Pain Meds

March 28, 2008

Wow,.......You've been through a lot. I guess I'm lucky my rhuematologist has

arthritis herself and understands what it's like to be in pain. It was a god

send me finding her. After the first consultation she was more than willing to

prescibe me pain meds to help deal with this.

Celeste

March 29, 2008

Celeste

We are both lucky My rheumy actually has PA so I am double lucky. It is so great

when the physician can truly relate to your problem.

<msnancyanne@...>

March 30, 2008

,

I found her through my aunt who has severe fibromyalgia. I had went to one

rheumatologist who basically told me he thought I had lupus but since I didn't

show all the signs he wasn't sure. He offered no additional testing and blew me

off telling me if the pain gets worse come back. I went to my PCP 6 weeks later

and told him I was fed up with it all and really pissed about being blew off and

I couldn't take the pain any longer. He suggest another opinion and I talked to

my aunt about where she went and decided to try them. It's a specialty clinic

that deals with a lot of cutting edge stuff and even does a lot of clinical

testing.

I am so thankful I haven't had to deal with all the crap that alot have it's

just so sad that some have to go through such stuff.

Celeste

March 30, 2008

Yes I know about the pain thing, all I get is some Hydrcodone and some Lyrica! I

just want to feel half way normal again!

Bill Middleton <middleton.bill@...>

March 31, 2008

Tracey -

I used to take Ultram at night and sometimes during the day. It didn't

make me as " looped " as Percocet and meds like it, and I could tolerate

it better than most morphine-based drugs. I finally stopped using it

because it gave me migraines. Go figure!

Jackie

August 18, 2008

Dr. Skip Lenz has said Darvocet is compatible with LDN. I believe

Crystal will vouch for this.

Art

--

>

> I spoke with a prescriber today that that is both a Naturopath and a

MD he said he had good success with LDN on MS patients but that it was

not as effective on lung cancer. My wife who has severe arthritis

takes Vicadin and Hydrocodone this Doctor who is also trained in pain

management said there is nothing that would replace these narcotics to

relieve her pain and that LDN would not be best for her. He refered me

to another Naturopath who specializes in cancer

> Lon

>

August 19, 2008

Yes thats true Art...I take Darvocet with LDN and Dr Skip had told me it was ok...

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 11 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] Re: Pain meds

Dr. Skip Lenz has said Darvocet is compatible with LDN. I believe Crystal will vouch for this.Art-->> I spoke with a prescriber today that that is both a Naturopath and a MD he said he had good success with LDN on MS patients but that it was not as effective on lung cancer. My wife who has severe arthritis takes Vicadin and Hydrocodone this Doctor who is also trained in pain management said there is nothing that would replace these narcotics to relieve her pain and that LDN would not be best for her. He refered me to another Naturopath who specializes in cancer> Lon>

August 19, 2008

I'm just curious. It's a relief to know there's a painkiller that we

can take but, why is it okay to take Darvocet? Isn't it an opiate

like Percocet,Vicodin, etc.?

Thanks.

Toni

August 19, 2008

If I'm not mistaken, Darvocet is a very weak opoid combined with Acetaminophen. [Tough to spell] That may be the reason it can be used/

[low dose naltrexone] Re: Pain meds

I'm just curious. It's a relief to know there's a painkiller that we can take but, why is it okay to take Darvocet? Isn't it an opiate like Percocet,Vicodin, etc.?Thanks.Toni

August 19, 2008

That has always been my question. You should ask Skip Lenz.

Art

--

>

> I'm just curious. It's a relief to know there's a painkiller that we

> can take but, why is it okay to take Darvocet? Isn't it an opiate

> like Percocet,Vicodin, etc.?

>

> Thanks.

> Toni

>

August 19, 2008

Excuse me but I had a bad reaction with darvon and LDN, I was on

darvon (without the tylenol) for like 5 years or so daily and went off

it for just 3 days as rec'd by pharmacist before LDN and I had a h@#ll

of a ride after that, had to go off LDN and reapproach it later after

more time had gone by.

It must be a very individual thing, for me darvon was very potent,

maybe the equivalent of someone else taking oxycontin. I have

chemically sensitivity cfs/fm and am sensitive to all meds, but darvon

was one thing I could tolerate and take for pain. For some people it

might seem lightweight or uneffective for me it really worked, and I

had more than one pharmacist try to argue with me about that because

for some reason I dont know if it was based on good research or

normies who can handle lots of drugs easily, but mainstream word is

that darvon isnt that effective for pain-UNTRUE for me, it worked as

well as vicodan and better than neurotin and ultram or ssris etc for

me none of which I could tolerate.

I think it really depends on the person and their physiology.

I would recommend trying darvon with caution with LDN because if you

are sensitive like me you might feel horrible, of course trying it

once isnt the same as coming off it after years of daily use.

If LDN doesnt work out for me though I would go back on darvon, I

didnt build the tolerance and it helped my pain and fatigue. I just

want to see if there is something more curative, LDN, than regular

pain meds. The thing about old school pain meds like

darvon/propoxyphene, they are easier for the body to break down it

doesnt effect p450 system like so many of the newer meds, its a shame

what pharmaceuticals do for me money but i digress.

> >

> > I'm just curious. It's a relief to know there's a painkiller that we

> > can take but, why is it okay to take Darvocet? Isn't it an opiate

> > like Percocet,Vicodin, etc.?

> >

> > Thanks.

> > Toni

> >

>

August 19, 2008

thats cool you can handle it crystal, must be tht individul

difference, when I did my initial research I saw there was one person

tht felt it potentiated small dose of pain med.

Its hard for me to beleive there is that big of a difference between

darvon and darvocet, I was on darvocet for most of the last 5 years

and switched to darvon a couple year ago because tylenol does nothing

for me and I had hit the maximum lifetime exposure of tylenol, acute

exposure to tylenol isnt the only danger, be careful with how many

years you take it.

I am still abit cranky at times though from going off the darvon haha

sort of like jack black in tropic thunder. The LDN is gettin easier to

tolerate though and works just as well on pain for me most of the time

as the darvon did.

> > >

> > > I'm just curious. It's a relief to know there's a painkiller

that we

> > > can take but, why is it okay to take Darvocet? Isn't it an opiate

> > > like Percocet,Vicodin, etc.?

> > >

> > > Thanks.

> > > Toni

> > >

> >

>

August 19, 2008

Darvon and Darvocet are two different pain medications.

Art

--

-- In low dose naltrexone , " kim.doll70 "

<kim.doll70@...> wrote:

>

> Excuse me but I had a bad reaction with darvon and LDN, I was on

> darvon (without the tylenol) for like 5 years or so daily and went

off

> it for just 3 days as rec'd by pharmacist before LDN and I had a

h@#ll

> of a ride after that, had to go off LDN and reapproach it later

after

> more time had gone by.

> It must be a very individual thing, for me darvon was very potent,

> maybe the equivalent of someone else taking oxycontin. I have

> chemically sensitivity cfs/fm and am sensitive to all meds, but

darvon

> was one thing I could tolerate and take for pain. For some people it

> might seem lightweight or uneffective for me it really worked, and I

> had more than one pharmacist try to argue with me about that

because

> for some reason I dont know if it was based on good research or

> normies who can handle lots of drugs easily, but mainstream word is

> that darvon isnt that effective for pain-UNTRUE for me, it worked as

> well as vicodan and better than neurotin and ultram or ssris etc for

> me none of which I could tolerate.

> I think it really depends on the person and their physiology.

>

> I would recommend trying darvon with caution with LDN because if you

> are sensitive like me you might feel horrible, of course trying it

> once isnt the same as coming off it after years of daily use.

>

> If LDN doesnt work out for me though I would go back on darvon, I

> didnt build the tolerance and it helped my pain and fatigue. I just

> want to see if there is something more curative, LDN, than regular

> pain meds. The thing about old school pain meds like

> darvon/propoxyphene, they are easier for the body to break down it

> doesnt effect p450 system like so many of the newer meds, its a

shame

> what pharmaceuticals do for me money but i digress.---

August 20, 2008

Yes because Dr Skip explained to me that Darvocet is pretty much like taking Tylenol but a little stronger.

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 10 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] Re: Pain meds

I'm just curious. It's a relief to know there's a painkiller that we can take but, why is it okay to take Darvocet? Isn't it an opiate like Percocet,Vicodin, etc.?Thanks.Toni

August 20, 2008

Crystal

how much can you take of the darvocet with LDN if you don't mind

saying doses (and how much LDN?)

for me 60mg of darvon is no stronger than 100mg of darvocet. The

amount of darvon in the darvocet is about the same as one 60mg darvon

so I don't see what dif it would make.......I used them

interchangeably. I know Skip doesnt think highly of darvocet or darvon

for pain, he thinks tylenol just as good. Like I said though I can

vouch for there being a big differene for me, if I would have had tpo

rely on tylenol for my pain help in the past, well I would have been

SOL.

>

> Yes because Dr Skip explained to me that Darvocet is pretty much

like taking Tylenol but a little stronger.

>

> Hugs & Blessings,

> Crystal

> LDN_Users Group Owner

>

> Diagnosed November 2004 with Secondary Progressive MS, Transverse

Myelitis and an Advocate for LDN!! 2 years & 10 months on LDN with

Skip's Pharmacy.....

>

> Crystal's MS,TM & LDN Website

>

> Crystal's LDN Gift Shop

> Crystal's LDN Support Group

>

> [low dose naltrexone] Re: Pain meds

>

> I'm just curious. It's a relief to know there's a painkiller that we

> can take but, why is it okay to take Darvocet? Isn't it an opiate

> like Percocet,Vicodin, etc.?

>

> Thanks.

> Toni

>

> Skip's Compounding Pharmacy

>

> LDN Website

>

August 31, 2008

Dorothy,

Thank you for your story, if one person is helped with your information what an

acomplishment that will be. I admire you. in PA

August 31, 2008

Thanks, . It's not a story that I share without a great deal of thought

and my hope is that someone will see a similar pattern and question their

course of treatment.

I appreciate your post.

Dorothy

_____

From: [mailto: ] On

Behalf Of McNally

Sent: Sunday, August 31, 2008 3:15 PM

Subject: Re: [ ] Pain Meds

Dorothy,

Thank you for your story, if one person is helped with your information what

an acomplishment that will be. I admire you. in PA

August 31, 2008

I'm new to this group. I was just diagnosed with RA and fibromyalgia.

Though my doc had suspected the RA it was confirmed with an MRI. My

pain doctor has been trying out different meds for a while. I

appreciate your story because that's how I felt for awhile. I hated

going to my pain doc and telling him the meds weren't working. I felt

like he thought I was lying just to get more meds or stronger ones. I

started exercising and eating better and I noticed that when I

changed my lifestyle I started to feel better. I still take Lortab

and Darvocat but I don't get anxious at the end of the month like I

used to.

>

> , I started to worry as soon as I filled my RX that I would run

out too

> soon. I was taking Vicoprofen and Combunox (oxycodone) for a

little over 2

> years.

>

> I started on the Vics and when they weren't working all that well

any more,

> the Combunox was added for " breakthrough " pain. Well, I was then

taking

> both of them every day and as we all know, after a while, you just

need more

> and more to get the same relief.

>

> I became a wreck. As I said, I knew that as the month wore on, I'd

start

> running out. My insurance company wouldn't approve renewals before

30 days

> and the doctor did increase dosages a few times, but it was evident

that I

> had a problem. I started scheduling my life around my

prescriptions! If it

> was the end of the month, I knew I probably couldn't go to that

birthday

> party coming up or plan an outing with friends.

>

> My doctor started cracking down. Although I was prescribed a 30-

day supply,

> if the RX was filled on the 15th of the month, he would not give me

another

> RX until the 16th of the next month even if that was actually 31 or

32 days

> for instance. I was told...you have to make do. That put me into

a panic.

>

> When I got to the point where I was becoming confused and had

trouble

> thinking, I knew that I had to do something. I contacted a friend's

> therapist and asked for help. He referred me to an MD that handled

> addiction. I felt that I wasn't a " drug addict, " but knew I had a

serious

> problem that was only getting worse every month.

>

> I saw the doctor and explained my situation. He put me on a

medication,

> Suboxone, that is used to treat addicts. He told me that I would

feel

> better than I have in a long, long time. Well, he was right! I

can't say

> enough good things about this medication and if there's anyone here

who

> finds themselves in a similar situation, please look into it.

Within a day

> of switching from the pain meds to Suboxone, I felt like a new

person. My

> friends saw the difference immediately.

>

> This medication has some pain relieving properties and I still

struggle with

> pain. Many days, I take Ibuprofen several times during the day.

But the

> change in my mental and emotional balance is amazing. As I said, I

am so

> thankful to be able to live normally again.

>

> Suboxone is addicting, just as the pain meds are; however, it

doesn't have

> the same effect and there is a point (32 mg I think) where taking

more has

> no more effect. I only take 8 mg a day. It also contains an opiate

> antagonist which will make you ill if you take pain meds at the same

> time...this obviously is to keep drug addicts from going back to

drugs.

>

> I am telling this story since I would imagine that there is someone

reading

> this who may be in a situation much like mine. I am telling this

story in

> the hopes that it will help someone else get out of that life of

anxiety.

> If anyone wants to chat about this off-list, please feel free to e-

mail me

> at dorv@... and I'll be glad to discuss it.

>

> I am hoping that one day, the level of my pain will be such that I

can

> slowly stop using this medication. But until that time, I am not

dependent

> on meds that were controlling my life. I am now in control of my

life and

> that's how it should be for everyone.

>

> , glad to hear that you're out of the way of Gustav and hope

everyone in

> that area is safe and sound.

>

> Dorothy

>

> _____

>

> From: [mailto:RA-

SUPPORT ] On

> Behalf Of bella_1180

> Sent: Friday, August 29, 2008 9:57 PM

>

> Subject: [ ] Dorothy & Dodge Re: Good Vibes and Prayers,

Please?

>

> Hi you all..

>

> I know I am a tad late in responding, but its been quite a week.

Fay flooded

> my house, so until repairs are made, I'm staying with my sister and

her

> family. Don't want to chance a flare. And then I had my fantastic

picc line

> put in yesterday and my rituxan treatment today.

>

> Anyhow, getting back to the post. I know what you mean about getting

> nervous. Everytime, I've had to mention upping any med I get a

major panic

> attack and my bp sky rockets. One of my past gp told me when I

asked for a

> refill on my lortab, that he just gave me plenty the month and a

half prior.

> Ever since then, I have been a wreck and lots of times I used to

just suffer

> so I didnt have to ask for anymore. My rhuemy is very good to me,

so I don't

> have that problem. But I still do get nervous.

>

> Central FL

>

August 31, 2008

That's terrific! Lifestyle has so much to do with how we feel and can make

a huge difference in our health.

More power to you! I hope you might inspire some of us..me included...to

make some positive changes.

_____

From: [mailto: ] On

Behalf Of Joanna

Sent: Sunday, August 31, 2008 4:45 PM

Subject: [ ] Re: Pain Meds