Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 Hey everyone, last time i posted i was very up set. We have now man a new game plan and i feel good about it. we are going into to see his one Ortho on Feb 22 to talk to her about his hip and see if they have got better. I will also ask her what she thinks about casting affecting his hips and walking and if we should do a hip/ torso cast. We have also contacted Shriners and i am waiting to hear back from them. I am hoping we are going to be able to get in and get another opinion before we go see his spine ortho on April 27th,this way if our local ortho doesnt want to cast Thaddeus we can call shriners and get a cast date asap. im feeling a lot better about everything.. and we have now got thaddeus to walk with a walker(old lady type walker) at PT and its going well. i wish he wouldnt fight so much but that just wouldnt be him. he is letting me help him with it at home but its hard because he does protest all the time. Thanks Everyone for everything. And Thanks to for helping me in the right direction Mommy to Thaddeus 2 years old In Brace 20 hours a day 45* Curve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 That's great, ! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: <candice_welch85@...>infantile scoliosis treatment Sent: Sat, January 29, 2011 2:46:30 PMSubject: Thaddeus Update Hey everyone, last time i posted i was very up set. We have now man a new game plan and i feel good about it. we are going into to see his one Ortho on Feb 22 to talk to her about his hip and see if they have got better. I will also ask her what she thinks about casting affecting his hips and walking and if we should do a hip/ torso cast. We have also contacted Shriners and i am waiting to hear back from them. I am hoping we are going to be able to get in and get another opinion before we go see his spine ortho on April 27th,this way if our local ortho doesnt want to cast Thaddeus we can call shriners and get a cast date asap. im feeling a lot better about everything.. and we have now got thaddeus to walk with a walker(old lady type walker) at PT and its going well. i wish he wouldnt fight so much but that just wouldnt be him. he is letting me help him with it at home but its hard because he does protest all the time. Thanks Everyone for everything. And Thanks to for helping me in the right direction Mommy to Thaddeus 2 years old In Brace 20 hours a day 45* Curve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 Great news about the new game plan for lil T. It might be helpful to present photos of the combo spica/edf cast to the doc, so please feel free to pull them off of Lilys Story. There are also a couple more mums here on CAST familiar w/ combo casts and may be able to provide you with great info/experience. Please keep us posted. HRH > > Hey everyone, > last time i posted i was very up set. We have now man a new game plan and i feel good about it. we are going into to see his one Ortho on > Feb 22 to talk to her about his hip and see if they have got better. I will also ask her what she thinks about casting affecting his hips and walking and if we should do a hip/ torso cast. > We have also contacted Shriners and i am waiting to hear back from them. I am hoping we are going to be able to get in and get another opinion before we go see his spine ortho on April 27th,this way if our local ortho doesnt want to cast Thaddeus we can call shriners and get a cast date asap. im feeling a lot better about everything.. and we have now got thaddeus to walk with a walker(old lady type walker) at PT and its going well. i wish he wouldnt fight so much but that just wouldnt be him. he is letting me help him with it at home but its hard because he does protest all the time. > > Thanks Everyone for everything. And Thanks to for helping me in the right direction > > > > Mommy to Thaddeus 2 years old > In Brace 20 hours a day 45* Curve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 That's great news. It is nice to know that more Canadian drs are doing the casting. Keeley Sent from my BlackBerry® wireless handheldFrom: <candice_welch85@...>Sender: infantile scoliosis treatment Date: Wed, 27 Apr 2011 22:05:14 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Thaddeus Update Hey,everything went really well today.We got there early so we could get our xrays done before everyone got there. they did a standing xray this time(1st time) so it definatly looked worse 68*ish. this was the fist time he said anything to us about the roatation and he said it was bad but couldnt give us a degree. we talked about the casting and he want us to go ahead soon so we are trying for may... probably the end of may. he said i will know within the next 2 weeks. Great news!!!Heres the catch... Thaddeus will be the first at BCCH to get a mehta cast!!! OMG!!! this worries me. Dr R used to do the risser cast 10 years ago but saw how it deformed kids ribs so they stopped. He was very against casting but after talking to DR D in SLC his mind changed at the seminar in halifax. he will be following the Mehta rules and will have the cut outs and everything. he will do an over the shoulder cast because he thinks it will help with his rotation.we will change the first cast in 2 months and see how thaddeus does. we may go a bit longer if he does well... because he is older.Thaddeus will have to spend the night in the hospital to make sure everything is ok with the cast. we discussed doing a solid block of cast to get the best benift. I am worried about Thaddeus being the first but i have total Faith in Dr R and think he know what he is doing. he has worked wonders for people so why not us. This could be a great for people in British Columbia Canada as thaddeus will be the pioneer for ET. I belive there will be more poeple who benifit for casting here. I think it would be a good idea to send some Pics to SLC of the cast once its done to make sure everything is ok. Dr R will be Talking with SLC as well to make sure we are doing everything we should be doing. Dr R wants to make sure we are working as a team especially with cast trimming and everything as we wont have all the answers at first.Im feeling really good about everything and cant wait to get our date Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 This is awesome news! <candice_welch85@...> wrote: >Hey, > >everything went really well today.We got there early so we could get our xrays done before everyone got there. they did a standing xray this time(1st time) so it definatly looked worse 68*ish. this was the fist time he said anything to us about the roatation and he said it was bad but couldnt give us a degree. we talked about the casting and he want us to go ahead soon so we are trying for may... probably the end of may. he said i will know within the next 2 weeks. Great news!!! > >Heres the catch... Thaddeus will be the first at BCCH to get a mehta cast!!! OMG!!! this worries me. Dr R used to do the risser cast 10 years ago but saw how it deformed kids ribs so they stopped. He was very against casting but after talking to DR D in SLC his mind changed at the seminar in halifax. he will be following the Mehta rules and will have the cut outs and everything. he will do an over the shoulder cast because he thinks it will help with his rotation.we will change the first cast in 2 months and see how thaddeus does. we may go a bit longer if he does well... because he is older.Thaddeus will have to spend the night in the hospital to make sure everything is ok with the cast. we discussed doing a solid block of cast to get the best benift. > >I am worried about Thaddeus being the first but i have total Faith in Dr R and think he know what he is doing. he has worked wonders for people so why not us. This could be a great for people in British Columbia Canada as thaddeus will be the pioneer for ET. I belive there will be more poeple who benifit for casting here. > >I think it would be a good idea to send some Pics to SLC of the cast once its done to make sure everything is ok. Dr R will be Talking with SLC as well to make sure we are doing everything we should be doing. > >Dr R wants to make sure we are working as a team especially with cast trimming and everything as we wont have all the answers at first. > >Im feeling really good about everything and cant wait to get our date > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 What awesome news!!!! > > Hey, > > everything went really well today.We got there early so we could get our xrays done before everyone got there. they did a standing xray this time(1st time) so it definatly looked worse 68*ish. this was the fist time he said anything to us about the roatation and he said it was bad but couldnt give us a degree. we talked about the casting and he want us to go ahead soon so we are trying for may... probably the end of may. he said i will know within the next 2 weeks. Great news!!! > > Heres the catch... Thaddeus will be the first at BCCH to get a mehta cast!!! OMG!!! this worries me. Dr R used to do the risser cast 10 years ago but saw how it deformed kids ribs so they stopped. He was very against casting but after talking to DR D in SLC his mind changed at the seminar in halifax. he will be following the Mehta rules and will have the cut outs and everything. he will do an over the shoulder cast because he thinks it will help with his rotation.we will change the first cast in 2 months and see how thaddeus does. we may go a bit longer if he does well... because he is older.Thaddeus will have to spend the night in the hospital to make sure everything is ok with the cast. we discussed doing a solid block of cast to get the best benift. > > I am worried about Thaddeus being the first but i have total Faith in Dr R and think he know what he is doing. he has worked wonders for people so why not us. This could be a great for people in British Columbia Canada as thaddeus will be the pioneer for ET. I belive there will be more poeple who benifit for casting here. > > I think it would be a good idea to send some Pics to SLC of the cast once its done to make sure everything is ok. Dr R will be Talking with SLC as well to make sure we are doing everything we should be doing. > > Dr R wants to make sure we are working as a team especially with cast trimming and everything as we wont have all the answers at first. > > Im feeling really good about everything and cant wait to get our date > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 ! Way to advocate for lil T. ~AND~ other kiddos in BC! This all sounds sooooo fabulous. If you stay in BC w/ Dr. R. lil T. is certainly the catalyst/trailblazer for others in the area! The fact that he is communicating w/ " the man " in SLC is wonderful! I am really excited for you guys! Please keep us posted on what day in May so we can all be sending our positive energy your way. Congrats . I know you have been working on this for a while. HRH > Hey, > > everything went really well today.We got there early so we could get our > xrays done before everyone got there. they did a standing xray this > time(1st time) so it definatly looked worse 68*ish. this was the fist time > he said anything to us about the roatation and he said it was bad but > couldnt give us a degree. we talked about the casting and he want us to go > ahead soon so we are trying for may... probably the end of may. he said i > will know within the next 2 weeks. Great news!!! > > Heres the catch... Thaddeus will be the first at BCCH to get a mehta > cast!!! OMG!!! this worries me. Dr R used to do the risser cast 10 years > ago but saw how it deformed kids ribs so they stopped. He was very against > casting but after talking to DR D in SLC his mind changed at the seminar > in halifax. he will be following the Mehta rules and will have the cut > outs and everything. he will do an over the shoulder cast because he > thinks it will help with his rotation.we will change the first cast in 2 > months and see how thaddeus does. we may go a bit longer if he does > well... because he is older.Thaddeus will have to spend the night in the > hospital to make sure everything is ok with the cast. we discussed doing a > solid block of cast to get the best benift. > > I am worried about Thaddeus being the first but i have total Faith in Dr R > and think he know what he is doing. he has worked wonders for people so > why not us. This could be a great for people in British Columbia Canada > as thaddeus will be the pioneer for ET. I belive there will be more poeple > who benifit for casting here. > > I think it would be a good idea to send some Pics to SLC of the cast once > its done to make sure everything is ok. Dr R will be Talking with SLC as > well to make sure we are doing everything we should be doing. > > Dr R wants to make sure we are working as a team especially with cast > trimming and everything as we wont have all the answers at first. > > Im feeling really good about everything and cant wait to get our date > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 ditto Shauna! > that is so great! I hope you soon have a date for the end of May. > Dr R I am sure will be meticulous and do everything absolutely perfect. > That he used to do Rissers before means he has a lot of experience in > casting kids, and this is just a more advanced cast. And if you need > anything after the cast is applied -- you don't have to go very far!!! So > great! Sorry to hear that the curve is now the high 60s. Curves that > high have been fixed before and I am sure that Dr R or Dr D'A in SLC would > both do a great job, which ever one you decide on, at getting that curve > down. > > Shauna > Kelsey, Kieran and 's mom > > >> >> >Hey, >> > >> >everything went really well today.We got there early so we could get >> our xrays done before everyone got there. they did a standing xray this >> time(1st time) so it definatly looked worse 68*ish. this was the fist >> time he said anything to us about the roatation and he said it was bad >> but couldnt give us a degree. we talked about the casting and he want >> us to go ahead soon so we are trying for may... probably the end of >> may. he said i will know within the next 2 weeks. Great news!!! >> > >> >Heres the catch... Thaddeus will be the first at BCCH to get a mehta >> cast!!! OMG!!! this worries me. Dr R used to do the risser cast 10 >> years ago but saw how it deformed kids ribs so they stopped. He was >> very against casting but after talking to DR D in SLC his mind changed >> at the seminar in halifax. he will be following the Mehta rules and >> will have the cut outs and everything. he will do an over the shoulder >> cast because he thinks it will help with his rotation.we will change >> the first cast in 2 months and see how thaddeus does. we may go a bit >> longer if he does well... because he is older.Thaddeus will have to >> spend the night in the hospital to make sure everything is ok with the >> cast. we discussed doing a solid block of cast to get the best benift. >> > >> >I am worried about Thaddeus being the first but i have total Faith in >> Dr R and think he know what he is doing. he has worked wonders for >> people so why not us. This could be a great for people in British >> Columbia Canada as thaddeus will be the pioneer for ET. I belive there >> will be more poeple who benifit for casting here. >> > >> >I think it would be a good idea to send some Pics to SLC of the cast >> once its done to make sure everything is ok. Dr R will be Talking with >> SLC as well to make sure we are doing everything we should be doing. >> > >> >Dr R wants to make sure we are working as a team especially with cast >> trimming and everything as we wont have all the answers at first. >> > >> >Im feeling really good about everything and cant wait to get our date >> >> > >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2011 Report Share Posted September 16, 2011 Great news about the wet suit! There are some really great charities out there. HRH > Hey Everyone, > > Its been a long time since i posted. We have now moved into our new place > and trying to get used to everything. Thaddeus Received his Dry suit last > weekend Thanks to a local Charity We testing it out and everything went > awesome! except for getting him in and out of the suit lol but with time > it will get easier I cant wait to get cast 2 off. Thaddeus is definatly > starting to smell. we had a accident the other week and man i cant wait > for it to go, also its been hot for the last few weeks and he is sweaty.We > are going in for Cast #3 on Sept 26 which is 10 weeks from our last cast > OMG! it is tight. We will be cutting it off on the Friday before and doing > a out of cast xray to see where we are at. I am praying he will be able to > do some more walking when the cast comes off but last time after 2 days > out of cast he wouldnt walk anymore i think because of the support he > was used to. Also Thaddeus is starting Soccer on Monday YAY should be a > blast. > > > > Mommy to Thaddeus > In cast 2 @ 38* down from 63* > > PS. you arnt on my FB anymore please add me agian > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.