Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 In a message dated 30/12/2009 16:44:26 GMT Standard Time, mark.grabiec@... writes: Also had a very good Christmas, coped brilliantly. Result! >>Awesome! Mx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hi Steph, " His inflammation is reduced from 2006 (hurrah). " This is brilliant news ! Is a lot of it down to Gaps then? in addition to the medication/supps? " His main problem is motility and IBS (related). " What does Dr Fell recommend here then ? His general IBS is reduced a bit since we started risperidone (and he's still gaining weight, yay! > No signs of reflux damage showed which surprised me as he has reflux big time at present - burping, hiccoughing, rubbing upper chest etc. So still plenty to work on but very good news that he's a bit better than he was > Also had a very good Christmas, coped brilliantly. Result! Really pleased for Tom and the whole family ! BW Nina > > xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Dear Steph The reflux burping issue is something we see in Tatijana... says that it stems from DDs diaphragm not siting properly on her stomach... so food is not progressing along colon properly... She is certainly getting better with the TST... and the follow on from incorrect positioning of diaphragm on stomach can be poor motility. What is really interesting is that the only way Tash releases her burps is by rubbing her chest gently until the burp is released.. Our advantage is that as she is NT we can clearly understand how she feels and what happens when she rubs her chest. There is a big issue between pharma co and holistic views on reflux etc.. pharmaco likes to dish out antacids which alkali the system and so the body creates more acid... The holistic approach is to improve motility Excellent news about your progress.. a lovely New Year's gift .. perfect Best wishes Tracey On Wed, Dec 30, 2009 at 6:29 PM, <Mum231ASD@...> wrote: In a message dated 30/12/2009 16:44:26 GMT Standard Time, mark.grabiec@... writes: Also had a very good Christmas, coped brilliantly. Result! >>Awesome! Mx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 2009/12/30 <Mum231ASD@...> In a message dated 30/12/2009 16:44:26 GMT Standard Time, mark.grabiec@... writes: Also had a very good Christmas, coped brilliantly. Result! >>Awesome! MxWell done! Mine was ok i guess still a bit much with the socialising.-- is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 the only suggestion we have for motitility is movicol. Which is fine up to a point but my worry is that we create a muscle that forgets how to work. so no suggestions from Dr F on this one other than movicol and we're looking at curcumin again and other things that " tone " . SCD/GAPS - not sure. We didnt' see the positives that most do whilst we were following it religiously. What's helped is him being hungrier, eating more, being better nourished. eating was a real chore for him, as though that message never reached his brain. So we're about 70% GAPS now and would say that GAPS plus chips (or equiv) is what's helping. Good food but some simpler carbs in there too. Of course if it's IBS then we'd need to cut down on brocolli and thinks that he likes. One for the new year! all best Steph x > > Hi Steph, > > " His inflammation is reduced from 2006 (hurrah). " > > This is brilliant news ! Is a lot of it down to Gaps then? in addition to the medication/supps? > > " His main problem is motility and IBS (related). " > > What does Dr Fell recommend here then ? > > His general IBS is reduced a bit since we started risperidone (and he's still gaining weight, yay! > > No signs of reflux damage showed which surprised me as he has reflux big time at present - burping, hiccoughing, rubbing upper chest etc. So still plenty to work on but very good news that he's a bit better than he was > > Also had a very good Christmas, coped brilliantly. Result! > > > Really pleased for Tom and the whole family ! > BW Nina > > > > > > > xx > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 We do give Tom gaviscon - wonder if that's not helping. His burping is most pronounced just before bed. In fact last night I kept him up for an extra hour as I didn't want to even recline him in bed, the burping and gulping was so bad. Perhaps we should feed him a lot earlier. > > > > > > > In a message dated 30/12/2009 16:44:26 GMT Standard Time, > > mark.grabiec@... writes: > > > > Also had a very good Christmas, coped brilliantly. Result! > > > > >>Awesome! > > Mx > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 What a fantastic New Year's present to hear good news about Tom. Thanks for sharing. Here's to lots more in 2010. xxx Glad your xmas was ok is. Hope they get better and better - one step at a time and xmas has got to be one of the most difficult times for people with ASD so well done for the progress xxx is wrote: > > > > 2009/12/30 <Mum231ASD@... <mailto:Mum231ASD@...>> > > > > In a message dated 30/12/2009 16:44:26 GMT Standard Time, > mark.grabiec@... <mailto:mark.grabiec@...> writes: > > Also had a very good Christmas, coped brilliantly. Result! > > >>Awesome! > Mx > > > Well done! Mine was ok i guess still a bit much with the socialising. > > -- > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Yes, I agree, need to revisit betaine and pepsin. thanks Sara xx > > > > > > > > > > > > > > > In a message dated 30/12/2009 16:44:26 GMT Standard Time, > > > > mark.grabiec@ writes: > > > > > > > > Also had a very good Christmas, coped brilliantly. Result! > > > > > > > > >>Awesome! > > > > Mx > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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