Re: Re: OT; more bethanechol; gave my son speech

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Hi I am beginning to feel guilty that I am taking up too much list space. I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all. For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that

works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing. I can let you know when the bottle arrives what the dose is. As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either. I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond. Veraarvinseroj <arvinseroj@...> wrote: >> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime

incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan > Recent Activity 18 New Members 1 New FilesVisit Your Group

[Guest guest]

Hi I am beginning to feel guilty that I am taking up too much list space. I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all. For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that

works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing. I can let you know when the bottle arrives what the dose is. As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either. I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond. Veraarvinseroj <arvinseroj@...> wrote: >> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime

incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan > Recent Activity 18 New Members 1 New FilesVisit Your Group

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vera, why is your compounded. we just got it from the pharmacy in pill form and will start it in doctor's office next week. MaurineVera <sircarlito@...> wrote: Hi I am beginning to feel guilty that I am taking up too much list space. I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have

the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all. For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing. I can let you know when the bottle arrives what the dose is. As far as "bethanechol gave my son

speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either. I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond. Veraarvinseroj <arvinseroj > wrote: >> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan > Recent Activity 18 New Members 1 New FilesVisit Your Group

[Guest guest]

vera, why is your compounded. we just got it from the pharmacy in pill form and will start it in doctor's office next week. MaurineVera <sircarlito@...> wrote: Hi I am beginning to feel guilty that I am taking up too much list space. I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have

the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all. For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing. I can let you know when the bottle arrives what the dose is. As far as "bethanechol gave my son

speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either. I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond. Veraarvinseroj <arvinseroj > wrote: >> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan > Recent Activity 18 New Members 1 New FilesVisit Your Group

[Guest guest]

My son is also with Megson, we saw huge speech improvements with bethanecol in two days. She orders it from Wellness health phamaceutical in Alabama (800) 227-2627, and the doses is .25ML Twice daily.

Mané

Re: Re: OT; more bethanechol; "gave my son speech"

Hi

I am beginning to feel guilty that I am taking up too much list space.

I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all.

For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing.

I can let you know when the bottle arrives what the dose is.

As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either.

I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond.

Vera

arvinseroj <arvinseroj > wrote:

>

> "The bethanachol gave us speech". We had bethanacol rx's for

different reasons, and it didn't "work" (nighttime incontinence) but

I wonder if you will tell me about how much B. you gave and got

SPEECH. Interested,-------------Nan

>

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[Guest guest]

My son is also with Megson, we saw huge speech improvements with bethanecol in two days. She orders it from Wellness health phamaceutical in Alabama (800) 227-2627, and the doses is .25ML Twice daily.

Mané

Re: Re: OT; more bethanechol; "gave my son speech"

Hi

I am beginning to feel guilty that I am taking up too much list space.

I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all.

For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing.

I can let you know when the bottle arrives what the dose is.

As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either.

I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond.

Vera

arvinseroj <arvinseroj > wrote:

>

> "The bethanachol gave us speech". We had bethanacol rx's for

different reasons, and it didn't "work" (nighttime incontinence) but

I wonder if you will tell me about how much B. you gave and got

SPEECH. Interested,-------------Nan

>

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[Guest guest]

Hi Vera,

Thanks so much for your posts. Because of your information I feel my daughter may benefit from bethanechol. I truly appreciate all the info. I will let you know the outcome when we start in a few months. Keep on posting. Congratulations on all the success with your son.

-------------- Original message from Vera <sircarlito@...>: --------------

Hi

I am beginning to feel guilty that I am taking up too much list space.

I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all.

For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing.

I can let you know when the bottle arrives what the dose is.

As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either.

I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond.

Veraarvinseroj <arvinseroj > wrote:

>> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan >

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[Guest guest]

Hi Vera,

Thanks so much for your posts. Because of your information I feel my daughter may benefit from bethanechol. I truly appreciate all the info. I will let you know the outcome when we start in a few months. Keep on posting. Congratulations on all the success with your son.

-------------- Original message from Vera <sircarlito@...>: --------------

Hi

I am beginning to feel guilty that I am taking up too much list space.

I have heard that only 1 in 8 kids respond to bethanechol, and it probably means that those 1 in 8 kids actually sustained damage to the retinoid receptors. If you did not have the bethanechol compounded by an experienced ASD pharmacy, that might make a difference in terms of tolerance and effectiveness. It might be worth another shot (IMO) to try again but compounded. From CK2 over the last year, I have found that most kids respond in the first few weeks or not at all.

For dosing, I do not have the current bottle -- we get a refill tomorrow or the next day. I can let you know but it is the standard Megson protocol. I have posted it before and will try to look it up tomorrow. The first doctor who phoned it in called one of the national pharmacies that works with our kids and has done a lot of compounding for Dr. Megson. I believe he also contacted her office. The pharmacy helped with the dosing.

I can let you know when the bottle arrives what the dose is.

As far as "bethanechol gave my son speech", the basic story is that my son was in intense sensory/speech/OT therapy starting around age 2. By 3.5 he really did not have any words -- just jibberish. It was not apraxia -- just jibberish. We started bethanechol, and right away he seemed more aware and stopped doing some of the odd visual behaviors. By the end of the second week, he was starting to say real words. It took a year, but he finally lost the vocabulary delay but still had a 50% expressive communication and receptive language delay. That is when we started B12. Technically, his speech is no longer delayed, but it is not normal either.

I hope that helps, but like I said, if it was not compounded the first time, it might be worth another shot. But the majority of kids do not respond.

Veraarvinseroj <arvinseroj > wrote:

>> "The bethanachol gave us speech". We had bethanacol rx's for different reasons, and it didn't "work" (nighttime incontinence) but I wonder if you will tell me about how much B. you gave and got SPEECH. Interested,-------------Nan >

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