Re: My lab work came back , and its not good

[Guest guest]

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

[Guest guest]

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

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Thanks . My options at this point are only transplantation , and even then the new liver would become rapidly infected . And I can no longer treat with interferon drugs or riba , and herbal meds and me dont mix

Re: My lab work came back , and its not good

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me.

If love from your friends and family were enough to heal you, you would be well.

WE love you Liz!

Jackie on <redjaxjm@...> wrote:

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep..

I love you

meelizabethnv1 <elizabethnv1@...> wrote:

Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

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[Guest guest]

Boy! THATS the truth,, if love to cure her,, she would be cured cuz there is so many of us who love her,, Hunter <us2china2@...> wrote: Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for

all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low rates. Jackie

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When is your birthday Liz? I have the funniest feeling you are getting good news for your birthday? elizabethnv1 <elizabethnv1@...> wrote: Thanks . My options at this point are only transplantation , and even then the new liver would become rapidly infected . And I can no longer treat with interferon drugs or riba , and herbal meds and me dont mix Re: My lab work came back , and its not good Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low

rates.

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[Guest guest]

My bday is July 29th

Re: My lab work came back , and its not good

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me.

If love from your friends and family were enough to heal you, you would be well.

WE love you Liz!

Jackie on <redjaxjm@...> wrote:

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep..

I love you

meelizabethnv1 <elizabethnv1@...> wrote:

Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

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Should be an early birthday present then. In my experience Leo's rock! Not at all prone to depression... and yet you say things like you have no hope for an effective treatment... I believe there is a small rodent coming to remove a thorn from your paw... :)elizabethnv1 <elizabethnv1@...> wrote: My bday is July 29th Re: My lab work came back , and its not good Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go

looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again

.. So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low rates. New Messenger with Voice. Call regular phones from your PC and save big.

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Haha I suffer from no depression ......just a realist attitude . I was diagnosed back in the early 80's and have rapidly progressed to liver failure , I treated for 15months with interferon monotherapy . That gave my liver some time to try to heal , but the last 3 times I have treated it did nothing but make my liver worse and now my heart has been effected . I have had the years to understand this disease and the treatments available and also time to come to terms with what can happen if it isnt brought under control . I know you have hope that the new AVI medication will help me , but I believe my virus is replicating in body elsewhere now . I of course will try and treat with any new meds that become available and I keep a positive attitude , but of course I already know that I have less than a 15% chance of ever clearing . I lost my 27 yr old brother to liver failure on Christmas day years ago , I think my family genetics are playing a strong role in how I respond , LOL

Re: My lab work came back , and its not good

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me.

If love from your friends and family were enough to heal you, you would be well.

WE love you Liz!

Jackie on <redjaxjm@...> wrote:

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep..

I love you

meelizabethnv1 <elizabethnv1@...> wrote:

Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

New Messenger with Voice. Call regular phones from your PC for low, low rates.

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Liz, enough is enough. Please talk to your doctor and ask them to contact AVI. Your doctor may be able to get this for you via a backdoor. The FDA allows for "Compassionate Use" exemptions. All you need do is get your doctor to tell the FDA that this is your best chance for survival, and you might get AVI's drug now. Please just do it! The company has saved primates from the ebola virus using a similar technology. Ebola is 100% fatal in primates. (What do HCV and Ebola have in common? They are both single stranded RNA virus.) The HCV drug has a synthetic backbone that previous anti-sense technology lacked. This lets the drug enter and remain in the body without the body's natural immuno response. And because the drug is genetically designed to only interact with the HCV RNA, there are no side effects. Try this please. The following is an email the company sent me just

before I turned up undetectable. I was on the verge of trying this myself. "As you might expect, we've received a tremendous number of calls from HCV patients looking to enter the upcoming patient treatment portion of the clinical trial with AVI-4065. When we receive such calls, all we can do is turn them over to the primary clinical site in Palo Alto, suggesting that they call and seek to sign up, since it is the clinical site in any of our trials that enrolls patients, not us. They can also look up the particulars of the trial by logging onto www.clinicaltrials.gov and typing in AVI BioPharma But I understand, from your e-mail, your situation, given the distance, expenses and other. And while I'm not part of the Clinical Development group here at AVI, I can only suggest that your physician might want to call

here and enquire as the possibility of an emergency IND, commonly called "compassionate use". This, in no way, is any assurance that such a path is possible or viable. But I'm a strong believer that life has options; and if there is any avenue we can seek, any that can provide at least hope, then we'll do what we can--and allowed to--to help, I'm certain. For your physician's knowledge, and in regard to the clinical site for the next stage of treatment, the contacts are Bratcher, R.N., and Jude , R.N. at 650.493.5000. For queries--which must come from your physician--for access to our drug under an emergency IND, which use must be reviewed and approved by the FDA--I suggest you call Hollemon, R.N or , R.N., here at AVI BioPharma: 503.227.0554. Again, there are no promises or assurances that such requests can be honored. But at least it's worth a try. In the

meantime, and in addition to logging onto our website: www.avibio.com, for updates, if you have any requests for updates or other that I can provide, please let us know. In the meantime, our kindest regards and wishes for additional success in treating your disease. Best wishes, C. Hubbard" I never had my doctor make the call, it turned out that I didn't need to. But maybe I was given this information so that I could help you by passing it to you. If this is a test of my faith, I think I just passed. This could also be a test of your faith. All my love and best wishes Liz! Chriselizabethnv1 <elizabethnv1@...> wrote: Haha I suffer from no depression ......just a realist attitude . I was diagnosed back in the early 80's and have rapidly progressed to liver failure , I treated for 15months with interferon monotherapy . That gave my liver some time to try to heal , but the last 3 times I have treated it did nothing but make my liver worse and now my heart has been effected . I have had the years to understand this disease and the treatments available and also time to come to terms with what can happen if it isnt brought under control . I know you have hope that the new AVI medication will help me , but I believe my virus is replicating in body elsewhere now . I of course will try and treat with any new meds that become available and I keep a positive attitude , but of course I already know that I have less than a 15% chance of ever clearing . I lost my 27 yr old brother to liver failure on Christmas day years ago , I

think my family genetics are playing a strong role in how I respond , LOL Re: My lab work came back , and its not good Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers

elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably

would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low rates. New Messenger with Voice. Call regular phones from your PC and save big. New Messenger with Voice. Call regular phones from your PC for low, low rates. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting

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[Guest guest]

Liz, enough is enough. Please talk to your doctor and ask them to contact AVI. Your doctor may be able to get this for you via a backdoor. The FDA allows for "Compassionate Use" exemptions. All you need do is get your doctor to tell the FDA that this is your best chance for survival, and you might get AVI's drug now. Please just do it! The company has saved primates from the ebola virus using a similar technology. Ebola is 100% fatal in primates. (What do HCV and Ebola have in common? They are both single stranded RNA virus.) The HCV drug has a synthetic backbone that previous anti-sense technology lacked. This lets the drug enter and remain in the body without the body's natural immuno response. And because the drug is genetically designed to only interact with the HCV RNA, there are no side effects. Try this please. The following is an email the company sent me just

before I turned up undetectable. I was on the verge of trying this myself. "As you might expect, we've received a tremendous number of calls from HCV patients looking to enter the upcoming patient treatment portion of the clinical trial with AVI-4065. When we receive such calls, all we can do is turn them over to the primary clinical site in Palo Alto, suggesting that they call and seek to sign up, since it is the clinical site in any of our trials that enrolls patients, not us. They can also look up the particulars of the trial by logging onto www.clinicaltrials.gov and typing in AVI BioPharma But I understand, from your e-mail, your situation, given the distance, expenses and other. And while I'm not part of the Clinical Development group here at AVI, I can only suggest that your physician might want to call

here and enquire as the possibility of an emergency IND, commonly called "compassionate use". This, in no way, is any assurance that such a path is possible or viable. But I'm a strong believer that life has options; and if there is any avenue we can seek, any that can provide at least hope, then we'll do what we can--and allowed to--to help, I'm certain. For your physician's knowledge, and in regard to the clinical site for the next stage of treatment, the contacts are Bratcher, R.N., and Jude , R.N. at 650.493.5000. For queries--which must come from your physician--for access to our drug under an emergency IND, which use must be reviewed and approved by the FDA--I suggest you call Hollemon, R.N or , R.N., here at AVI BioPharma: 503.227.0554. Again, there are no promises or assurances that such requests can be honored. But at least it's worth a try. In the

meantime, and in addition to logging onto our website: www.avibio.com, for updates, if you have any requests for updates or other that I can provide, please let us know. In the meantime, our kindest regards and wishes for additional success in treating your disease. Best wishes, C. Hubbard" I never had my doctor make the call, it turned out that I didn't need to. But maybe I was given this information so that I could help you by passing it to you. If this is a test of my faith, I think I just passed. This could also be a test of your faith. All my love and best wishes Liz! Chriselizabethnv1 <elizabethnv1@...> wrote: Haha I suffer from no depression ......just a realist attitude . I was diagnosed back in the early 80's and have rapidly progressed to liver failure , I treated for 15months with interferon monotherapy . That gave my liver some time to try to heal , but the last 3 times I have treated it did nothing but make my liver worse and now my heart has been effected . I have had the years to understand this disease and the treatments available and also time to come to terms with what can happen if it isnt brought under control . I know you have hope that the new AVI medication will help me , but I believe my virus is replicating in body elsewhere now . I of course will try and treat with any new meds that become available and I keep a positive attitude , but of course I already know that I have less than a 15% chance of ever clearing . I lost my 27 yr old brother to liver failure on Christmas day years ago , I

think my family genetics are playing a strong role in how I respond , LOL Re: My lab work came back , and its not good Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers

elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably

would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low rates. New Messenger with Voice. Call regular phones from your PC and save big. New Messenger with Voice. Call regular phones from your PC for low, low rates. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

I will check into it , but I have no ideal if they will allow it until my cardiac issues are dealt with . Before I did the infergen I spent alot of time trying to get into clinicals . I was repeatedly denied entry because of all my preexisting medical conditions .

Re: My lab work came back , and its not good

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me.

If love from your friends and family were enough to heal you, you would be well.

WE love you Liz!

Jackie on <redjaxjm@...> wrote:

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep..

I love you

meelizabethnv1 <elizabethnv1@...> wrote:

Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

New Messenger with Voice. Call regular phones from your PC for low, low rates.

New Messenger with Voice. Call regular phones from your PC and save big.

New Messenger with Voice. Call regular phones from your PC for low, low rates. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

From my read of the email, I don't think this is getting into a trial, and like Mike said in the email, it is not guarranteed, but after your heart stuff settles down, please do give this company a chance. Please get more rest. You are posting like there's no tomorrow. Drink lots of water and sleep early... You know, all the things your Grandmother would tell you. Hugs, Chriselizabethnv1 <elizabethnv1@...> wrote: I will check into it , but I have no ideal if they will allow it until my cardiac issues are dealt with . Before I did the infergen I spent alot of time trying to get into clinicals . I was repeatedly denied entry because of all my preexisting medical conditions . Re: My lab work came back , and its not good Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me. If love from your friends and family were enough to heal you, you would be well. WE love you Liz! Jackie on <redjaxjm@...> wrote: Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep.. I love you meelizabethnv1 <elizabethnv1@...> wrote: Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie New Messenger with Voice. Call regular phones from your PC for low, low rates. New Messenger with Voice. Call regular phones from your PC and save big. New Messenger with Voice. Call regular phones from your PC for low, low rates. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy

access to our group, just click the link-- Hepatitis C/Happy Posting New Messenger with Voice. Call regular phones from your PC and save big.

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I try to rest but sometimes my body just wont allow it , even with sleep meds I am lucky if I can get 4-5hrs a night , LOL

Re: My lab work came back , and its not good

Me too Liz! I know you must be feeling cheated. What was this, your fourth attempt? Please keep hope in your heart. Remember too, I did not go looking for answers elsewhere. I accepted completely my doctors prognosis, but alternative help found me.

If love from your friends and family were enough to heal you, you would be well.

WE love you Liz!

Jackie on <redjaxjm@...> wrote:

Makes me so sad Liz,, but this is a PRIME EXAMPLE that even INF is not a cure all for all of us.. some must look for other ways to treat their hep..

I love you

meelizabethnv1 <elizabethnv1@...> wrote:

Well my viral load went from <600(log 2) to 406,000 (log 5), this lab work was done 2 days after I got out of the hospital .......looks like I mutated again . So they probably would have taken me off treatment if my heart hadnt forced them ...Jackie

New Messenger with Voice. Call regular phones from your PC for low, low rates.

New Messenger with Voice. Call regular phones from your PC and save big.

New Messenger with Voice. Call regular phones from your PC for low, low rates. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting

New Messenger with Voice. Call regular phones from your PC and save big.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

I'm really sorry to hear all this Liz. Hang in....catching up on old posts.

[Guest guest]

So where ya been hiding ? How are you doing ?

Re: My lab work came back , and its not good

I'm really sorry to hear all this Liz. Hang in....catching up on old posts.