well, I heard from the dr. at last, and praise the Lord, it was > relatively good news! He said that the biopsy showed mild > inflammation, mild fibrosis (1-2) and no significant scarring. > Basically, he said that I have plenty of time to decide about > treatment, esp. since I have a year's worth of it to look forward to > given my 1b geno.> > I think I will see what new treatments come out in the next 6 months > to a year, although my impulse is always to jump right in. There are > so many new things in the works, I see from Liz's and other's posts - > we should all be buying Roche stock, because they are obviously > seeing dollar signs right now with the insidious nature of this virus.> > The main thing I want to say is this -I am so grateful for the advice > I received from Jax, Janet and others to get the biopsy done. I feel > very equipped to make decisions now that I know what is going on "in > there"! The dr. says that the inflammation is reversible, but the > fibrosis is not, so my game plan right now is to continue the "clean > and healthy living plan" to get my liver to try and repair what it > can.> > Oh, yeah, I told the dr. I want copies of my labs and biopsy report > and he said "of course, great idea, you should have copies of > everything!". He also apologized for the non-existent bedside manner > of his "office girl" who returns the phone calls. It's Dr. Najarian > in Irvine, CA, by the way.> > > Quote
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