sad news

[Guest guest]

I am so saddened to see this.

[Guest guest]

I am very sorry to hear this. My thoughts are with

you and all of her friends and family.

Dawn

--- Snakecharmer <snakecharmer_s@...> wrote:

> Dear Members,

> I just recieved some very sad news. A lady that

> some of you

> probably know from the Mycoplasms list passed away

> Wednesday night. I

> recieved the message from her Son-in-law. Her email

> addy was PatRN,,

> she was a wonderful lady who tried to help all. She

> gave of herself

> and time to all who needed help understanding

> illnesses. She was a

> great lady who will be greatly missed by us all.

>

> Samm

>

>

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews./fc/US/Emergency_Information/

[Guest guest]

In a message dated 9/15/01 7:25:34 PM Eastern Daylight Time, tt_dt@...

writes:

> > Dear Members,

> > I just recieved some very sad news. A lady that

> > some of you

> > probably know from the Mycoplasms list passed away

> > Wednesday night. I

> > recieved the message from her Son-in-law. Her email

> > addy was PatRN,,

> > she was a wonderful lady who tried to help all. She

> > gave of herself

> > and time to all who needed help understanding

> > illnesses. She was a

> > great lady who will be greatly missed by us all.

> >

> >

This is very sad to hear. I remember she was always very helpful. Does anyone

know the cause of death? I mean, what happened?

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

- Thanks Dawn, Robyn and Rose,

PatRN was a wonderful lady. We will all miss her so greatly, she

gave so much of herself and never had a harsh word for anyone. I

admired her courage,strength and love for all of mankind. She was a

dear friend.

Samm

-- In @y..., LymeDizzy@a... wrote:

> I am so saddened to see this.

>

>

>

[Guest guest]

Is this Pat from NY ? We are missing a chatter from an MSN chat and it just

clicked that all the info matches. Thanks Much,

*Metzler Chocolates*

" A Day without Chocolate,

is like a Day without the Sun "

http://www.lymesite.com/LLMD%20Fundraisers%20Too.htm

[Guest guest]

In a message dated 09/15/2001 5:16:28 PM Eastern Daylight Time,

snakecharmer_s@... writes:

>

> I just recieved some very sad news. A lady that some of you

> probably know from the Mycoplasms list passed away Wednesday night. I

> recieved the message from her Son-in-law. Her email addy was PatRN,,

> she was a wonderful lady who tried to help all. She gave of herself

> and time to all who needed help understanding illnesses. She was a

> great lady who will be greatly missed by us all.

>

I'm so sorry for this loss :*( What did she pass away from??

w

Jody

TDream what you want to dreamT

go where you want to go; be what you want to be,

because you have only one life

and one chance to do all the

things you want to do.

U <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> U

mn

[Guest guest]

You have our every sympathy. We all will miss her so ....... You are in our prayers. Re: [ ] Sad News Ken I am so sorry to hear about your loss. We all will miss Arlene in here, we all loved Arlene in here. We will be keeping you in our prayers Terry ACE <arken@...> wrote: Dear Group, I am writing this sad message to inform all of you of Arlene's passing.We were on a motorcycle trip from our home in Rainier,OR to Winnemucca, NV.About 18 miles out of Lakeview,OR on SR140 we got into a soft shoulder on acurve and left the road. Arlene suffered a blunt force trauma to the chest.It caused her aorta to rupture and she died there in my arms. She was doingsomething she loved and she was with people who loved and cared about her agreat deal. It is how she would have wanted it to end but sooner than shewanted to go. She wanted everyone to remember the goodtimes they sharedwith her and smile when you think of her because she hated tears Ken Engen Arlene's loving husband of 18+ years

[Guest guest]

I am so terribly sorry to read this...I have only been on this group a short

time but she was a regular contributer and so helpful. Everyone will miss

her.

Skyler

[ ] Sad News

> Dear Group,

> I am writing this sad message to inform all of you of Arlene's

passing.

> We were on a motorcycle trip from our home in Rainier,OR to Winnemucca,

NV.

> About 18 miles out of Lakeview,OR on SR140 we got into a soft shoulder on

a

> curve and left the road. Arlene suffered a blunt force trauma to the

chest.

> It caused her aorta to rupture and she died there in my arms. She was

doing

> something she loved and she was with people who loved and cared about her

a

> great deal. It is how she would have wanted it to end but sooner than she

> wanted to go. She wanted everyone to remember the goodtimes they shared

> with her and smile when you think of her because she hated tears

> Ken

Engen

> Arlene's loving husband of 18+ years

>

>

>

>

[Guest guest]

-I am sorry I didnt know her or you , you have our profound sympathy

and you and Arlene are in my thoughts and prayers.

We are so sorry for your loss..

with much respect and love

jackie and robert

-- In @y..., ACE <arken@c...> wrote:

> Dear Group,

> I am writing this sad message to inform all of you of Arlene's

passing.

> We were on a motorcycle trip from our home in Rainier,OR to

Winnemucca, NV.

> About 18 miles out of Lakeview,OR on SR140 we got into a soft

shoulder on a

> curve and left the road. Arlene suffered a blunt force trauma to

the chest.

> It caused her aorta to rupture and she died there in my arms. She

was doing

> something she loved and she was with people who loved and cared

about her a

> great deal. It is how she would have wanted it to end but sooner

than she

> wanted to go. She wanted everyone to remember the goodtimes they

shared

> with her and smile when you think of her because she hated tears

>

Ken Engen

>

Arlene's loving husband of

18+ years

[Guest guest]

Arlene originally got me into this group and I know

how much she was looking forward to this trip. I'm

sure she would rather go this way than liver failure.

I am truly devastated by this news and I hope you are

coping well.

Sharon

--- ACE <arken@...> wrote:

> Dear Group,

> I am writing this sad message to inform all of

> you of Arlene's passing.

> We were on a motorcycle trip from our home in

> Rainier,OR to Winnemucca, NV.

> About 18 miles out of Lakeview,OR on SR140 we got

> into a soft shoulder on a

> curve and left the road. Arlene suffered a blunt

> force trauma to the chest.

> It caused her aorta to rupture and she died there in

> my arms. She was doing

> something she loved and she was with people who

> loved and cared about her a

> great deal. It is how she would have wanted it to

> end but sooner than she

> wanted to go. She wanted everyone to remember the

> goodtimes they shared

> with her and smile when you think of her because she

> hated tears

>

> Ken Engen

> Arlene's loving husband of 18+ years

>

>

__________________________________________________

[Guest guest]

Ken I am so sorry to hear about your loss. We all will miss Arlene in here, we all loved Arlene in here.

We will be keeping you in our prayers

Terry

ACE <arken@...> wrote: Dear Group, I am writing this sad message to inform all of you of Arlene's passing.We were on a motorcycle trip from our home in Rainier,OR to Winnemucca, NV.About 18 miles out of Lakeview,OR on SR140 we got into a soft shoulder on acurve and left the road. Arlene suffered a blunt force trauma to the chest.It caused her aorta to rupture and she died there in my arms. She was doingsomething she loved and she was with people who loved and cared about her agreat deal. It is how she would have wanted it to end but sooner than shewanted to go. She wanted everyone to remember the goodtimes they sharedwith her and smile when you think of her because she hated tears Ken Engen Arlene's loving husband of 18+ years

[Guest guest]

Ken, Sorry for your loss.........Giglebutt

ACE <arken@...> wrote: Dear Group, I am writing this sad message to inform all of you of Arlene's passing.We were on a motorcycle trip from our home in Rainier,OR to Winnemucca, NV.About 18 miles out of Lakeview,OR on SR140 we got into a soft shoulder on acurve and left the road. Arlene suffered a blunt force trauma to the chest.It caused her aorta to rupture and she died there in my arms. She was doingsomething she loved and she was with people who loved and cared about her agreat deal. It is how she would have wanted it to end but sooner than shewanted to go. She wanted everyone to remember the goodtimes they sharedwith her and smile when you think of her because she hated tears Ken Engen Arlene's loving husband of 18+ years

[Guest guest]

Ken I am so sorry to hear of your loss..Arlene was deeply loved and appreciated in here..She always made me smile and loved you deeply..Please feel free to get in touch with us anytime you may need to..Thankyou for telling us..

[Guest guest]

Ken, I'm so sorry to hear of your (and our) loss. Arlene was an important part of our group and will be deeply missed. She mentioned she was going on this trip, I could tell it was something she really enjoyed. I guess we can take solace in the fact that she was doing what she loved and with the people she loved and her battle is over. She won. My prayers are with you and your family. -dz-

ACE <arken@...> wrote:

Dear Group, I am writing this sad message to inform all of you of Arlene's passing.We were on a motorcycle trip from our home in Rainier,OR to Winnemucca, NV.About 18 miles out of Lakeview,OR on SR140 we got into a soft shoulder on acurve and left the road. Arlene suffered a blunt force trauma to the chest.It caused her aorta to rupture and she died there in my arms. She was doingsomething she loved and she was with people who loved and cared about her agreat deal. It is how she would have wanted it to end but sooner than shewanted to go. She wanted everyone to remember the goodtimes they sharedwith her and smile when you think of her because she hated tears Ken Engen Arlene's loving husband of 18+ years

[Guest guest]

Hi, Ken,

That was sad news indeed; However, I am glad to hear that at least she went

very quickly,

rather than from a lingering illness which is what most of us will probably

face whenever our time comes.

Kind wishes,

[Guest guest]

Welcome Gordon. If you feel like it tell us more

about yourself

Sharon

--- gordonrcameron@... wrote:

> Hi everybody:

>

> My name is Gordon. I'm new to your group -- signed

> on a couple of weeks ago.

> I'm painfully shy by nature and have been trying to

> muster enough courage to

> get involved. I've been sort of eaves dropping up

> till now and have been very

> impressed by your expressions of camaraderie. Upon

> hearing of your sad news,

> Ken, I was deeply moved and felt compelled to break

> my silence and offer you

> my sincere feelings for you over your profound loss.

>

> Gordon

>

__________________________________________________

[Guest guest]

welcome Gordon, my name is jackie, I am new here too, my fiancee has

tested pos for hepC and I have been finding a lot of help here

hope you feel comfortable here too.

jackie

> Hi everybody:

>

> My name is Gordon. I'm new to your group -- signed on a couple of

weeks ago.

> I'm painfully shy by nature and have been trying to muster enough

courage to

> get involved. I've been sort of eaves dropping up till now and have

been very

> impressed by your expressions of camaraderie. Upon hearing of your

sad news,

> Ken, I was deeply moved and felt compelled to break my silence and

offer you

> my sincere feelings for you over your profound loss.

>

> Gordon

[Guest guest]

Hi Gordon

Welcome to the group. My name is Terry. Any time you feel like jumping in you are welcome.

Terry

gordonrcameron@... wrote: Hi everybody:My name is Gordon. I'm new to your group -- signed on a couple of weeks ago. I'm painfully shy by nature and have been trying to muster enough courage to get involved. I've been sort of eaves dropping up till now and have been very impressed by your expressions of camaraderie. Upon hearing of your sad news, Ken, I was deeply moved and felt compelled to break my silence and offer you my sincere feelings for you over your profound loss.Gordon

[Guest guest]

Hi Gordon

I want to welcome you to the group. I think you will find us friendly and

supportive.

[ ] Sad news

> Hi everybody:

>

> My name is Gordon. I'm new to your group -- signed on a couple of weeks

ago.

> I'm painfully shy by nature and have been trying to muster enough courage

to

> get involved. I've been sort of eaves dropping up till now and have been

very

> impressed by your expressions of camaraderie. Upon hearing of your sad

news,

> Ken, I was deeply moved and felt compelled to break my silence and offer

you

> my sincere feelings for you over your profound loss.

>

> Gordon

>

>

>

[Guest guest]

Welcome aboard, Gordon. I hope that now that you've broken the ice, you'll be encouraged to join in and tell us a little more about yourself. Arlene has been in our group for a long time, and even though few, if any of us know her outside the confines of this group, we have developed close relationships over our time together. Thank you for joining us in our sorrow and please stick around for the fun and happy times we share together as well. -dz-

gordonrcameron@... wrote: Hi everybody:My name is Gordon. I'm new to your group -- signed on a couple of weeks ago. I'm painfully shy by nature and have been trying to muster enough courage to get involved. I've been sort of eaves dropping up till now and have been very impressed by your expressions of camaraderie. Upon hearing of your sad news, Ken, I was deeply moved and felt compelled to break my silence and offer you my sincere feelings for you over your profound loss.Gordon

[Guest guest]

I am very thankful to have this list as well. I am sorry about . I've

been terribly sick lately and have friends and family who would like me to

follow the traditional doctors advise. Intuition tells me otherwise and it

can be a lonely road. Although I have the support of my husband and a

likeminded alternative doctor and all of you. I recently added plaquenil

to the doxy and continued to fail. At first it seemed like a herx but it

lasted too long. (I have tested positive for a tickborn malaria-like

disease called babesiosis so plaquenil may be appropriate for me) However,

my neck was so stiff and my knees terribly sore. I could hardly roll over in

bed. Yesterday my husband suggested I take flagyl. I stopped the plaquinel

and took 2 grams of flagyl. This is a large dose per the Arthritis Trust

foundation protocal..but also used by the lyme disease foundation. I am

better one morning later. I am going to take the flagyl on sat, sun and

possibly tues and thurs for a while. doxy or minocin mwf 100mg. I hate

flagyl because of the taste that resonates. Just thinking of it makes me

want to throw up. I am pasting in an abstract that may support the use of

the flagyl for some people. I've inserted some of the abbreviations in

parenthesis( ) in case some readers are not familiar with lyme and other

terms. FYI kathy

----------------------------------------------------------------------------

--------------------------------------------

METRONIDAZOLE THERAPY IN THE TREATMENT OF CHRONIC LYME DISEASE

presented on the 12th INTERNATIONAL SCIENTIFIC CONFERENCE ON LYME DISEASE

AND OTHER SPIROCHETAL & TICK-BORNE DISORDERS April 1999, New York

City/New Jersey, USA

Dr. Atkinson-Barr CPhys PhD (Calabasas, CA) and Dr. Vernon Padgett MD

(Calabasas, CA) together with Dr. Horowitz MD (Hyde Park, NY)

Background:

Borrelia burgdorferi (Lyme) has been shown to be capable of persisiting in

human hosts despite extensive antibiotic treatment(Preac-Mursic V, et al:

Survival of Bb (Lyme) in antibiotically treated patients with Lyme

Borreliosis, Infection 1989; 17: 355-359). Persistent illness is due to a

combination of factors including sequestration in antibiotic and

immunologically privileged sites(Luft et al: Invasion of the CNS by BB in

acute disseminated infection, JAMA 1992; 267: 1364-1367 ). This report

describes the use of Metronidazole (Flagyl) in a cohort of chronic Lyme

patients resistant to standard antibiotic regimens.

Methodology:

57 patients with Lyme disease, and/or Ehrlichiosis and Babesiosis (Babesia

is a tick-born malaria like parasite) were previously treated with either

oral, IM (Intramuscular injections) or IV regimens prior to being started on

metronidazole. Flagyl was given at a dose of 250mg TID for the 1st week

irrespective of body weight, and patients between 121-150 lbs had their dose

increased at the 2nd week to 1000mg/day, with patients greater than 150 lbs.

increased to 1500 mg/day for the next month. Dosages were decreased or

temporarily stopped and restarted for severe Jarish-Herxheimer type flares,

or for increased paresthesiasis of the extremeties. Most patients took

Flagyl alone, but several patients added it to their prior antibiotic

regimens if they had shown no further improvement of symptoms. Patients

filled out a Karnofsky performance scale before and after treatment, and

were monitored with a CBC and liver function testing at the completion of

therapy.

Results:

Jarish-Herxheimer type flares were common during the 1st few weeks of

treatment (32/57 patients). 47% of patients reported a significant decrease

in arthralgias, with joint pain disappearing completely in 5 patients after

only 7 days of therapy. Fatigue improved in 19/57 patients (33%) and

neurocognitive symptoms improved in 28 patients (49%) including decreased

headaches, paresthesias, and improved memory and concentration. Several

patients did not show clinical improvement until the Metronidazole was

stopped. The median and mean percent improvement by the Karnofsky

performance scale was 13% after 1 month of treatment. An additional 26% mean

percent improvement was reported among 7 patients completing a 2nd month of

treatment.

Conclusion:

Flagyl appears to have anti-borrelial activity and its effectiveness has

also been documented in human infections with syphillis (Davies AH,

Br.J.Vener Dis 1967; 43197-200). Median and mean improvement in Lyme disease

patients was 13% at one month, but several patients showed dramatic clinical

improvement, and those patients with an inadequate clinical response, often

had PCR and RNA evidence of ongoing co-infection with Babesiosis. The

clinical effectiveness of Metronidazole may be explained by its high

bioavailability, good cellular penetration and tissue distribution with good

penetration into CSF, and the formation of redox intermediate metabolites

which target the RNA, DNA, or cellular proteins of the micro-organisms

irrespective of replication. Further studies need to be done to evaluate the

spectrum of Flagyl's role in chronic Lyme-disease.

Last changes at: Tuesday 22.08.2000 10:44

rheumatic sad news

> Today I found out a friend has had a massive stroke in her brain stem.

> She's on life support.

>

> isn't even thirty. Right at the time I was getting diagnosed with

> rheumatoid arthritis she got an inflammation inside her eye.

>

> First they put her on steroids, I passed on those when they were offered.

I

> watched her swell up from them as the months passed. Then they started

her

> on Methotrexate. She was always having a cold or the sniffles and she was

> always in pain.

>

> I watched her get sicker and sicker over the next few years but I had

found

> you guys got on the minocycline. I read " The New Arthritis Breakthrough " ,

> actually I studied it. I spent tons of time researching in the library

and

> on line. When I got scared people on this list encouraged me.

>

> Rather quickly it became obvious I wasn't going to trade the antibiotic

> protocol for the immune suppressant drugs was getting. She was

having

> a hard time.

>

> They increased the chemicals and at one point they were sticking something

> in her veins that was so toxic the nurse administering it was wearing one

of

> those " bunny suits " to keep it from getting on her own skin; I believe

> said it was cytoxin. held out her arm and let them put that stuff

in

> her vein even though she knew it meant she could never have children.

> Amazing.

>

> After they had wrecked her with steroids they kept her pumped full of

> NSAIDS. Now she's on life support.

>

> Tonight they are going to unplug her. Her parents asked about donating

> organs but those are too damaged from all of the chemical damage. They

are

> planning to take her eyes. 's nightmare began with an enflamed

optical

> nerve.

>

> in Oregon

>

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Thank you all for your kind and helpful responses. Having this list is like

having a bunch of dear friends/doctors that will always understand what I'm

going through. Kathy

[Guest guest]

,

Your poor thing..: ( I don't know what to say. I feel awful for you going through this. I am so sorry. I will keep your family in my thoughts and prayers and pray that a miracle happens for your dad. I understand your feelings about not wanting to take care of your mom. It is difficult enough to take care of a child. Whatever happens, I am sure you will be there for your mom regardless. I can't imagine losing a parent, although I know it's inevitable some day. I'm afraid of losing my dad at a young age, and not to cancer, but to alcoholism, another awful disease. He's only 44 and sometimes when talking to him, it's like he's losing his mind. It's very sad, these diseases that harm our loved ones. I sincerely hope your dad beats this. Doctors can only give a prognosis based on their medical expertise. Someone else makes the final decision, though. I will keep your family in my thoughts and prayers.

Kellie

[Guest guest]

,

Thanks so much! That means a lot to me...

In a message dated 8/16/2002 10:40:06 AM Pacific Daylight Time, taime@... writes:

Aww ,

I am so sorry!! Like you said, I don't even know what to say to you.

I do want you to know that if you ever need to talk,or to vent that

we are all here for you.. at anytime!!! Feel free to call me anytime

too:631-467-8276.

Once again , I'm so sorry. You and your family are in my

prayers.

[Guest guest]

Thanks Kellie!! I know i'll be ok..but this is just hard...

Thanks,

In a message dated 8/16/2002 10:45:52 AM Pacific Daylight Time, Kelliesmith@... writes:

,

Your poor thing..: ( I don't know what to say. I feel awful for you going through this. I am so sorry. I will keep your family in my thoughts and prayers and pray that a miracle happens for your dad. I understand your feelings about not wanting to take care of your mom. It is difficult enough to take care of a child. Whatever happens, I am sure you will be there for your mom regardless. I can't imagine losing a parent, although I know it's inevitable some day. I'm afraid of losing my dad at a young age, and not to cancer, but to alcoholism, another awful disease. He's only 44 and sometimes when talking to him, it's like he's losing his mind. It's very sad, these diseases that harm our loved ones. I sincerely hope your dad beats this. Doctors can only give a prognosis based on their medical expertise. Someone else makes the final decision, though. I will keep your family in my thoughts and prayers.

Kellie