Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Deborah, Your post brought tears to my eyes. What a blessing you are receiving! Congratulations. > I feel the need to report at this time my son's progress using ALA. > > Some background: received his MMR vaccine at around 18 > months of age. Five days later he was screaming uncontrollably and > had the classic measles rash all over his body. He was refusing to > move his arms, hands, neck or legs. He would not reach for his sippy > cup when I held it out to him. If I put it to his lips he would suck > like crazy - he was thirsty, but it hurt him so badly to move that he > would not reach out for his cup. I contacted his pediatrician and > the office nurse immediately tried to blow the situation off " This > has nothing to do with his vaccination... " I took him to the local > health department because I wanted to pick up the papers that say > " call your doctor if... " because I knew that he was experiencing five > of the eight things that I had been warned to watch for and I was > hoping that having some offical " proof " might help me advocate for my > son at the pediatrician's office. > > I walked into the health department with my son wearing only a diaper > as it was warm outside. This meant that the rash on his body was > fully exposed. As I stepped up to the counter, a nurse behind the > counter looked over and suddenly yelled, " Oh my God, that child is > having a reaction to his MMR vaccine! " > > With this nurse's validation in hand, I went searching for a new > pediatrician. The new pediatrician educated me on the dangers of > ever having my son receive this vaccination again, but also warned me > that our state would force him to receive it before admission to > school at age five. She said that his reaction was not considered > " serious enough " to warrant an exemption. Although she disagreed > with the state's standards, she warned me to expect a fight when I > enrolled him in school. Luckily, I had already begun homeschooling > my older children, so this was a battle we never had to fight. > > After he recovered from the obvious part of the vaccine reaction, > life went on, but something was wrong with my son that I couldn't > quite put my finger on. He was extremely bright, with a gigantic > vocabulary. At age three he told his friend that Barney was fiction, > and when the friend's mother said, " Wow! I don't think my three- year- > old even knows the word fiction " , said to the mother, > " Fiction means pretend " . > > We began to have serious troubles with his reactions to other > people. He would seriously injure someone, with a blank look on his > face - he was not angry at them, nor did he feel guilty that he had > hurt anyone. It was as though he didn't even know that he had hurt > someone. Soon his church teachers were calling me to ask for advice, > and I didn't know what to tell them. He stayed in his church > classes maybe two or three minutes before he was off - racing through > the halls, around and around and around. The energy was endless. He > stripped his clothes off in public. He shouted out inappropriate > things at inappropriate times. For example, when the bishop came to > talk to the children's group about baptism, the bishop asked, " Why is > it important for us to be baptized? " yelled out at the top > of his lungs " PEANUT BUTTER AND JELLY! " > > Sound bothered him tremendously. The organ, the piano, > congregational singing, or even being in a large crowd of children > would have him on the floor writhing with his hands over his ears. > When he would sing along to the songs, he didn't sing the appropriate > words. He was obsessed with potty words. So while all the other > children were sweetly singing " I am a child of God " , he was singing > (to the same tune) " pee, pee, pee, poop, poop, poop " . > > Many people just thought that he was AD/HD and we should just put him > on Ritalin. But there were things that just didn't fit with this > diagnosis. One was the silly grin he got on his face whenever he did > one of these " behaviors " . I have other children, and I know how they > look when they are caught doing something wrong: guilty, indignant, > smug... but not blank eyes and an insane grin... > > People visiting our home was a nightmare. I would spend the entire > time holding my son in his bedroom so that others in the family could > enjoy the social experience. As soon as my son noticed someone at > the door, he would race screeching around the room, so loudly that it > was impossible to carry on a conversation with the guest. Then began > the random hitting and pushing of guests or siblings until I carried > him kicking from the room. The strangest thing about these incidents > was that when I separated him, he would begin to cry that he wanted > to play with the friends that were there, he didn't want to miss the > time with them. He wanted to interact, but didn't know how. When he > wanted to play a game with someone, he would " ask " by knocking their > game board over and then smiling insanely at them. And he never > understood why they got angry at him for that. He would cry and cry > and cry. This summer his uncles built some incredible sand castles > at the lake: they were built like the Pueblo Indians' adobe homes. > thought they looked so cool and fun! He wanted to build > with them too - so he stomped on their castles and grinned at them. > He didn't understand why he was carried off to Time-Out. (By this > time he was almost six years old and should have been old enough to > understand.) > > Interactions with this child were so hard that one set of his > grandparents no longer allowed him in their home. The other set of > grandparents had spanked him at church without our permission. > > was rigid and inflexible. He could not handle change. One > day he had to be carried home from church two hours early because his > class was asked to sit in a different row than usual. > > I had to distract him when I heard the trash truck coming down the > street. One week he had watched the garbage men load our trash into > the truck and it had led to over an hour of kicking and screaming, > " That was OUR trash. BRING IT BAAAAAAACK! " > > He did not let us touch or hold him. We are a family that carries > our babies in slings and extended-breastfeeds and gives infant > massages, and since his vaccine reaction he would not snuggle or > allow us to hug or touch him. > > One particular incident in his violent behavior occurred right before > we started using the ALA. His baby brother was playing in the dirt > at the base of a tree. went over to the toddler, grabbed > the back of his head, and banged his forehead three times into the > tree trunk. When I grabbed and turned him to face me, he > had that insane grin on his face, and I could tell that nothing I was > saying, ( " NOOO! We don't do that!! That hurts!!!! Do you see him > crying?) was registering in his brain. I learned to cope by always > keeping away from other children - his own siblings and any > neighborhood or other friends that might come to our home to play. > Keeping away from other children was a full-time job - > remember, he WANTED to play with him, he had a genuine need to > interact, but he didn't know how to do so appropriately. > > This summer I was introduced to ALA by a friend who is using it with > her autistic daughter. She showed me Dr. Amy's article on " Autism, a > unique kind of mercury poisoning " . The article clicked. Saying that > my son had Asperger's Syndrome fit like nothing else ever had. I > felt like the ALA was safe, and like I could handle dosage > adjustments on my own. There would be no need to hunt and search for > a supportive doctor. I decided to give it six weeks and see if it > would make a difference. This is how we did it: 1/4 mg per pound of > body weight (this meant opening the capsule and dividing it into > fourths, since he was 50 lbs and the capsule was 50 mg) mixed with a > spoonful of applesauce, every three hours around the clock for three > days, then off for four days. > > During the second week two things occurred that were testimony to me > that the ALA was working. The first situation was when the baby > brother took away a train that was playing with. I lunged > to protect the baby, knowing that was going to clobber him. > Instead I heard saying, " Oh, so you want to play with the > train too? Here, let me show you how to do it... " He lined the > train up on the bed and got another train for himself (allowing the > baby to have the train he had originally had) and the two of them > made their trains choo-choo along the bed's edge. I watched the > scene with a quiet sense of awe: I had never seen play WITH > another child before. I had seen him playing ALONGSIDE other > children, but never before had I seen him able to empathize with > another child's needs, and then line himself up to interact with that > other child's play. > > During that same week another incident occurred. My husband was away > for the evening, and I carried out our normal bedtime routine of > having the children gather to read from the scriptures and have a > famiy prayer. After the prayer, I remained kneeling on the floor in > the quiet, just regrouping for a moment after a busy day. The > children were going off to their bedrooms and the living room was > quiet for a minute. Suddenly I was aware that someone was still > behind me. I was wrapped in an embrace from behind, someone who > clung to me so sweetly for a moment, and then kissed me. I turned > around expecting to see any of my five children except the one that I > did see - it was . It took me a moment to recover - I think > I actually froze for a minute because suddenly I realized that he was > standing in a strange position. His head was down and he had his > finger on his forehead. I thought for a minute, and suddenly I > understood! I exclaimed, " You want ME to kiss YOU? " He nodded > shyly. I asked, " Right here, on your forehead where your finger > is? " He nodded again shyly and I kissed him softly on his forehead. > Then without a word, he trotted happily off to bed. He had not let > me hug or kiss him for four and a half long years, and now he was > asking me for affection. > > We have done a total of eight cycles of ALA. At one point we noticed > that he was better behaved during the " ON " than the " OFF " so we > started doing six days on, eight days off, which meant less adjusting > for him from on to off. This worked well for him. During his > seventh cycle, he became very agressive, and so we halved his dose so > that he was now getting 1/8 mg per lb of his weight, and his behavior > calmed again. It is obvious that stuff is being cleaned out of his > brain because with every cycle, he experiences new growth. > > Let me tell you the differences we have seen after only eight cycles. > > His new teacher at church just said to me, " I don't know what all the > warnings about were before I took this class. He is easy. " > > The woman that works in the presidency of the children's church > organization called me this week. She said, " I can't believe the > change in your son. When I first started working with him (a year > and a half ago), the goal was to keep his clothes on him. Now he > sits with his arms folded and listens and half the Sundays when I go > home, I have to ask myself whether he was at church or not. He is so > reverent that you could miss him if you aren't looking for him. " > > My parents (the grandparents who didn't allow him in their home) let > us stay at their house for two days over Christmas because my brother > was getting married closeby. Afterwards my mother said, " We can't > believe how well did! What a change that was from this > summer. " There had not been a single incident while we were in their > home. (They had seen him in August, right before we started the > ALA. This was the family reunion where he destroyed the sand castles > and knocked over the game.) > > The other grandparents (who live just five minutes away) pulled my > husband aside privately to tell him that they didn't know what we > were doing for , but it was really working. > > My son's particular genuis/obsession is in the area of " how things > work " , from electronics to the human body to appliances. As a > special treat, we have allowed him to have an electric train in his > bedroom. He and his brother have built a double decker winding track > that has to be propped on blocks as it winds its way around their > bedroom and through the tunnels they have built from Legos, etc. At > my other son's birthday party, one of the guests went into the boys' > bedroom and destroyed the track. He threw the trains around the room > and bent and broke the track pieces. When we discovered it, > was understandably distraught. He had his hands over his ears like > he does when he is about to lose it, and I thought to myself, " This > is it. I am going to be holding this child in this bedroom for the > remainder of the party. I am going to miss seeing my other son blow > out his birthday candles... " I said to , " What did was > very wrong. He should not have done that to your train. Poppa knows > how to fix your train, but right now he is doing the games for > 's party. He can't fix it right now, but he can fix it after > the party. " Imagine my jaw dropping as my son wiped his eyes and ran > to join the line of children who were playing the next game. > > At Christmastime, my husband and I left the children with their > grandma while we went to an office party. She took the children to a > fast food restaurant and then to a church Christmas party. At the > party, there was a buffet dinner, and suddenly was on the > floor crying. Grandma asked him what was wrong, and he said, " The > line is too long. All the food will be gone before I get there. " > (Being able to vocalize what is wrong is a new skill for him. Before > the ALA he just screamed like an animal in distress when you asked > him what was wrong. We would just end up having to load him in the > car and take him home because he was so out of control.) Grandma > took him in the hall and said, " You already ate at the fast food > place, and there is a lot of food in there. There will still be food > when we get up to the serving tables. " He still looked sad, and > Grandma said, " I can take you home if you would like me to. What do > you want to do? " said, " I think I just need to decide to go > in there and have a good time. " And he dried his tears and trotted > off and there was not another problem that evening. > > We are not done with ALA. There are still symptoms of mercury > toxicity, but in just four months we have gone from almost unbearable > and intolerable to very workable. I am willing to have anyone > contact me who wants more information or details. > > Deborah Warner > ville, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 tears rolling down my cheeks! Tali --- <HMH95@...> wrote: > Deborah, > > Your post brought tears to my eyes. What a blessing > you are > receiving! Congratulations. > > > > > > > > > I feel the need to report at this time my son's > progress using ALA. > > > > Some background: received his MMR vaccine > at around 18 > > months of age. Five days later he was screaming > uncontrollably and > > had the classic measles rash all over his body. > He was refusing to > > move his arms, hands, neck or legs. He would not > reach for his > sippy > > cup when I held it out to him. If I put it to his > lips he would > suck > > like crazy - he was thirsty, but it hurt him so > badly to move that > he > > would not reach out for his cup. I contacted his > pediatrician and > > the office nurse immediately tried to blow the > situation off " This > > has nothing to do with his vaccination... " I took > him to the local > > health department because I wanted to pick up the > papers that say > > " call your doctor if... " because I knew that he > was experiencing > five > > of the eight things that I had been warned to > watch for and I was > > hoping that having some offical " proof " might help > me advocate for > my > > son at the pediatrician's office. > > > > I walked into the health department with my son > wearing only a > diaper > > as it was warm outside. This meant that the rash > on his body was > > fully exposed. As I stepped up to the counter, a > nurse behind the > > counter looked over and suddenly yelled, " Oh my > God, that child is > > having a reaction to his MMR vaccine! " > > > > With this nurse's validation in hand, I went > searching for a new > > pediatrician. The new pediatrician educated me on > the dangers of > > ever having my son receive this vaccination again, > but also warned > me > > that our state would force him to receive it > before admission to > > school at age five. She said that his reaction > was not considered > > " serious enough " to warrant an exemption. > Although she disagreed > > with the state's standards, she warned me to > expect a fight when I > > enrolled him in school. Luckily, I had already > begun homeschooling > > my older children, so this was a battle we never > had to fight. > > > > After he recovered from the obvious part of the > vaccine reaction, > > life went on, but something was wrong with my son > that I couldn't > > quite put my finger on. He was extremely bright, > with a gigantic > > vocabulary. At age three he told his friend that > Barney was > fiction, > > and when the friend's mother said, " Wow! I don't > think my three- > year- > > old even knows the word fiction " , said to > the mother, > > " Fiction means pretend " . > > > > We began to have serious troubles with his > reactions to other > > people. He would seriously injure someone, with a > blank look on > his > > face - he was not angry at them, nor did he feel > guilty that he had > > hurt anyone. It was as though he didn't even know > that he had hurt > > someone. Soon his church teachers were calling me > to ask for > advice, > > and I didn't know what to tell them. He stayed > in his church > > classes maybe two or three minutes before he was > off - racing > through > > the halls, around and around and around. The > energy was endless. > He > > stripped his clothes off in public. He shouted > out inappropriate > > things at inappropriate times. For example, when > the bishop came > to > > talk to the children's group about baptism, the > bishop asked, " Why > is > > it important for us to be baptized? " > yelled out at the > top > > of his lungs " PEANUT BUTTER AND JELLY! " > > > > Sound bothered him tremendously. The organ, the > piano, > > congregational singing, or even being in a large > crowd of children > > would have him on the floor writhing with his > hands over his ears. > > When he would sing along to the songs, he didn't > sing the > appropriate > > words. He was obsessed with potty words. So > while all the other > > children were sweetly singing " I am a child of > God " , he was singing > > (to the same tune) " pee, pee, pee, poop, poop, > poop " . > > > > Many people just thought that he was AD/HD and we > should just put > him > > on Ritalin. But there were things that just > didn't fit with this > > diagnosis. One was the silly grin he got on his > face whenever he > did > > one of these " behaviors " . I have other children, > and I know how > they > > look when they are caught doing something wrong: > guilty, > indignant, > > smug... but not blank eyes and an insane grin... > > > > People visiting our home was a nightmare. I would > spend the entire > > time holding my son in his bedroom so that others > in the family > could > > enjoy the social experience. As soon as my son > noticed someone at > > the door, he would race screeching around the > room, so loudly that > it > > was impossible to carry on a conversation with the > guest. Then > began > > the random hitting and pushing of guests or > siblings until I > carried > > him kicking from the room. The strangest thing > about these > incidents > > was that when I separated him, he would begin to > cry that he wanted > > to play with the friends that were there, he > didn't want to miss > the > > time with them. He wanted to interact, but didn't > know how. When > he > > wanted to play a game with someone, he would " ask " > by knocking > their > > game board over and then smiling insanely at them. > And he never > > understood why they got angry at him for that. He > would cry and > cry > > and cry. This summer his uncles built some > incredible sand castles > > at the lake: they were built like the Pueblo > Indians' adobe homes. > > thought they looked so cool and fun! He > wanted === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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