Introduction

[Guest guest]

Hi Viki,

Welcome to the family. I am , 35 year old nursing student in western NC.

I am married with a 2 year old son. Hope you like it here!

</HTML>

[Guest guest]

Hi

Thank you for the nice welcome!

I really feel well here. i know that all of you can understand what i say or

feel as nobody else can. i am financier - master's degree. i was studing '

English ' - master's degree when i became ill and i had to stop it. i want

to continue but i don't know if i can.i hope i will be ok and that's the

only thing i dream because i have a child. He needs me! i will do whatever i

can to survive and to be helpful for my family.

smiles and hugs

viki

2007/8/16, Elissadwho@... :

>

> Hi Viki,

> Welcome to the family. I am , 35 year old nursing student in western

> NC.

> I am married with a 2 year old son. Hope you like it here!

> </HTML>

>

>

[Guest guest]

Hi

Thank you for the nice welcome!

I really feel well here. i know that all of you can understand what i say or

feel as nobody else can. i am financier - master's degree. i was studing '

English ' - master's degree when i became ill and i had to stop it. i want

to continue but i don't know if i can.i hope i will be ok and that's the

only thing i dream because i have a child. He needs me! i will do whatever i

can to survive and to be helpful for my family.

smiles and hugs

viki

2007/8/16, Elissadwho@... :

>

> Hi Viki,

> Welcome to the family. I am , 35 year old nursing student in western

> NC.

> I am married with a 2 year old son. Hope you like it here!

> </HTML>

>

>

[Guest guest]

My dear Viki:

I understand you. It was very hard to go back to work after I became

ill but I had to. Personally, I'm in retail, always on my feet

except during breaks. At times the pain would become so overwhelming

that I just wanted to sit and cry where I stood. My biggest fear is

that customers will see how ill I am and I can't or won't allow

that. I've learned to trust in my painkillers. There's no " high "

anymore now that I'm used to it but the pain magically goes away for

a little while or, if I'm really bad, it becomes more tollerable.

When I was first diagnosed my son was 2 years old and my husband

wasn't very understanding at all. Now my son is 14 and my husband

has grown to be more patient and helpful.

The point is you can accomplish anything, it just may take a little

time. Now take a deep breath, blow it out and remember you're an

amazing person! That goes for everyone else as well.

Take care and be well.

Ellen

Palm City, FL

[Guest guest]

My dear Viki:

I understand you. It was very hard to go back to work after I became

ill but I had to. Personally, I'm in retail, always on my feet

except during breaks. At times the pain would become so overwhelming

that I just wanted to sit and cry where I stood. My biggest fear is

that customers will see how ill I am and I can't or won't allow

that. I've learned to trust in my painkillers. There's no " high "

anymore now that I'm used to it but the pain magically goes away for

a little while or, if I'm really bad, it becomes more tollerable.

When I was first diagnosed my son was 2 years old and my husband

wasn't very understanding at all. Now my son is 14 and my husband

has grown to be more patient and helpful.

The point is you can accomplish anything, it just may take a little

time. Now take a deep breath, blow it out and remember you're an

amazing person! That goes for everyone else as well.

Take care and be well.

Ellen

Palm City, FL

[Guest guest]

Hi Casey,

My daughter also just turned 4 and finally got a diagnosis of pdd-nos and adhd. They believe she has aspergers (she meets the daignostic criteria), but they believe she is too young to diagnose with aspergers. So in the meantime they gave her the pdd dx. People have always though there was "something" about Jennah they couldn't quite put their finger on, but there was something "off" about her. Looking back at pictures, I noticed the biggest change (for the worst) happened around 2 years old. She started zoning out a lot more...she was staring off into space in almost every picture...she had "that look" more and more. She's always had sensory issues, but those got worse at around 3 years old. She holds her ears when there are lound noises, she loves silky objects, she can't have different foods touching on the plate (I think she has ocd too). Anyway, I won't bore you with the whole list of symptoms, but I

wanted to let you know that speech therapy (she had huge articulation problems) has helped immensely. But the BIGGEST change has been starting her on Omegas (fish oils). When I tell you there was an IMMEDIATE difference, I mean immediate. THAT NIGHT, her pre-bath meltdown (always happened before her bath) was gone. As usual, I said "come on Jennah, time for bath"...fully expecting for her to ignore me and then finally after me telling her 5 times she would throw herself on the ground screaming "noooo!!!!! I don't want to!!!! I can't do ittttt!!!".....as I dragged her to the bathroom....then the screaming would usually continue through the entire bath. THIS NIGHT, however, she simply said "okay, mommy" and WALKED TO THE BATHROOM!!!! I was in TOTAL disbelief. I have to say that not everyone sees such a response, but I did. Her body was evidently in that much Omega deficit. (studies showed that autistic children

had more of an omega deficit than most people and that caused some of the behaviors). Some people see results with B vitamins and magnesium, that made Jennah worse, so evidently she does not have a B vitamin deficiency. I highly recommend getting an IEP thorugh school, even if he is not in school, the school district can provide tharapies with an IEP. Also, if you can get a PT/OT evaluation (if he has those issues). There is always behavioral therapy (ABA is the most commonly accepted), there is also RDI (relationship development intervention), which makes more sense to me (by the little bit of research I have done), but it is not usually covered by insurance. BUT, I plan on doing some of the exercises with her myself. Okay, so I babbled enough. Let me know if you have any questions I can answer...as usual I am doing 15 things at the same time...so I probably left some things out...Elissa

Check out my myspace

http://www.myspace.com/elissamercado

Chat in 3D

http://imvu.com/catalog/web_invitation.php?userId=12957275 & from=power-email

Introduction

Hi. My name is Sara and I have a son who is almost 4. He is currently being assessed for Asperger's Syndrome...and will likely be officially diagnosed in the next few weeks. I really don't know any parents locally that have children with AS....especially in his age group. I am hoping to meet other parents that have been through this whole process. I'm curious how and if you told friends/family/ teachers .....and how it is best explained to others in general. I'd also like to know what kind of services you find to be the most (or least) helpful for your children. Thank you so much for your time.

[Guest guest]

Hi Casey,

My daughter also just turned 4 and finally got a diagnosis of pdd-nos and adhd. They believe she has aspergers (she meets the daignostic criteria), but they believe she is too young to diagnose with aspergers. So in the meantime they gave her the pdd dx. People have always though there was "something" about Jennah they couldn't quite put their finger on, but there was something "off" about her. Looking back at pictures, I noticed the biggest change (for the worst) happened around 2 years old. She started zoning out a lot more...she was staring off into space in almost every picture...she had "that look" more and more. She's always had sensory issues, but those got worse at around 3 years old. She holds her ears when there are lound noises, she loves silky objects, she can't have different foods touching on the plate (I think she has ocd too). Anyway, I won't bore you with the whole list of symptoms, but I

wanted to let you know that speech therapy (she had huge articulation problems) has helped immensely. But the BIGGEST change has been starting her on Omegas (fish oils). When I tell you there was an IMMEDIATE difference, I mean immediate. THAT NIGHT, her pre-bath meltdown (always happened before her bath) was gone. As usual, I said "come on Jennah, time for bath"...fully expecting for her to ignore me and then finally after me telling her 5 times she would throw herself on the ground screaming "noooo!!!!! I don't want to!!!! I can't do ittttt!!!".....as I dragged her to the bathroom....then the screaming would usually continue through the entire bath. THIS NIGHT, however, she simply said "okay, mommy" and WALKED TO THE BATHROOM!!!! I was in TOTAL disbelief. I have to say that not everyone sees such a response, but I did. Her body was evidently in that much Omega deficit. (studies showed that autistic children

had more of an omega deficit than most people and that caused some of the behaviors). Some people see results with B vitamins and magnesium, that made Jennah worse, so evidently she does not have a B vitamin deficiency. I highly recommend getting an IEP thorugh school, even if he is not in school, the school district can provide tharapies with an IEP. Also, if you can get a PT/OT evaluation (if he has those issues). There is always behavioral therapy (ABA is the most commonly accepted), there is also RDI (relationship development intervention), which makes more sense to me (by the little bit of research I have done), but it is not usually covered by insurance. BUT, I plan on doing some of the exercises with her myself. Okay, so I babbled enough. Let me know if you have any questions I can answer...as usual I am doing 15 things at the same time...so I probably left some things out...Elissa

Check out my myspace

http://www.myspace.com/elissamercado

Chat in 3D

http://imvu.com/catalog/web_invitation.php?userId=12957275 & from=power-email

Introduction

Hi. My name is Sara and I have a son who is almost 4. He is currently being assessed for Asperger's Syndrome...and will likely be officially diagnosed in the next few weeks. I really don't know any parents locally that have children with AS....especially in his age group. I am hoping to meet other parents that have been through this whole process. I'm curious how and if you told friends/family/ teachers .....and how it is best explained to others in general. I'd also like to know what kind of services you find to be the most (or least) helpful for your children. Thank you so much for your time.

[Guest guest]

Have you tried premedicating with benadryl prior to SCIG? We did this for

many months.. Then would try not to give it. and the boys were finally

able to do SCIG w/o benadryl. Every once in a while we need to give it

to J.

I have 3 boys, two of them have Shwachman-Diamond Syndrome. My oldest used

to have problems with having sick brothers. He has gotten better as he has

gotten older.

Here is a link to our family website, if interested:

www.shwachman.50megs.com <http://www.shwachman.50megs.com/>

Peace of Christ be with you,

Pattie

Absence of proof is not proof of absence.

[Guest guest]

Hi Pattie,

We use Benadryl and Motrin for Ben before his SCIG-- the swelling and

redness was a little less this week (keeping it in the legs, but rotating

sites). So, hopefully, over time it will get easier for him . . . I

bookmarked your family website for him to view the pictures of your boys

having SCIG since he's the only one of mine on it (the other two do IVIG).

Thank you for sharing!

<<Have you tried premedicating with benadryl prior to SCIG? We did this for

many months.. Then would try not to give it. and the boys were finally

able to do SCIG w/o benadryl. Every once in a while we need to give it

to J.

I have 3 boys, two of them have Shwachman-Diamond Syndrome. My oldest used

to have problems with having sick brothers. He has gotten better as he has

gotten older.

Here is a link to our family website, if interested:

www.shwachman.50megs.com <http://www.shwachman.50megs.com/>

Peace of Christ be with you,

Pattie

Absence of proof is not proof of absence. >>

[Guest guest]

Welcome to the group Kim. Feel free to ask any questions you have and post

about your brewing once you get started. Hopefully there is a member close

to you but if not, there are people on the list who will share by mail.

On 9/20/07, Sinclairs <sinclai@...> wrote:

>

> Hello Everyone,

> I am new to this group and (sort of) to KT. I drink KT whenever I get to

> the health food store to buy it. But I would like to drink it more often.

> My daughter brought home a bottle of KT last year and I have been hooked on

> it ever since. I have been doing some research on how to brew my own KT, it

> gets expensive at $4 per bottle! So I found this list and I am learning a

> lot from all of you knowledgable people. Now I just need to find someone

> close by me (in Southern California) that has an extra mother to spare!

>

>

--

Live and Love Well,

Sandy (Jennings, FL; zone 8b)

[Guest guest]

Welcome, Kim!

I'm learning, too. This is a wonderfully cordial and helpful group. I

feel certain you will have a nice kombucha culture soon and then you can

put all the information you've been gathering to making lots of happy KT

brews.

I'm so very sorry about your mother. It sounds to me that you were

looking out for her in the most loving way.

Your store sounds absolutely wonderful! There's not a Japanese store

here in Memphis that I know of ... but Memphis is full of surprises.

Maybe I just haven't looked hard enough.

Blessings to you!

Lois (Midsouth USA)

>

> Hello Everyone,

> I am new to this group and (sort of) to KT. I drink KT whenever I get

to the health food store to buy it. But I would like to drink it more

often. My daughter brought home a bottle of KT last year and I have

been hooked on it ever since. I have been doing some research on how to

brew my own KT, it gets expensive at $4 per bottle! So I found this list

and I am learning a lot from all of you knowledgable people. Now I just

need to find someone close by me (in Southern California) that has an

extra mother to spare!

>

> I had heard about KT many years ago when my mother was diagnosed with

breast cancer, but, I hadn't thought again about it until my daughter

brought a bottle home. When my mother was diagnosed with breast cancer,

I researched alternative treatments because traditional medicine was

failing her and the cancer was spreading. I found a book (can't recall

the name at the moment, it was years ago) written by a nurse and it

recommended KT and a raw foods diet. A neighbor of hers also brought

her some KT to try. Well, she tasted it and didn't like it and wouldn't

eat raw foods, so that was that and in a few months she died. I am

convinced now that she could have saved her life had she changed her

eating habits and drank KT.

>

> So now I am looking for healthier ways to live. Haven't got the

exercise part down! Seems we're always too busy, and the garden has

gone to heck! Anyway, when I decided I wanted to start brewing my own

KT I have been researching the benefits and possible drawbacks of doing

my own brew. During my research, I came across this report from the CDC:

http://www.cdc.gov/MMWR/preview/mmwrhtml/00039742.htm and a few other

small reports that could not be verified as accurate. Even the CDC

report could not be proven as Kombucha making them sick because 115

people from the same town drank tea from the same mother strain and only

2 people got sick. Yet as I read and think about these few people that

got sick, how many thousands or millions have benefitted from drinking

KT. And then again I think, how many people have been harmed by

" traditional medicines " cures. I look to the Asian diet; the healthiest

and most long lived people on earth. They eat a lot of

> fermented foods. My favorite store is the Japanese store 'Mitsuwa'

in San Diego where they have a whole section (almost like a small store

within the store) of pickles and naturally fermented foods. I only get

down there once a month so it is a real treat! Of course the best

alternative would be for me to make my own naturally fermented foods,

but one thing at a time! I shall start with KT!

>

> Sorry this is so long, I have been lurking on this site for awhile and

I guess I just had a lot to say! Sorry!

>

> Kim

>

>

[Guest guest]

Hi Kim,

Southern California covers a lot of territory.

I'm in Ventura county. Is that close enough?

Silani

[Guest guest]

Thank you Sandy! I would be happy to pay someone to ship it to me.

Kim

Posted by: " Sandy " sandyemaillists@... alternative_couple

Thu Sep 20, 2007 2:27 pm (PST)

Welcome to the group Kim. Feel free to ask any questions you have and post

about your brewing once you get started. Hopefully there is a member close

to you but if not, there are people on the list who will share by mail.

[Guest guest]

Hey Kim, don't be sorry, it was a nice read. : -)

Jim

On 20 Sep 2007, at 22:19, Sinclairs wrote:

>

> Sorry this is so long, I have been lurking on this site for awhile

> and I guess I just had a lot to say! Sorry!

>

> Kim

[Guest guest]

Hi

Welcome to the group not a nice way to meet I know. I have found great help

within the stills family and hope that anything you wish to ask or we can

help you with you

Will fire away.

My family and I live in Surrey - near Epsom racecourse, most people have

heard of that anyway just to say hello.

Best wishes

Joan U.K.

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of B.

Sent: 06 November 2007 10:57

To: Stills Disease Group

Subject: Introduction

I am usure as to how much I should include when introducing myself to you so

if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com>

btinternet.com

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac;

Gliclazide & Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS.

Current Editor-in-Chief, & Francis Journal, Mental Health and

Substance Use. Author/Editor/Writer: Communication, Hope and Coping

Strategies, Service Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta

Tau International - Honor Society of Nursing - Honorary Member Award, 3rd

November 2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in

Palliative Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental

Health and Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist

RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com> btinternet.com

[Guest guest]

Hi

Welcome to the group not a nice way to meet I know. I have found great help

within the stills family and hope that anything you wish to ask or we can

help you with you

Will fire away.

My family and I live in Surrey - near Epsom racecourse, most people have

heard of that anyway just to say hello.

Best wishes

Joan U.K.

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of B.

Sent: 06 November 2007 10:57

To: Stills Disease Group

Subject: Introduction

I am usure as to how much I should include when introducing myself to you so

if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com>

btinternet.com

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac;

Gliclazide & Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS.

Current Editor-in-Chief, & Francis Journal, Mental Health and

Substance Use. Author/Editor/Writer: Communication, Hope and Coping

Strategies, Service Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta

Tau International - Honor Society of Nursing - Honorary Member Award, 3rd

November 2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in

Palliative Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental

Health and Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist

RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com> btinternet.com

[Guest guest]

Hi

Welcome to the group not a nice way to meet I know. I have found great help

within the stills family and hope that anything you wish to ask or we can

help you with you

Will fire away.

My family and I live in Surrey - near Epsom racecourse, most people have

heard of that anyway just to say hello.

Best wishes

Joan U.K.

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of B.

Sent: 06 November 2007 10:57

To: Stills Disease Group

Subject: Introduction

I am usure as to how much I should include when introducing myself to you so

if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com>

btinternet.com

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac;

Gliclazide & Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS.

Current Editor-in-Chief, & Francis Journal, Mental Health and

Substance Use. Author/Editor/Writer: Communication, Hope and Coping

Strategies, Service Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta

Tau International - Honor Society of Nursing - Honorary Member Award, 3rd

November 2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in

Palliative Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental

Health and Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist

RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@ <mailto:david_b_cooper%40btinternet.com> btinternet.com

[Guest guest]

!

Welcome to the wonderful world of Stills.... It keeps us on our toes &

gasping for breath - go figure.

I hope that you find answers here, and FRIENDS!

Best Wishes,

Pat

Austin, TX, USA

************************************** See what's new at http://www.aol.com

[Guest guest]

!

Welcome to the wonderful world of Stills.... It keeps us on our toes &

gasping for breath - go figure.

I hope that you find answers here, and FRIENDS!

Best Wishes,

Pat

Austin, TX, USA

************************************** See what's new at http://www.aol.com

[Guest guest]

!

Welcome to the wonderful world of Stills.... It keeps us on our toes &

gasping for breath - go figure.

I hope that you find answers here, and FRIENDS!

Best Wishes,

Pat

Austin, TX, USA

************************************** See what's new at http://www.aol.com

[Guest guest]

Hi ,

I'm . I am a nursing student from western NC, married, with 3 year old

son. Diagnosed with AOSD in 1996. Hope you enjoy being a part of the group.

(Maybe you can help me with my homework!!!!)

</HTML>

[Guest guest]

Hi ,

I'm . I am a nursing student from western NC, married, with 3 year old

son. Diagnosed with AOSD in 1996. Hope you enjoy being a part of the group.

(Maybe you can help me with my homework!!!!)

</HTML>

[Guest guest]

Hi ,

I'm . I am a nursing student from western NC, married, with 3 year old

son. Diagnosed with AOSD in 1996. Hope you enjoy being a part of the group.

(Maybe you can help me with my homework!!!!)

</HTML>

[Guest guest]

Welsome to the group .

Chris

" B. " wrote:

I am usure as to how much I should include when introducing myself to

you so if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@...

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac; Gliclazide

& Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS. Current

Editor-in-Chief, & Francis Journal, Mental Health and Substance Use.

Author/Editor/Writer: Communication, Hope and Coping Strategies, Service

Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta Tau

International - Honor Society of Nursing - Honorary Member Award, 3rd November

2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in Palliative

Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental Health and

Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@...

[Guest guest]

Welsome to the group .

Chris

" B. " wrote:

I am usure as to how much I should include when introducing myself to

you so if it is too long and boring - sorry - maybe it could be used to aid

insomnia! :-)

Name: B.

Email: david_b_cooper@...

Address: Dolton, Devon, UK

Birth date: 22 June 1952

How long have you been diagnosed: Diagnosed SLE in 1992 recently told that

diagnosis is AOSD

What meds do you currently take? Folic Acid; Methotrexate; Prenisolone;

Lisinopril; Lansoprazole; Cinnarizine; GT Spray; Dihydrocodeine; Tramadol;

Simvastatin; Metformin; Risedronate; Bendroflumethiazide; Diclofenac; Gliclazide

& Diltiazem

Employment (if any): Semi Retired Former Senior Nursing Officer, NHS. Current

Editor-in-Chief, & Francis Journal, Mental Health and Substance Use.

Author/Editor/Writer: Communication, Hope and Coping Strategies, Service

Development/Management, Alcohol and Substance Use, etc.,

Awards: NCA UK - Outstanding Contribution to Nursing Award 2003. Sigma Theta Tau

International - Honor Society of Nursing - Honorary Member Award, 3rd November

2007

Family Life: Married to Jo, a Clinical Nurse Specialist and Editor in Palliative

Care. 2 Adult Children. Phil, A Nurse Educator, Editor Mental Health and

Substance Use and MSc Dual Diagnosis. Marc - Senior Scientist RSPCA. Ph.D.

Hobbies: limited but do like reading and writing.

Thank you for agreeing to my joining you.

With kind regards.

B.

23 Orchard Gate

Dolton

Winkeleigh

Devon

EX19 8QZ

T: 01805 804445

E: david_b_cooper@...