Introduction

November 6, 2007

Welsome to the group .

Chris

" B. " wrote:

I am usure as to how much I should include when introducing myself to

you so if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@...

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac; Gliclazide

& Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS. Current

Editor-in-Chief, & Francis Journal, Mental Health and Substance Use.

Author/Editor/Writer: Communication, Hope and Coping Strategies, Service

Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta Tau

International - Honor Society of Nursing - Honorary Member Award, 3rd November

2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in Palliative

Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental Health and

Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@...

November 6, 2007

welcome Dave and I must say you gave more info then I ever did . welcome and

glad you found us but sorry you were looking at the same time

the redneck

Marty

Calling an illegal alien an " undocumented immigrant " is like calling a drug

dealer an " unlicensed pharmacist. "

" Those who hammer their guns into plows will plow for those who do not. "

~ Jefferson

Stills ; An illness I know to well!

To learn about Stills http://www.stillsdisease.org/stills_info

To donate http://www.stillsdisease.org/donations

__________________________________________________

November 6, 2007

welcome Dave and I must say you gave more info then I ever did . welcome and

glad you found us but sorry you were looking at the same time

the redneck

Marty

Calling an illegal alien an " undocumented immigrant " is like calling a drug

dealer an " unlicensed pharmacist. "

" Those who hammer their guns into plows will plow for those who do not. "

~ Jefferson

Stills ; An illness I know to well!

To learn about Stills http://www.stillsdisease.org/stills_info

To donate http://www.stillsdisease.org/donations

__________________________________________________

November 6, 2007

welcome Dave and I must say you gave more info then I ever did . welcome and

glad you found us but sorry you were looking at the same time

the redneck

Marty

Calling an illegal alien an " undocumented immigrant " is like calling a drug

dealer an " unlicensed pharmacist. "

" Those who hammer their guns into plows will plow for those who do not. "

~ Jefferson

Stills ; An illness I know to well!

To learn about Stills http://www.stillsdisease.org/stills_info

To donate http://www.stillsdisease.org/donations

__________________________________________________

December 21, 2007

((((((((((((( Janine ))))))))))))) God Bless you and your hubby for taking in these two precious little ones...the world is a better place because of people like you.

I am so glad you are here , we are all in this together !!!

hugs and prayers

Wags! Wags! Wags!

Lowry

"There is no psychiatrist in the world like a puppy licking your face."

Author Ben

Autism and Aspergers Treatment From: PrincessJ9r@...Date: Mon, 17 Dec 2007 15:17:21 +0000Subject: Introduction

Hello. My name is Janine and I am the mom of 2 children. Let me give you some background on the kids. Both children were born from my cousin who lost parental rights. My husband and I took in our oldest when she was 5 years old. She is now 10. She at that time did not have any sort of diagnosis. My aunt had taken her in when she was 15 mos old. My aunt was a single mother with 4 kids of her own. When she got Krystal, Krystal was like a wild animal. My aunt did all she could but Krystal could not be controlled. She had gotten out of the house on multiple occasions in the middle of the night and brought back by the police. Krystal would stack things to get to the lock on the top of the door or anything else for that matter. My aunt could not take it anymore because she was missing to much work. She was going to put krystal in a group home. My husband and I were not going to let that happen so we took guardianship of her. Right away I took her to specialist after specialist and finally was given the diagnosis of PDD-NOS. She also was diagnosed with ADHD and a sleep disorder. We have her on medication for ADHD because otherwise she is uncontrollable and on medication to sleep otherwise she wouldn't sleep and neither would we for that matter. She gets into things you wouldn't believe. Nothing is childproof for her. We have locks on all our medicine cabinets as she loves medicine. Even so, we have our issues with this child. Not to say we love her any less. We love this child with all we have. Now on to our second child, also born from the same mother. We had to become foster parents in order to get him. My cousin was pregnant with him when her other 2 kids were taken from her. My other aunt & unlce did the foster parent classes to get the other 2 kids. My husband and I discussed taking the baby before he was born knowing that there was a 90% chance he would be born with probelms as my cousin was doing drugs while pregnant with him. In the end we decided we wanted him no matter what. We got Brenden at 10 days old. We actually got him right before we got married. After we got back from our honeymoon, Brenden started going through drug withdraw. Crack cocaine to be exact. He was put on Phenobarbitol and then 6 months later weaned off because the doctors wanted to make sure it was indeed drug withdraw. My cousin wouldn't sign papers for pre-natal records or her medical records to be reviewed. They weaned him off the pheno and he did not have another seizure episode until long after we adopted him. He is 4 now and has grand mal and petit mal seizures with 2 kinds of seizure meds to control them. In the midst of our foster parenting, Brenden was taken from our family and placed in another home where he received 2nd degree burns to his mouth, lips and throat. This delayed him in quite a few things. When Brenden was burned, we were called to the agency and told that we would be taking Brenden home permanently right after we took him to the hospital. Brenden is now 4, just started walking, doesn't feed himself with utensils yet, doesn't talk and is quite delayed. He is in one of the best theraputic shcools. He hasn't been given a diagnosis yet but I think that the word "Autistic" isn't far away.So, why am I here you might ask? There are days when I feel like pulling my hair out of my head and just need someone out there who can relate to what I may be going through and maybe give some advice. Then there are really good days where I might be able to give a funny "Krystal" story or give a boost to someone else. Thanks for listening,Janine Books, DVD's, gadgets, music and more. Shop online with Sympatico / MSN Shopping today!

February 2, 2008

For natural vitamin E, take GAMMA E and follow the protocol below.

phine.

http://www.thecureforheartdisease.com/protocol.htm

>

> Within 24 hours the symptoms decreased 95% so the offending agent

was indeed the lipitor. My question is --where do we go from here?

>

> Fern

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

February 2, 2008

For natural vitamin E, take GAMMA E and follow the protocol below.

phine.

http://www.thecureforheartdisease.com/protocol.htm

>

> Within 24 hours the symptoms decreased 95% so the offending agent

was indeed the lipitor. My question is --where do we go from here?

>

> Fern

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

February 2, 2008

Fern, well first congrats on figuring out it was lipitor. It almost doesnt matter where you go from here except stay off the toxic statins. And celebrate because now his heart and other cells will get more coenzymeq10, which is what is depleted on statins and why they have that scary warning to call you doc RIGHT AWAY if you have muscle pains (which he didnt I know) Its what every cell in your body uses to create energy. I am no stent wiz, so dont know what goes with those, but you shouldnt lose sleep about him being off statins as he had at most about a 2 percent of them helping him avoid a heart attack. Exercise, two drinks a day if he cares to (just read another study that exercise plus moderate alcohol keeps people in better heart shape than just exercise) plenty of antioxidants, omega 3 oil and you will far outperform any statin in terms of keeping his heart healthy. Not to mention nuts, garlic, ask them at the

health food store what else. To see those symptoms disappear like that is truly amazing. To the group - are rashes a side effect of the statins? What we are learning from this group is that you must really be sure of the benefit of any drug and weigh it against side effects. The doctors are getting better, but they are trained that drugs and surgery = practicing medicine. KipFern Shap <fernshap@...> wrote: I'd like to introduce myself and learn

from this forum. A few weeks ago my husband had a cardiac catheterization and two stents placed. (He had known he had high cholesterol and had tried statins in the past and discontinued because he didn't like how he felt.) He was placed on plavix and lipitor.A couple of weeks into the therapy he suddenly developed rash on his scalp, elbow and hands. The hands were swollen to the point he could not really use them. He saw a dermatologist who prescribed steroids for short term use. This was obviously a pretty severe allergic reaction.A few days later he consulted his internist who felt that lipitor might be the cause, which was a great relief to him because he needs plavix to prevent clotting in the stents. He advised him to discontinue the lipitor.Within 24 hours the symptoms decreased 95% so the offending agent was indeed the lipitor. My question is --where do we go from here?Fern Never miss a thing. Make your homepage.

Looking for last minute shopping deals? Find them fast with Search.

February 2, 2008

Had a nasty rash on both hands while taking Vytorin. One of the many

reasons I stopped.

It would create new bumps about an hour after taking and they would bust

and ooze throughout the day, calming as it was time to take the next pill.

It looked like somebody shot my hands with buckshot.

Barb

Kip Cleaver wrote:

> Fern, well first congrats on figuring out it was lipitor. It almost

> doesnt matter where you go from here except stay off the toxic

> statins. And celebrate because now his heart and other cells will get

> more coenzymeq10, which is what is depleted on statins and why they

> have that scary warning to call you doc RIGHT AWAY if you have muscle

> pains (which he didnt I know) Its what every cell in your body uses

> to create energy.

>

> I am no stent wiz, so dont know what goes with those, but you

> shouldnt lose sleep about him being off statins as he had at most

> about a 2 percent of them helping him avoid a heart attack. Exercise,

> two drinks a day if he cares to (just read another study that exercise

> plus moderate alcohol keeps people in better heart shape than just

> exercise) plenty of antioxidants, omega 3 oil and you will far

> outperform any statin in terms of keeping his heart healthy. Not to

> mention nuts, garlic, ask them at the health food store what else.

>

> To see those symptoms disappear like that is truly amazing. To the

> group - are rashes a side effect of the statins?

>

> What we are learning from this group is that you must really be sure

> of the benefit of any drug and weigh it against side effects. The

> doctors are getting better, but they are trained that drugs and

> surgery = practicing medicine.

>

> Kip

> */Fern Shap <fernshap@...>/* wrote:

>

> I'd like to introduce myself and learn from this forum. A few

> weeks ago my husband had a cardiac catheterization and two stents

> placed. (He had known he had high cholesterol and had tried

> statins in the past and discontinued because he didn't like how he

> felt.) He was placed on plavix and lipitor.

>

> A couple of weeks into the therapy he suddenly developed rash on

> his scalp, elbow and hands. The hands were swollen to the point

> he could not really use them. He saw a dermatologist who

> prescribed steroids for short term use. This was obviously a

> pretty severe allergic reaction.

>

> A few days later he consulted his internist who felt that lipitor

> might be the cause, which was a great relief to him because he

> needs plavix to prevent clotting in the stents. He advised him to

> discontinue the lipitor.

>

> Within 24 hours the symptoms decreased 95% so the offending agent

> was indeed the lipitor. My question is --where do we go from here?

>

> Fern

>

> ------------------------------------------------------------------------

> Never miss a thing. Make your homepage.

> <http://us.rd./evt=51438/*http://www./r/hs>

>

> ------------------------------------------------------------------------

> Looking for last minute shopping deals? Find them fast with

> Search.

>

<http://us.rd./evt=51734/*http://tools.search./newsearch/categ\

ory.php?category=shopping>

>

February 2, 2008

Fern,

I have had 4 stents and was once on Plavix. I've learned that aspirin

is almost identically effective to Plavix in preventing cardiovascular

events at a much lower cost. Fish oil is more effective that either of

the above.

I don't take Plavix anymore and take aspirin and fish oil as part of my

supplements/drugs regiment.

Steve

Fern Shap wrote:

>

> I'd like to introduce myself and learn from this forum. A few weeks ago

> my husband had a cardiac catheterization and two stents placed. (He had

> known he had high cholesterol and had tried statins in the past and

> discontinued because he didn't like how he felt.) He was placed on

> plavix and lipitor.

>

> A couple of weeks into the therapy he suddenly developed rash on his

> scalp, elbow and hands. The hands were swollen to the point he could

> not really use them. He saw a dermatologist who prescribed steroids for

> short term use. This was obviously a pretty severe allergic reaction.

>

> A few days later he consulted his internist who felt that lipitor might

> be the cause, which was a great relief to him because he needs plavix to

> prevent clotting in the stents. He advised him to discontinue the lipitor.

>

> Within 24 hours the symptoms decreased 95% so the offending agent was

> indeed the lipitor. My question is --where do we go from here?

>

> Fern

>

> ------------------------------------------------------------------------

> Never miss a thing. Make your homepage.

> <http://us.rd./evt=51438/*http://www./r/hs>

>

--

Steve - dudescholar4@...

Take World's Smallest Political Quiz at

http://www.theadvocates.org/quiz.html

" If a thousand old beliefs were ruined on our march

to truth we must still march on. " --Stopford

February 2, 2008

fern, I take nattokinase as a blood thinner not asprin as to many

side effects ,the best part of asprin is the magnesium coating on the

outside ,magnesiam you need as well 300mg,400 mg Q10,plus turmic

300mg ,for costerial I take niacin ,alpha lipoic acid,an

policosanol ,also to keep any plaque building up I take two

tablespoons apple cider vinegar ,morning an evening ,I also add a

quarter teaspoon of cayenne pepper with it as it is great for the

heart ,i also take hawthorn berry for the heart as well,along with a

good multi vitamin ,have a look at the webb site

earthclinic .com ,that is a good starting piont , regards mervyn ---

In Lipitor , Fern Shap <fernshap@...>

wrote:

>

> I'd like to introduce myself and learn from this forum. A few

weeks ago my husband had a cardiac catheterization and two stents

placed. (He had known he had high cholesterol and had tried statins

in the past and discontinued because he didn't like how he felt.)

He was placed on plavix and lipitor.

>

> A couple of weeks into the therapy he suddenly developed rash on

his scalp, elbow and hands. The hands were swollen to the point he

could not really use them. He saw a dermatologist who prescribed

steroids for short term use. This was obviously a pretty severe

allergic reaction.

>

> A few days later he consulted his internist who felt that lipitor

might be the cause, which was a great relief to him because he needs

plavix to prevent clotting in the stents. He advised him to

discontinue the lipitor.

>

> Within 24 hours the symptoms decreased 95% so the offending agent

was indeed the lipitor. My question is --where do we go from here?

>

> Fern

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

February 2, 2008

<i>To see those symptoms disappear like that is truly amazing. To

the group - are rashes a side effect of the statins?</i>

The rash and severe swelling of the hands and rashes on scalp and

elbow were not " side effects " this was a true, very serious allergic

reaction.

He did have the side effect of feelings of fatigue and generally

feeling lousy. He had tried statins in the past with the same side

effects but no allergic reaction.

March 20, 2008

My name is and I live in Central New York (which is upstate - definitely NOT Manhattan!).

I guess "upstate" depends on your perspective. I'm originally from Ticonderoga. "Upstate"--to someone from Manhattan--is Westchester, and anything north of that simply doesn't exist.

I'm now in Tucson, AZ.

J.

March 20, 2008

My name is and I live in Central New York (which is upstate - definitely NOT Manhattan!).

I guess "upstate" depends on your perspective. I'm originally from Ticonderoga. "Upstate"--to someone from Manhattan--is Westchester, and anything north of that simply doesn't exist.

I'm now in Tucson, AZ.

J.

March 20, 2008

My name is and I live in Central New York (which is upstate - definitely NOT Manhattan!).

I guess "upstate" depends on your perspective. I'm originally from Ticonderoga. "Upstate"--to someone from Manhattan--is Westchester, and anything north of that simply doesn't exist.

I'm now in Tucson, AZ.

J.

March 27, 2008

Jessie,

Regardless of what you have - a mutated stills or whatever, you are welcome.

Chronic illness is hard and everyone needs support. I am on Kineret also,

along with MTX, Pred, muscle relaxers, and about 14 other meds. I hate them

all. Before I was dx'd with stills my doc jokingly said I had Rupus...

(Lupus and RA). Finally the picture becaming clearer with I began to have

high spiking fevers and rashes. I still have spiking fevers some nights,

but most days I just get temps up to 100 or 101 depending on how much I did

that day. It's hard, but knowing this support group exist and that there

are people that care and understand really makes a difference for me.

Welcome back.

March 27, 2008