Re: Not sure if Valtrex is working for us Thoughts??

[Guest guest]

> He has been perseverative on phrases or books, verbal stimming BIG

> TIME, echolalia at its all time worst, he was getting so good at

> responding to questions the first time you asked him, now you can ask

> 100 times and he looks right through you, what little eye contact he

> had is gone, and he seems to spend more time inward than out. All

> these are things we had gotten rid of in the last 8 months since we

> started biomed and thought we were really gaining ground. Its like

> the fog we lifted with MB12 has come back but worse. He's jumping and

> climbing and running across furniture with no regard to danger or us

> yelling at him. If we grab him and take him down he goes right back

> up.

>

All these were yeast symptoms for my son.

The running/climbing could come from food/supplement intolerance too.

[Guest guest]

> He has been perseverative on phrases or books, verbal stimming BIG

> TIME, echolalia at its all time worst, he was getting so good at

> responding to questions the first time you asked him, now you can ask

> 100 times and he looks right through you, what little eye contact he

> had is gone, and he seems to spend more time inward than out. All

> these are things we had gotten rid of in the last 8 months since we

> started biomed and thought we were really gaining ground. Its like

> the fog we lifted with MB12 has come back but worse. He's jumping and

> climbing and running across furniture with no regard to danger or us

> yelling at him. If we grab him and take him down he goes right back

> up.

>

All these were yeast symptoms for my son.

The running/climbing could come from food/supplement intolerance too.

[Guest guest]

Hi Patty

Your son's reaction sounds a lot like my guy's. We have had a runny nose but no cough or rash. And the behavior is the same as you describe. My husband made the comment the other day that it's like we're right back where we were a year ago.

I'm taking it as a good sign. My son has said 3 long sentences today totally umprompted and they were relevant. His behavior is getting a little better. So....IMO I think it is working....hang in there.

[Guest guest]

Hi Patty

Your son's reaction sounds a lot like my guy's. We have had a runny nose but no cough or rash. And the behavior is the same as you describe. My husband made the comment the other day that it's like we're right back where we were a year ago.

I'm taking it as a good sign. My son has said 3 long sentences today totally umprompted and they were relevant. His behavior is getting a little better. So....IMO I think it is working....hang in there.

[Guest guest]

See if upping his methyl donors helps.

Gayatri

>

> My son is 4.6. We started Valtrex and took 250mg 2x a day for one

> week then went up to 250mg 3x a week. It has been 38 days since

he's

> been on that full dose.

>

> No runny nose, cough, fever, rash nothing like that at all at any

> point since we started.

>

> Just in the last week or so my son has gone downhill. Normally he

has

> gains ,plateaus, regresses a bit, plateaus, then we see gains

again.

> We were not really due for this regression.

>

> He has been perseverative on phrases or books, verbal stimming BIG

> TIME, echolalia at its all time worst, he was getting so good at

> responding to questions the first time you asked him, now you can

ask

> 100 times and he looks right through you, what little eye contact

he

> had is gone, and he seems to spend more time inward than out. All

> these are things we had gotten rid of in the last 8 months since

we

> started biomed and thought we were really gaining ground. Its like

> the fog we lifted with MB12 has come back but worse. He's jumping

and

> climbing and running across furniture with no regard to danger or

us

> yelling at him. If we grab him and take him down he goes right

back

> up.

>

> He is also taking Diflucan and we have a yeast protocol in place

that

> has always worked well for us. We really haven't had yeast issues

in

> a while and infact things were at their best recently

>

> The only other thing I noticed was yesterday and today he had 3

> really bad BMs, so bad that he has a bit of a diaper rash now.

>

>

> Can this be the healing regression I hear about or does it sound

like

> something else? Are these the regressions others have seen? From

> what I have read on other posts it just seems to me that most

people

> saw changes/regression sooner than 38 days. How much longer

should I

> go on with the Valtrex? I'm just so sick over this because he is

> worse off now than he was a year ago. I feel like I got hit by a

> truck and am so afraid we'll never get those gains back.

>

> Patty

>

[Guest guest]

See if upping his methyl donors helps.

Gayatri

>

> My son is 4.6. We started Valtrex and took 250mg 2x a day for one

> week then went up to 250mg 3x a week. It has been 38 days since

he's

> been on that full dose.

>

> No runny nose, cough, fever, rash nothing like that at all at any

> point since we started.

>

> Just in the last week or so my son has gone downhill. Normally he

has

> gains ,plateaus, regresses a bit, plateaus, then we see gains

again.

> We were not really due for this regression.

>

> He has been perseverative on phrases or books, verbal stimming BIG

> TIME, echolalia at its all time worst, he was getting so good at

> responding to questions the first time you asked him, now you can

ask

> 100 times and he looks right through you, what little eye contact

he

> had is gone, and he seems to spend more time inward than out. All

> these are things we had gotten rid of in the last 8 months since

we

> started biomed and thought we were really gaining ground. Its like

> the fog we lifted with MB12 has come back but worse. He's jumping

and

> climbing and running across furniture with no regard to danger or

us

> yelling at him. If we grab him and take him down he goes right

back

> up.

>

> He is also taking Diflucan and we have a yeast protocol in place

that

> has always worked well for us. We really haven't had yeast issues

in

> a while and infact things were at their best recently

>

> The only other thing I noticed was yesterday and today he had 3

> really bad BMs, so bad that he has a bit of a diaper rash now.

>

>

> Can this be the healing regression I hear about or does it sound

like

> something else? Are these the regressions others have seen? From

> what I have read on other posts it just seems to me that most

people

> saw changes/regression sooner than 38 days. How much longer

should I

> go on with the Valtrex? I'm just so sick over this because he is

> worse off now than he was a year ago. I feel like I got hit by a

> truck and am so afraid we'll never get those gains back.

>

> Patty

>

[Guest guest]

Thanks. I'll increase our yeast protocol and see if that helps.

Patty

>> >

>

> All these were yeast symptoms for my son.

>

> The running/climbing could come from food/supplement intolerance too.

>

>

>

[Guest guest]

Thanks. I'll increase our yeast protocol and see if that helps.

Patty

>> >

>

> All these were yeast symptoms for my son.

>

> The running/climbing could come from food/supplement intolerance too.

>

>

>

[Guest guest]

He gets MB12 shots daily and MB12 nasal spray daily as well. Could he

really need more?

Kerrie

>

> See if upping his methyl donors helps.

>

> Gayatri

>

[Guest guest]

He gets MB12 shots daily and MB12 nasal spray daily as well. Could he

really need more?

Kerrie

>

> See if upping his methyl donors helps.

>

> Gayatri

>

[Guest guest]

Hard to tell Kerrie. We do homeopathy and for my son when he

regressed like you describe, I stopped our homeopathic treatment for

the measles and alternated with another homeopathic remedy (very

individual) that helps with his immune system/ methylation.

Yasko - I am new to her - uses a bunch of methylation supports. Some

that come to mind are alternate sources of B-12 (intrinsic and

hydroxy and cyanacobalamin if your child cannot tolerate too many

methyl donors), methionine or SAMe (depending on genetics),

phosphatidyl serine or choline, some form of folate, some BH4

support. The list is endless and its very hard to tell what to use.

She has a protocol based on genetics and an order to follow but if

you are not doing her protocol it might help to add some methyl

donors conservatively - too much can overload the system very fast.

See also if some immune supports can help. To read more see

www.autismanswer.com.

Sorry I can't be of more help, it was an thought based on personal

observation. You might very well just climb out of it on your own

with no change at all. Good luck.

Gayatri

> >

> > See if upping his methyl donors helps.

> >

> > Gayatri

> >

>

[Guest guest]

Hard to tell Kerrie. We do homeopathy and for my son when he

regressed like you describe, I stopped our homeopathic treatment for

the measles and alternated with another homeopathic remedy (very

individual) that helps with his immune system/ methylation.

Yasko - I am new to her - uses a bunch of methylation supports. Some

that come to mind are alternate sources of B-12 (intrinsic and

hydroxy and cyanacobalamin if your child cannot tolerate too many

methyl donors), methionine or SAMe (depending on genetics),

phosphatidyl serine or choline, some form of folate, some BH4

support. The list is endless and its very hard to tell what to use.

She has a protocol based on genetics and an order to follow but if

you are not doing her protocol it might help to add some methyl

donors conservatively - too much can overload the system very fast.

See also if some immune supports can help. To read more see

www.autismanswer.com.

Sorry I can't be of more help, it was an thought based on personal

observation. You might very well just climb out of it on your own

with no change at all. Good luck.

Gayatri

> >

> > See if upping his methyl donors helps.

> >

> > Gayatri

> >

>