Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Judy..I totally agree with you about Dr. Baker's book....I've had it on my night table now for about 6 months, and it's really dog-eared now. One thing to mention about trying to replace the calcium, etc. these kids need to help fight the effects of lead...sometimes (as I have unfortunately found in my son's case) the kids for some reason do not absorb calcium, even though they are being heavily supplemented. My son gets two glasses of calcium oj daily, 1 tablespoon of a liquid supplement, and then some of Kirkman's powdered calcium mixed into his nightly " ice cream " dessert...and HE'S STILL DEFICIENT. If I'm remembering correctly, according to Doctor's Data, it may be because he has malabsobtion, NO LACTOBACTILLUS (which I know is true in his case), or a deficiency of digestive acids (maybe for my poor kiddo, all of the above? :-( Just something to watch for and be aware of....good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Judy - I received this morning test results which show my daughter has increased lead--.6 on a scale of 0-.5. I am hoping this would be considered a " mild case of lead overload " as suggested in Dr. Baker's book (which I'm buying this weekend). I actually received another lab report which showed my daughter needed reduced glutathione. If you have put your little one on glutathione, from where did you obtain it? I don't have a doc yet, but may need to get one. You're right--I too wish I had learned of Jessi's problem earlier. She'll be 8 on Sunday. Thanks in advance, Carol in Florida Supplements of vitamin C, B vitamins and > reduced glutathione may be sufficient to get rid of lead in mild cases of > Lead overload. Various chelating agents are used when the problem is severe > or when there is a need to remove a number of heavy metals from the body. > > All of you who like me have no idea where to start healing your children or > yourselves I wish this is the book I would have got at the regional center 7 > years ago when Levi was diagnosed with possible Autism. Sid Baker has made > the discussion of " healing " easy for me to comprehend. I can understand what > happens when we get sick from strange foreign chemicals, all those dyes, fake > sugars, aged cheeses et. How the stuff effects us and what to do about it. He > explains the Detox subject in a way that makes the light go on in your head. > I wish I could say it better guys. This book has been a great gift to me. > Judy Braun > I hope he writes a book about amalgam removal by Thursday HAHA HA HA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Sydney,I just had my ICD replaced on Dec 19th as an outpatient. I am on blood thinners and was happy to hear that I only had to reduce my dosage rather than be completely off of the blood thinners. I went for a follow up this past Monday and I can resume normal activities. The last time I had to be off of the blood thinners it was multiple days in the hospital but things are always changing. I did not have to have any leads replaced.I thought it to be an easy process. Good luck with your surgery.Joe Schmidt God Loves Us All On Fri, Jan 13, 2012 at 6:56 PM, Sydney <konkontu2011@...> wrote: Hello Everyone, It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. Sydney ------------------------------------ Be sure to visit and use other ZapLife.org services: The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 I had my ICD replaced last year because of a low battery and the whole thing was pretty much a piece of cake. I did not have to have any leads replaced however, so I can’t speak to that part of it. Good luck. Brenta From: Sydney Sent: Friday, January 13, 2012 5:56 PM Subject: Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 That's great to hear. I'm glad that you are doing well. With any luck, my husband won't have to have his replaced for a few years.BonnieSent from my Samsung Epicâ„¢ 4G Touch --- Re: Lead Removal From: Joe Schmidt <glua.joe@...> CC: Sydney,I just had my ICD replaced on Dec 19th as an outpatient. I am on blood thinners and was happy to hear that I only had to reduce my dosage rather than be completely off of the blood thinners. I went for a follow up this past Monday and I can resume normal activities. The last time I had to be off of the blood thinners it was multiple days in the hospital but things are always changing. I did not have to have any leads replaced.I thought it to be an easy process. Good luck with your surgery.Joe Schmidt God Loves Us All On Fri, Jan 13, 2012 at 6:56 PM, Sydney <konkontu2011@...> wrote: Hello Everyone, It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. Sydney ------------------------------------ Be sure to visit and use other ZapLife.org services: The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Where r u located? I too have to have mine replaced probably by April and they want to remove a faulty fidelis lead at that time but I don't think I can go through with that, I am going to ask them to leave old lead in. My doc does a lot of removals but I am terrified...not of the replacement but the lead removal. Not much help, but in my case I am older and it is an option.Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jan 13, 2012, at 7:00 PM, "Brenta " <bdavis66@...> wrote: I had my ICD replaced last year because of a low battery and the whole thing was pretty much a piece of cake. I did not have to have any leads replaced however, so I can’t speak to that part of it. Good luck. Brenta From: Sydney Sent: Friday, January 13, 2012 5:56 PM Subject: Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012  Hi Judy, I am afraid too because it is a risky surgery. I had a a faulty fidelis lead also and when my doctor put in a new lead he left the fidelis in. So now there are two leads in the vein and they can not put in a third. My choices are to either have the leads removed or not have a functioning ICD. I am older also .... over 65. I am about 30 miles outside of Boston and the surgery will be done at Brigham and Womens' hospital in Boston. The most important thing is to be sure you are using a very experienced doctor to do the surgery. Sydney Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 I do know more and more are doing this surgery. It used to be only a few. Cleveland Clinic I think were the pioneers. I flew from Louisiana to Rochester, NY to confirm my diagnosis and they implanted icd/pacemaker. I believe I would choose only the best for the situation as well! I'm 61 and have long QT. I'm in an online support group for long qt'rs and have seen Cleveland mentioned a lot. Best of luck! I'm hoping in the future(for our younger friends, lol) there will be wireless technology. My 31 year old daughter also has icd/pacemaker for same:(JudiSent from my iPadOn Jan 13, 2012, at 8:47 PM, "Sydney" <konkontu2011@...> wrote:  Hi Judy, I am afraid too because it is a risky surgery. I had a a faulty fidelis lead also and when my doctor put in a new lead he left the fidelis in. So now there are two leads in the vein and they can not put in a third. My choices are to either have the leads removed or not have a functioning ICD. I am older also .... over 65. I am about 30 miles outside of Boston and the surgery will be done at Brigham and Womens' hospital in Boston. The most important thing is to be sure you are using a very experienced doctor to do the surgery. Sydney Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 But if you need additional sets in your future, it is best to remove them while you are young and while they have not been in too long. I am young (53) and am on my 4th ICD - original leads, my veins are small so when I need another set of leads I will have my old ones removed from an experienced Doc who specializes in this. I want them removed sooner rather than later, so I will have room for others when I am older... ~guin On 1/13/2012 6:04 PM, McIntosh wrote:  Where r u located?  I too have to have mine replaced probably by April and they want to remove a faulty fidelis lead at that time but I don't think I can go through with that, I am going to ask them to leave old lead in.  My doc does a lot of removals but I am terrified...not of the replacement but the lead removal.  Not much help, but in my case I am older and it is an option. Judi McIntosh, President/CEO Swimsational Swim School, LLC www.swimsational.net On Jan 13, 2012, at 7:00 PM, "Brenta " <bdavis66@...> wrote:  I had my ICD replaced last year because of a low battery and the whole thing was pretty much a piece of cake. I did not have to have any leads replaced however, so I can’t speak to that part of it. Good luck. Brenta  From: Sydney Sent: Friday, January 13, 2012 5:56 PM Subject: Lead Removal   Hello Everyone, It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Good Morning All hope all is well with everyone. and a HAPPY NEW YEAR !!! I have heard that changing leads is a tricky business, and have been told ot use either a EP or a thoratic surgon. these drs are the most experience to do such work, just in case something goes wrong. noticed i said just in case. not that anything will but i would want the best doing this work, Am on my second ICD now. no zaps lately thank you Lord lol . My dr wont put me on blood thinners just said to take a asprin everyday. so what the hell why not lol. take a 325mg. not the low dosage per dr advice. i take the coated ones since my stomach is sensitive, had ableeding uncler one time that broke open, not sure if that was more scary or having my first heart attack., scared the livng B-G-Bees out of me. lol. so not sure what is worse. lol anyway like i said i would use a experienced EP dr or a thoratic surgon to do the replacement. Take Care all and lets get a new President this year God knows we need one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Thanks . I will check and see if the surgeon recommended is a thoracic surgeon. My cardiologist said that he is one of the few in the area who does the removals and that he is very experienced. Sydney Re: Lead Removal Good Morning All hope all is well with everyone. and a HAPPY NEW YEAR !!! I have heard that changing leads is a tricky business, and have been told ot use either a EP or a thoratic surgon. these drs are the most experience to do such work, just in case something goes wrong. noticed i said just in case. not that anything will but i would want the best doing this work, Am on my second ICD now. no zaps lately thank you Lord lol . My dr wont put me on blood thinners just said to take a asprin everyday. so what the hell why not lol. take a 325mg. not the low dosage per dr advice. i take the coated ones since my stomach is sensitive, had ableeding uncler one time that broke open, not sure if that was more scary or having my first heart attack., scared the livng B-G-Bees out of me. lol. so not sure what is worse. lol anyway like i said i would use a experienced EP dr or a thoratic surgon to do the replacement. Take Care all and lets get a new President this year God knows we need one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012  That does sound like a good idea. Mine have both been in for over 5 years. Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012  Hi Judi, I am surprised they don't have some sort of wireless technology yet. I bet they are working on it because this is a problem most ICD users will face at some point. Sydney Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 My doc also told me that if i do it, He has cardiac surgeons in operating room always "if ever needed". Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jan 14, 2012, at 9:19 AM, "Sydney" <konkontu2011@...> wrote:  Hi Judi, I am surprised they don't have some sort of wireless technology yet. I bet they are working on it because this is a problem most ICD users will face at some point. Sydney Lead Removal Hello Everyone,It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Hi - Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks. That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm. I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-) Don't know if that helps. - Roxe ICD since 1996 > > Hello Everyone, > It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. > > I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. > > Sydney > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD.My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi - Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks. That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm. I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-) Don't know if that helps. - Roxe ICD since 1996 > > Hello Everyone, > It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. > > I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. > > Sydney > ------------------------------------ Be sure to visit and use other ZapLife.org services: The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 These new devices are almost spooky! Recently, unbeknownst to me, mine contacted my dr’s office to let them know I was in atrial fibrillation. They called about the time I figured out that something was amiss and was getting ready to call them. I’m so grateful to have it, but it really does spook me a little bit. I’m wary of machines that are smarter than me, so I’m wary alot these days! Brenta From: Joe Schmidt Sent: Saturday, January 14, 2012 12:41 PM Subject: Re: Re: Lead Removal For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD. My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi -Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks.That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm.I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-)Don't know if that helps.- RoxeICD since 1996>> Hello Everyone,> It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.>> I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.>> Sydney>------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=11 - Email list forum at /2 - Email delivery of the Zapper Newsletter at 2/3 - Email list forum for those involved in ICD litigation at 3/ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htmThe ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 What kind of device do you have and when did you get the "smarty" one, lol?Judi McIntosh, President/CEOSwimsational Swim School, LLCwww.swimsational.netOn Jan 14, 2012, at 12:47 PM, "Brenta " <bdavis66@...> wrote: These new devices are almost spooky! Recently, unbeknownst to me, mine contacted my dr’s office to let them know I was in atrial fibrillation. They called about the time I figured out that something was amiss and was getting ready to call them. I’m so grateful to have it, but it really does spook me a little bit. I’m wary of machines that are smarter than me, so I’m wary alot these days! Brenta From: Joe Schmidt Sent: Saturday, January 14, 2012 12:41 PM Subject: Re: Re: Lead Removal For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD. My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi -Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks.That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm.I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-)Don't know if that helps.- RoxeICD since 1996>> Hello Everyone,> It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.>> I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.>> Sydney>------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=11 - Email list forum at /2 - Email delivery of the Zapper Newsletter at 2/3 - Email list forum for those involved in ICD litigation at 3/ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htmThe ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 I have a Medtronic combination pacemaker and ICD. It was replaced last year because of a low battery and I was given a new transmitter that automatically interrogates my device on some schedule of my dr’s while I’m sleeping. They told me it is wireless and could communicate with them if I was having a problem but I didn’t pay alot of attention at the time. They were telling the truth! Brenta From: McIntosh Sent: Saturday, January 14, 2012 12:55 PM Subject: Re: Re: Lead Removal What kind of device do you have and when did you get the "smarty" one, lol?Judi McIntosh, President/CEO Swimsational Swim School, LLC www.swimsational.net On Jan 14, 2012, at 12:47 PM, "Brenta " <bdavis66@...> wrote: These new devices are almost spooky! Recently, unbeknownst to me, mine contacted my dr’s office to let them know I was in atrial fibrillation. They called about the time I figured out that something was amiss and was getting ready to call them. I’m so grateful to have it, but it really does spook me a little bit. I’m wary of machines that are smarter than me, so I’m wary alot these days! Brenta From: Joe Schmidt Sent: Saturday, January 14, 2012 12:41 PM Subject: Re: Re: Lead Removal For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD. My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi -Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks.That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm.I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-)Don't know if that helps.- RoxeICD since 1996>> Hello Everyone,> It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.>> I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.>> Sydney>------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=11 - Email list forum at /2 - Email delivery of the Zapper Newsletter at 2/3 - Email list forum for those involved in ICD litigation at 3/ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htmThe ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012  Hi Brenta, I hope I get one of those this time around. Sydney Re: Re: Lead Removal For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD. My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi -Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks.That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm.I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-)Don't know if that helps.- RoxeICD since 1996>> Hello Everyone,> It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.>> I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.>> Sydney>------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=11 - Email list forum at /2 - Email delivery of the Zapper Newsletter at 2/3 - Email list forum for those involved in ICD litigation at 3/ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.htmlZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htmThe ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 For what it is worth it is possible to register the ICD at Medtronic and receive an email when a transmission is received. I think this can be setup on the new wireless ICD's or the older Medtronic ICDs. It was reassuring to receive and email to be sure that my transmission had been received. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 2:22 PM, Brenta <bdavis66@...> wrote: I have a Medtronic combination pacemaker and ICD. It was replaced last year because of a low battery and I was given a new transmitter that automatically interrogates my device on some schedule of my dr’s while I’m sleeping. They told me it is wireless and could communicate with them if I was having a problem but I didn’t pay alot of attention at the time. They were telling the truth! Brenta From: McIntosh Sent: Saturday, January 14, 2012 12:55 PM Subject: Re: Re: Lead Removal What kind of device do you have and when did you get the " smarty " one, lol?Judi McIntosh, President/CEO Swimsational Swim School, LLC www.swimsational.net On Jan 14, 2012, at 12:47 PM, " Brenta " <bdavis66@...> wrote: These new devices are almost spooky! Recently, unbeknownst to me, mine contacted my dr’s office to let them know I was in atrial fibrillation. They called about the time I figured out that something was amiss and was getting ready to call them. I’m so grateful to have it, but it really does spook me a little bit. I’m wary of machines that are smarter than me, so I’m wary alot these days! Brenta From: Joe Schmidt Sent: Saturday, January 14, 2012 12:41 PM Subject: Re: Re: Lead Removal For what it is worth I have a Fidelis lead and it was reused during the recent replacement of the ICD. My ICD was placed on my right side when I understand that most people have theirs on the left side. I'm not a doctor but I guess they could put the ICD on the opposite side if necessary. My hope is that in another six years or so years when I need the next replacement that they have a wireless ICD. I have learned to never try to out guess the doctors until I get my MD degree. I do check stuff to try to understand. what they are saying and develop my list of questions. I think this has been out for awhile but my new ICD communicates wirelessly to the Carelink monitor so I don't have to remember to do a manual monitoring. I didn't think that was a big deal but the doctor can also set conditions which will cause the ICD to contact Medtronic, so it is a two way communication. Who knows how smart the ICD will be in the future. Joe SchmidtGod Loves Us All On Sat, Jan 14, 2012 at 12:59 PM, rm_reppin <roxe@...> wrote: Hi -Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks.That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm.I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-)Don't know if that helps.- RoxeICD since 1996>> Hello Everyone,> It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group.>> I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery.>> Sydney>------------------------------------Be sure to visit and use other ZapLife.org services:The ZapperBBS at http://zaplife.org/phpBB2/viewforum.php?f=1 1 - Email list forum at / 2 - Email delivery of the Zapper Newsletter at 2/ 3 - Email list forum for those involved in ICD litigation at 3/ ZapChat - Real time online support group (Thursdays 8PM EST) at http://www.zaplife.org/chat.html ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at http://www.zaplife.org/zap4.htm The ZAPPER Home page at http://www.zaplife.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 I agree with whole heartedly -- PUN intended.... I have discussed this at length with my Doc at Stanford Hospital. y EP is experienced with removing leads with laser, however he only operates with a Thoracic surgeon with him, in case there is a problem they can get it sorted out quickly... Notice I chose my words carefully... He said there is only abut a 1% (1 on 100).... ~guin On 1/14/2012 6:34 AM, wrote: Good Morning All hope all is well with everyone. and a HAPPY NEW YEAR !!! I have heard that changing leads is a tricky business, and have been told ot use either a EP or a thoratic surgon. these drs are the most experience to do such work, just in case something goes wrong. noticed i said just in case. not that anything will but i would want the best doing this work, Am on my second ICD now. no zaps lately thank you Lord lol . My dr wont put me on blood thinners just said to take a asprin everyday. so what the hell why not lol. take a 325mg. not the low dosage per dr advice. i take the coated ones since my stomach is sensitive, had ableeding uncler one time that broke open, not sure if that was more scary or having my first heart attack., scared the livng B-G-Bees out of me. lol. so not sure what is worse. lol anyway like i said i would use a experienced EP dr or a thoratic surgon to do the replacement. Take Care all and lets get a new President this year God knows we need one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 ** Mine have been in for over 12 years and am told they could last 20 years... When put in they said 15 years...  We shall see. Yes, I too will be afraid....On 1/14/2012 7:12 AM, Sydney wrote:   That does sound like a good idea. Mine have both been in for over 5 years.   Lead Removal   Hello Everyone, It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 Sounds interesting Rox but when you have two and sometimes three leads for each of your devices, and you need say even three sets in your life time, assuming each set will last 15 years -- that is 9 leads -- really where will they put them all, when they need to attached at a specific place in the heart? I'd rather get them out and no impede blood flow... I too was wishing for wireless but my engineering husband said the energy need a lead to transmit therapy to a specif part of the heart.... Oh well.... As Wireless as it is going to get is remote monitoring.... ~guin On 1/14/2012 9:59 AM, rm_reppin wrote: Hi - Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks. That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm. I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-) Don't know if that helps. - Roxe ICD since 1996 > > Hello Everyone, > It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. > > I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. > > Sydney > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 I’m lucky as I only need one lead for my device. Unfortunately there was an advisory on the last one as well, so they’ve just disconnected it and put in the Fidelis. As I understand it kids with ICDs really have it rough – as they grow the leads have to be replaced if for no other reason than insufficient length! I’m still at least a year off from having to have things replaced, so I’m hoping to ignore the question of removal for a while longer. ;-) From: Guin Van Dyke [mailto:guin@...] Sent: Saturday, January 14, 2012 8:17 PM Cc: rm_reppin Subject: Re: Re: Lead Removal Sounds interesting Rox but when you have two and sometimes three leads for each of your devices, and you need say even three sets in your life time, assuming each set will last 15 years -- that is 9 leads -- really where will they put them all, when they need to attached at a specific place in the heart? I'd rather get them out and no impede blood flow... I too was wishing for wireless but my engineering husband said the energy need a lead to transmit therapy to a specif part of the heart.... Oh well.... As Wireless as it is going to get is remote monitoring.... ~guin On 1/14/2012 9:59 AM, rm_reppin wrote: Hi - Not sure this is exactly the same, but I had a lead repositioned after about 3 months. The lead wasn't completely removed, but was de-inserted (?!?) and reinseted in a different location. I seemed to throw a lot of PVCs, and felt pretty crummy in general for about 4 weeks. That said, it was back in 2005 and I'd received a bunch of inappropriate shocks in a very short time (which led to the repositioning). I didn't have any additional meds to address the PVCs (which I'm guessing were due to irritation after the lead was removed and reinserted) -- if the lead had been in for longer than a few months I'm guessing the recovery might have been a little different; plus I don't know how much of it was psychological stuff left over from the ICD storm. I'm probably due for an ICD and Fidelis lead replacement. They've mentioned something about capping the Fidelis lead and if there's not enough room for yet another lead, just moving everything over to the other side (right side). (I've already got 1 capped lead in place.) When the time comes, I'd rather they leave the Fidelis lead in place, cap it and put another one in. Not thrilled about the possibility of moving everything over to the other side either though -- I'm hoping they can stick just 1 more lead in! :-) Don't know if that helps. - Roxe ICD since 1996 > > Hello Everyone, > It has been a while since I have seen a post on the list. I hope you are all doing well. I forgot to change my email address for the group. > > I have to have a replacement ICD, but first I will have to have two leads removed. There are only a couple of doctors in my area who do the procedure. I have a consultation with the one my cardiologist recommended on Feb 29th. I would love to hear about the procedure and the recovery and such from anyone who has undergone the surgery. > > Sydney > Quote Link to comment Share on other sites More sharing options...
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