Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement due to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be. - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10 Quote Link to comment Share on other sites More sharing options...
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