Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 cumanda is supposed to work well for lymes (google "what is cumanda?") vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 cumanda is supposed to work well for lymes (google "what is cumanda?") vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Hi: I am a new member and stumbled across this group recently. I have 3 (older, actually now young adult) kids - one with PDD/autism (and High HHV-6 titers, maybe congenital lyme) and 2 daughters with lyme (formerly thought CFDIS and PANDAS). Before I knew about their lyme, I did research and came up with Dr. Goldberg's use of Valtrex for autism and CFIDS. My DAN doctor was kind enough to let them try it. This was the first time he had ever tried any approach like this. My son had great results with better socialization and overall better health. My daughter with neuro- lyme had longer periods of stabilization, and overall less anxiety. They are no longer on it because when I stopped it after a couple of years I didn't see any regression, and we moved onto basic lyme treatments. However, my one daughter has continued on it. My DAN doctor recently called to tell me to catch up on all the research that has come out on Valtrex - wow! I had no idea it had caught on in the autism community. I switched my son to Transfer Factor and he seemed to do well on that, but it may be time to revisit Valtrex. I am hoping to get great results with the Nasal Methylcobalamin, and my lyme doctor seems amenable to it. Anyway, I just wanted to encourage anyone thinking about trying the Valtrex. It really worked for our family. Carmel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Thanks for the cumanda tip. I'll look it up. Carmel --- vickila1@... wrote: > cumanda is supposed to work well for lymes (google > " what is cumanda? " ) > > vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Thanks for the cumanda tip. I'll look it up. Carmel --- vickila1@... wrote: > cumanda is supposed to work well for lymes (google > " what is cumanda? " ) > > vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Carmel, Thank you so much for this news. When I initially posted about my 10 year old son I did not mention that he also has lyme. He is already on antibiotics. So you gave your son antibiotics and valtrex at the same time? Your son's socialization improved. That's great. How old is your son? Is he close to recovery? Valtrex benefits > >Hi: > >I am a new member and stumbled across this group recently. I have 3 >(older, actually now young adult) kids - one with PDD/autism (and >High HHV-6 titers, maybe congenital lyme) and 2 daughters with lyme >(formerly thought CFDIS and PANDAS). > >Before I knew about their lyme, I did research and came up with Dr. >Goldberg's use of Valtrex for autism and CFIDS. My DAN doctor was >kind enough to let them try it. This was the first time he had ever >tried any approach like this. My son had great results with better >socialization and overall better health. My daughter with neuro- >lyme had longer periods of stabilization, and overall less anxiety. > >They are no longer on it because when I stopped it after a couple of >years I didn't see any regression, and we moved onto basic lyme >treatments. However, my one daughter has continued on it. My DAN >doctor recently called to tell me to catch up on all the research >that has come out on Valtrex - wow! I had no idea it had caught on >in the autism community. > >I switched my son to Transfer Factor and he seemed to do well on >that, but it may be time to revisit Valtrex. I am hoping to get >great results with the Nasal Methylcobalamin, and my lyme doctor >seems amenable to it. > >Anyway, I just wanted to encourage anyone thinking about trying the >Valtrex. It really worked for our family. > >Carmel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Carmel, Thank you so much for this news. When I initially posted about my 10 year old son I did not mention that he also has lyme. He is already on antibiotics. So you gave your son antibiotics and valtrex at the same time? Your son's socialization improved. That's great. How old is your son? Is he close to recovery? Valtrex benefits > >Hi: > >I am a new member and stumbled across this group recently. I have 3 >(older, actually now young adult) kids - one with PDD/autism (and >High HHV-6 titers, maybe congenital lyme) and 2 daughters with lyme >(formerly thought CFDIS and PANDAS). > >Before I knew about their lyme, I did research and came up with Dr. >Goldberg's use of Valtrex for autism and CFIDS. My DAN doctor was >kind enough to let them try it. This was the first time he had ever >tried any approach like this. My son had great results with better >socialization and overall better health. My daughter with neuro- >lyme had longer periods of stabilization, and overall less anxiety. > >They are no longer on it because when I stopped it after a couple of >years I didn't see any regression, and we moved onto basic lyme >treatments. However, my one daughter has continued on it. My DAN >doctor recently called to tell me to catch up on all the research >that has come out on Valtrex - wow! I had no idea it had caught on >in the autism community. > >I switched my son to Transfer Factor and he seemed to do well on >that, but it may be time to revisit Valtrex. I am hoping to get >great results with the Nasal Methylcobalamin, and my lyme doctor >seems amenable to it. > >Anyway, I just wanted to encourage anyone thinking about trying the >Valtrex. It really worked for our family. > >Carmel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Carmel: How did you go about testing for lyme, lab, doctor? I have heard that regular labs aren’t as able to pick it up….Were there certain symptoms that made you wonder whether lyme was indicated? Valtrex benefits Hi: I am a new member and stumbled across this group recently. I have 3 (older, actually now young adult) kids - one with PDD/autism (and High HHV-6 titers, maybe congenital lyme) and 2 daughters with lyme (formerly thought CFDIS and PANDAS). Before I knew about their lyme, I did research and came up with Dr. Goldberg's use of Valtrex for autism and CFIDS. My DAN doctor was kind enough to let them try it. This was the first time he had ever tried any approach like this. My son had great results with better socialization and overall better health. My daughter with neuro- lyme had longer periods of stabilization, and overall less anxiety. They are no longer on it because when I stopped it after a couple of years I didn't see any regression, and we moved onto basic lyme treatments. However, my one daughter has continued on it. My DAN doctor recently called to tell me to catch up on all the research that has come out on Valtrex - wow! I had no idea it had caught on in the autism community. I switched my son to Transfer Factor and he seemed to do well on that, but it may be time to revisit Valtrex. I am hoping to get great results with the Nasal Methylcobalamin, and my lyme doctor seems amenable to it. Anyway, I just wanted to encourage anyone thinking about trying the Valtrex. It really worked for our family. Carmel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Carmel: How did you go about testing for lyme, lab, doctor? I have heard that regular labs aren’t as able to pick it up….Were there certain symptoms that made you wonder whether lyme was indicated? Valtrex benefits Hi: I am a new member and stumbled across this group recently. I have 3 (older, actually now young adult) kids - one with PDD/autism (and High HHV-6 titers, maybe congenital lyme) and 2 daughters with lyme (formerly thought CFDIS and PANDAS). Before I knew about their lyme, I did research and came up with Dr. Goldberg's use of Valtrex for autism and CFIDS. My DAN doctor was kind enough to let them try it. This was the first time he had ever tried any approach like this. My son had great results with better socialization and overall better health. My daughter with neuro- lyme had longer periods of stabilization, and overall less anxiety. They are no longer on it because when I stopped it after a couple of years I didn't see any regression, and we moved onto basic lyme treatments. However, my one daughter has continued on it. My DAN doctor recently called to tell me to catch up on all the research that has come out on Valtrex - wow! I had no idea it had caught on in the autism community. I switched my son to Transfer Factor and he seemed to do well on that, but it may be time to revisit Valtrex. I am hoping to get great results with the Nasal Methylcobalamin, and my lyme doctor seems amenable to it. Anyway, I just wanted to encourage anyone thinking about trying the Valtrex. It really worked for our family. Carmel Quote Link to comment Share on other sites More sharing options...
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