Robin..personal

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Good Morning Robin Well it certainly does sound and look like you are doing things right! Im glad to hear you are doing your Riba with some fat as that helps it to work better. Listen hon, IF watermelon, hot soup and eggs are what look and taste ok, then eat THAT. The fruit is really good and when your mouth is sore, is easy to eat whereas a more citrusy fruit would burn. Eggs are PERFECT protein and unless your liver is decompensated, YOU really do need the protein.. Protein shakes are really good for getting it down, just make sure that the one you are using has NO IRON in it or very very low iron.Also if you are taking vit C, make sure not to take it at the same time as the protein shake if the shake has added iron as vit C will help with the absorption of iron and that you dont want. I remember just how everything looked and smelled right but very little tasted right, everything has a sort of metally taste.. but the nausea will

most definately be easier if you do get enough nutrition.. you can take a multivit as long as it doesnt have iron in it,, I know many who take Centrum Silver because it doesnt have the iron. It does look like you are getting plenty of hydration but you might want to add some electrolyte solution to make sure that you are not washing them away. I used a product called LowOz and Liz uses gatoraid but you could use pedialyte as well. I still have trouble eating more than 2 or 3 small meals and typically I end up with one or two.. I'm 3 1/2 years post tx and still cannot manage much food. Its pretty frustrating because Im still overweight but it IS coming off..... slowly.. Has the Antivert helped? The dizziness is really common on treatment but I hated it myself. I ALWAYS felt woozie and light headed especially if I got up too fast. So you should really take it easy when going from laying to sitting or standing. Get up really slowly

so that your body can adjust your blood pressure so you dont pass out and fall or hurt yourself.. Well, it really looks like you ARE doing everything right. The best piece of advice I can give you is to tell you that this treatment while very difficult IS DOABLE. But..and there is always a but, YOU HAVE to pace yourself. Listen to your body, if you need to rest, then rest, if you need to sleep, then sleep, eat when you can, keep going with the fluids and try to keep a positive attitude ( you have that already).. and REMEMBER,, THIS treatment is NOT FOREVER.. What I did was to buy a stuffed animal that was a dragon and EVERY week, when I did my shot, I stuck a hatpin in the dragon. When I started the procrit and neupogen, I stuck it with hatpins with EVERY shot. It was MY way to visualize the progress I was making as I saw the stack of un-used pins growing smaller and smaller and watching the dragon filling up with pins. EVERY time I

stuck a pin in it,, I visualized the virus dying.. My granddaughter wanted my dragon so when I was done, I pulled all the pins out and she still has it in her toybox! Well, stay with us hon, ALL of us here want YOU TO SUCCEED.. We will help you in any way we can.. You are doing GREAT!!!!! Hang in there and remember that we are only an email away.. hugs jaxadoptbc <adoptbc@...> wrote: Jackie,The PCP felt it might be Benign Positioning Vertigo or Meniere's Disease; he gave me

Antivert. So far, I have the green light to continue with tx---I absolutely do NOT want to stop treatment.I know I'm not getting enough sleep or protein. I'm drinking a gallon of water a day, plus some low-sugar cranberry juice. I'm trying to eat 4-5x a day, small meals, but on my worst days, have only managed 3x. I need to eat more vegetables.I'm taking my pills with peanut butter & crackers or pb on toast. I'm generally eating 2-3 servings of fruit, 1-2 servings of bread, 2 servings of veggies, 1 serving of chicken, some egg whites and cereal with low-fat milk. My taste has changed a lot and nothing except watermelon, hot soup & eggs look good to me right now.This morning, I'm drinking a protein shake and plan to do that in the a.m. and p.m. to combat this exhaustion. Tonight is my 2nd shot.Suggestions, Jackie? Robin> > about my side effects.> > > > I'm not anemic, but my dizziness is constant and extreme, as well > as > > my fatigue. I wrote down how I've been feeling and what little > I've > > been doing.> > > > He's a great doctor/really listens to me. His exact quote was "I'm > > concerned that you were dizzy and fatigued before the treatment > > started and now it's much worse---it could be an underlying > > neurological problem . .>

> Dr. S. noticed some nystagmus when doing the eye test with me--> > perhaps it's vertigo or an inner ear problem.> > > > He called my PCP and I'm leaving soon to catch her last appt. Dr. > > Shehab said he's 75% sure he'll be telling me tomorrow to > > temporarily > > stop treatment (depending on what my primary says about additional > > tests).> > > > Dr. Shehab said that stopping tx now temporarily would be much > > better > > than toughing it out and having to stop for good partway through. > > If > > I feel much better after 3-4 days of not treating, then we'll know > > it > > was the treatment and adjust accordingly. He also acknowledged > that > > he knows it's not my depression and said my attitude is very > > positive.> > > > More prayers, please . .

..this was tough to hear.> > > > Robin> > > > > > > > > > > > > > Jackie> >> > > > > > > Jackie>Jackie