Re: Hi from a new CAST group member!

[Guest guest]

She will definately get to moving around better. My son was just about to walk

at 13 mos and was then casted. He could do nothing at first. He learned to

roll over, sit up, crawl and walk run and jump all in his cast! It does get

better I promise. She is probably just getting used to the brace right now and

once she masters that cast life will be easier for her to pick up skills

quicker. Don't worry it gets better and casting is not so bad after all. We

are currently on our last cast #7 and I'm nervous how my son will react w/o it!

Welcome to our group! Everyone on here is awesome and has great advice so ask

away!

juliechafin2005 <juliechafin2005@...> wrote:

>Hello,

>Just wanted to say hi and to introduce myself and my daughter to the group. My

name is and I am the mom of a 14 month-old little girl named Abby who has

progressive ideopathic infantile scoliosis. her curve is 48 degrees. She is

scheduled for her first cast to be applied on November 9th. She is currently

wearing a brace until her casting procedure. I am new to all of this. We only

found out in August about her Scoliosis. And it is heartbreaking watching her

trying to move around and struggle to sit up and all of that. She was not yet

walking before the brace. Her physical therapist thinks that her walking delay

is due to her curve making her off balance. But, now I feel like she has lost

all of her other movements too. She used to crawl all over the house and pull

up on furniture and walk around the couch while holding on. She could go

anywhere she wanted to. Now, it is all she can do just to roll over from her

back to her belly. It makes me feel so helpless. I cry every day watching her

struggle. And I know that the cast will be no better. I know she will

struggle. But, it is necessary. And I know that I am doing what is best for

her. It just breaks my heart to look into her big blue eyes and see sadness

because she wants to move around and play. Any words of encouragement? Will

she get better at moving around?

>

[Guest guest]

Hi . Welcome to the CAST Support Group! I wanted to let you know

that a properly applied series of EDF (elongation, derotation, flexion)

plaster casts, will be more comfortable and more effective in treating

your babes progressive infantile scoliosis than a brace. Please have your

darling treated by a doc that has 1st hand experience with Early

Treatment, EDF, and Dr. Mehtas principles.

Please read " Growth as a corrective force in the Early Treatment of

progressive infantile scoliosis, " by Mehta. This published journal will

teach you about the principles of ET and will show exactly what a Mehta

cast should look like.

Keep the questions coming!

Sincerely,

HRH

> Hello,

> Just wanted to say hi and to introduce myself and my daughter to the

> group. My name is and I am the mom of a 14 month-old little girl

> named Abby who has progressive ideopathic infantile scoliosis. her curve

> is 48 degrees. She is scheduled for her first cast to be applied on

> November 9th. She is currently wearing a brace until her casting

> procedure. I am new to all of this. We only found out in August about

> her Scoliosis. And it is heartbreaking watching her trying to move around

> and struggle to sit up and all of that. She was not yet walking before

> the brace. Her physical therapist thinks that her walking delay is due to

> her curve making her off balance. But, now I feel like she has lost all

> of her other movements too. She used to crawl all over the house and pull

> up on furniture and walk around the couch while holding on. She could go

> anywhere she wanted to. Now, it is all she can do just to roll over from

> her back to her belly. It makes me feel so helpless. I cry every day

> watching her struggle. And I know that the cast will be no better. I

> know she will struggle. But, it is necessary. And I know that I am doing

> what is best for her. It just breaks my heart to look into her big blue

> eyes and see sadness because she wants to move around and play. Any words

> of encouragement? Will she get better at moving around?

>

>

[Guest guest]

HI ,

My daughter Noelle didn't take her first steps until she was 14 months old. She was casted at 18 months with a right thoracic curve b/t 45-50 degrees. She has been able to do all the things other kids do. The cast may actually be more comfy than the brace because it really molds to the body. This is such an emotional journey, especially in the beginning. Please let me know if you would like to chat....... - Noelle's mommy, 3 1/2 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: juliechafin2005 <juliechafin2005@...>Subject: Hi from a new CAST group member!infantile scoliosis treatment Date: Monday, October 18, 2010, 2:15 PM

Hello,Just wanted to say hi and to introduce myself and my daughter to the group. My name is and I am the mom of a 14 month-old little girl named Abby who has progressive ideopathic infantile scoliosis. her curve is 48 degrees. She is scheduled for her first cast to be applied on November 9th. She is currently wearing a brace until her casting procedure. I am new to all of this. We only found out in August about her Scoliosis. And it is heartbreaking watching her trying to move around and struggle to sit up and all of that. She was not yet walking before the brace. Her physical therapist thinks that her walking delay is due to her curve making her off balance. But, now I feel like she has lost all of her other movements too. She used to crawl all over the house and pull up on furniture and walk around the couch while holding on. She could go anywhere she wanted to. Now, it is all she can do just to roll over from her back to her belly. It

makes me feel so helpless. I cry every day watching her struggle. And I know that the cast will be no better. I know she will struggle. But, it is necessary. And I know that I am doing what is best for her. It just breaks my heart to look into her big blue eyes and see sadness because she wants to move around and play. Any words of encouragement? Will she get better at moving around?

[Guest guest]

Hi ,

My daughter took her first independent steps at closer to 18 months. She is now

almost 23 months and walking. The cast actually helped her balance tremendously.

Her doctor felt she was overcompensating for the 52* curve in her back by

rolling in on her ankles to achieve a better sense of balance. However she

wasn't using the right muscles so sh had very little endurance. The cast along

with some ankle supports have led to my dream of seeing my daughter walk across

the room all by herself come true. We are 1 month into our first cast and by the

end of the first week she was doing all the things she used to. Crawling,

cruising, pulling herself up, sitting, bending, rolling over, etc. It was an

adjustment but she got used to it and so did we. It was way harder on us

parents. The cast doens't even really bother her right now. I am sure that will

change as we get closer to cast removal and she grows. Hang in there and know

that you can do this and your daughter will surprise you.

,

Kiya, 22 months, 52* out of cast down to 15* in 1st cast, Chicago Shriners

>

>

> From: juliechafin2005 <juliechafin2005@...>

> Subject: Hi from a new CAST group member!

> infantile scoliosis treatment

> Date: Monday, October 18, 2010, 2:15 PM

>

>

>  

>

>

>

> Hello,

> Just wanted to say hi and to introduce myself and my daughter to the group. My

name is and I am the mom of a 14 month-old little girl named Abby who has

progressive ideopathic infantile scoliosis. her curve is 48 degrees. She is

scheduled for her first cast to be applied on November 9th. She is currently

wearing a brace until her casting procedure. I am new to all of this. We only

found out in August about her Scoliosis. And it is heartbreaking watching her

trying to move around and struggle to sit up and all of that. She was not yet

walking before the brace. Her physical therapist thinks that her walking delay

is due to her curve making her off balance. But, now I feel like she has lost

all of her other movements too. She used to crawl all over the house and pull up

on furniture and walk around the couch while holding on. She could go anywhere

she wanted to. Now, it is all she can do just to roll over from her back to her

belly. It makes me feel

> so helpless. I cry every day watching her struggle. And I know that the cast

will be no better. I know she will struggle. But, it is necessary. And I know

that I am doing what is best for her. It just breaks my heart to look into her

big blue eyes and see sadness because she wants to move around and play. Any

words of encouragement? Will she get better at moving around?

>

[Guest guest]

Many parents will agree that a properly applied series of EDF/ Mehta casts

are far more comfortable & effective than any brace has ever been for

their child. A properly applied EDf should allow your darling to pass all

milestones on time. Walking, jumping, running, sitting, etc....

HRH

> Hi . Welcome to the CAST Support Group! I wanted to let you know

> that a properly applied series of EDF (elongation, derotation, flexion)

> plaster casts, will be more comfortable and more effective in treating

> your babes progressive infantile scoliosis than a brace. Please have your

> darling treated by a doc that has 1st hand experience with Early

> Treatment, EDF, and Dr. Mehtas principles.

> Please read " Growth as a corrective force in the Early Treatment of

> progressive infantile scoliosis, " by Mehta. This published journal will

> teach you about the principles of ET and will show exactly what a Mehta

> cast should look like.

> Keep the questions coming!

> Sincerely,

> HRH

>

>> Hello,

>> Just wanted to say hi and to introduce myself and my daughter to the

>> group. My name is and I am the mom of a 14 month-old little girl

>> named Abby who has progressive ideopathic infantile scoliosis. her

>> curve

>> is 48 degrees. She is scheduled for her first cast to be applied on

>> November 9th. She is currently wearing a brace until her casting

>> procedure. I am new to all of this. We only found out in August about

>> her Scoliosis. And it is heartbreaking watching her trying to move

>> around

>> and struggle to sit up and all of that. She was not yet walking before

>> the brace. Her physical therapist thinks that her walking delay is due

>> to

>> her curve making her off balance. But, now I feel like she has lost all

>> of her other movements too. She used to crawl all over the house and

>> pull

>> up on furniture and walk around the couch while holding on. She could

>> go

>> anywhere she wanted to. Now, it is all she can do just to roll over

>> from

>> her back to her belly. It makes me feel so helpless. I cry every day

>> watching her struggle. And I know that the cast will be no better. I

>> know she will struggle. But, it is necessary. And I know that I am

>> doing

>> what is best for her. It just breaks my heart to look into her big blue

>> eyes and see sadness because she wants to move around and play. Any

>> words

>> of encouragement? Will she get better at moving around?

>>

>>

>

>

>

[Guest guest]

Hello , welcome to CAST!I can say from our experience that the first cast is hard, but so worth every second! You may find out after Abby adjusts to the cast- maybe in 2-3 weeks, but usually better every day- she will move better than she currently is. We wish we had started just a few months younger- our son was 19 months at first casting- we would be well done with casts by now. Take heart that you can harness the natural rapid growth phase under age 2 - and ask any and all questions of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: juliechafin2005 <juliechafin2005@...>infantile scoliosis treatment Sent: Mon, October 18, 2010 7:15:51 AMSubject: Hi from a new CAST group member!

Hello,

Just wanted to say hi and to introduce myself and my daughter to the group. My name is and I am the mom of a 14 month-old little girl named Abby who has progressive ideopathic infantile scoliosis. her curve is 48 degrees. She is scheduled for her first cast to be applied on November 9th. She is currently wearing a brace until her casting procedure. I am new to all of this. We only found out in August about her Scoliosis. And it is heartbreaking watching her trying to move around and struggle to sit up and all of that. She was not yet walking before the brace. Her physical therapist thinks that her walking delay is due to her curve making her off balance. But, now I feel like she has lost all of her other movements too. She used to crawl all over the house and pull up on furniture and walk around the couch while holding on. She could go anywhere she wanted to. Now, it is all she can do just to roll over from her back to her belly. It

makes me feel so helpless. I cry every day watching her struggle. And I know that the cast will be no better. I know she will struggle. But, it is necessary. And I know that I am doing what is best for her. It just breaks my heart to look into her big blue eyes and see sadness because she wants to move around and play. Any words of encouragement? Will she get better at moving around?