Weekly update from Bowen

[Guest guest]

HAPPY NEW YEAR !!!!!

From Bowen

Family Voices, Georgia

This update may be forwarded without permission

Family Voices Calendar will be here very soon. To order send an email to kidshealth@...

Weekly News of Events, Education, and Resources In Georgia - DECEMBER 30, 2004

Please note that this update is provided for your convenience. and for informational purposes only. There is no endorsement of any program or service listed Continue to send in your notices of events , special services , educational notices, and other programs -- Your information will reach approximately 4000 Statewide email addresses per week !!!!

To learn about membership in The Arc of Georgia and The Arc of Georgia Statewide Education Committee, please visit www.arcga.org . As a representative on the Education Committee from your county, you would be required to be a member of The Arc of Georgia , participate on the Education Committee group , participate in a quarterly meeting , give feedback and regular updates from your community , participate on either a Finance, Transition, Resource and Legislative sub-committee and be a resource and center of leadership for your community. Your name and contact information would appear on The Arc of Georgia website as a person " in the know " for your county. If you are interested in representing your County on the Committee, please email your contact information to the Chairs of this Committee, beammeupbaby@... ( Bowen ) or NSDJewel@... ( Geneice McCoy ) as you want it read on The Arc of Georgia website . Include name, phone number, email address, county name, and current affiliations in the disability , education or advocacy communities . _________________________________________________________________________________________

The Arc of Carroll County meets the 3rd Monday of each month at 7 pm at the Carroll County Training Center 200 Alton Ested Blvd. Carrollton GA

Please call 770-834-6232 for more information

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See Georgia 's hottest online discussion groups for parents, families and advocates who are interested in disability and advocacy issues !!!!

http://www./group/GA-ParentNetwork

GA-ParentNetwork is designed exclusively for Georgia parents / guardians of children or adult dependents with disabilities. The purpose is to allow communication between families on the common issues we share so we can better support, advocate, and influence change for our children.

http://www./group/BCWFamilies

BCWFamilies is designed for families whose children are currently enrolled in the State of Georgia's Babies Can't Wait early intervention program and the Parent Educators of Project SCEIs. The purpose is to allow families to share, support and educate each other during the early intervention phase of their child's life.

http://www./group/autism

Autism-Georgia is designed for parents, professionals and others interested in news, information, and resources about Autism and Autism-spectrum disorders in Georgia such as events, nutrition issues, mercury and other vaccination research as specifically related to this spectrum of disorders

http://www./group/peppinc

The Federally funded parent training center in Georgia . On the listserv, you will find discussions between other parents, great advice from PEPPAC trainers , online trainings and much more. Find information about ongoing workshops too !!!

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The Transition Manual is now available on the DOE webpage under Special Education. Visit www.gadoe.org.

Fore more transition information, also see http://www.allenshea.com/AllStatesPassport.pdf ,

http://ici.umn.edu/products/impact/163/over3.html and http://www.communityinclusion.org/publications/fulltext/mti_guide/mti_guide.pdf

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The Monthly Meetings of the DHR Board of Human Resources are open to the public. Meetings begin at 1:00 p.m. and are normally held in room 250 on the 29th floor of the Georgia Department of Human Resources central offices at 2 Peachtree Street, Atlanta. Occasionally, the board will meet at a different location. The schedule is subject to change, so please check back here to confirm times and locations before planning to attend. The Mental Health, Developmental Disabilities and Addictive Diseases (MHDDAD) Committee of the Board of Human Resources meets the third Wednesday of each month -- the same day as Board meetings -- from 10:00 a.m. to noon on the 22nd floor at 2 Peachtree Street, room 270. Like the full Board meetings, MHDDAD Committee meetings are open to the public.

New schedule to be posted soon !!!

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North Regional Board Meetings meets from 2 p.m. until 4 p.m. on the second Thursday of every other month at the BridgeMill Fire Station in Canton, Georgia. The meetings are in February, April, June, August, October and December. ________________________________________________________________________________________________

The "Georgia Voices that Count" deadline for applications is January 18, 2005. "Georgia Voices that Count" is an advocacy training and support project "Georgia Voices that Count" supports the development of new leadership in the disability community. The criteria for selection for "Georgia Voices that Count" includes: *To live in Georgia / *To have a disability / *To have a strong interest in disability rights / *To have not previously received formal advocacy training. Please take a look at the newly updated "Georgia Voices that Count" page on the disABILITY LINK web site www.disabilitylink.org . On the website, you may also get contact information if you are interested in participating in this program

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CONFERENCES / EVENTS FOR 2005

Informative Radio Interview on

The Arc of Georgia & Partnership for Community Living

January 2, 2005 ~ 6:45 AM

Tune in to WSB 98.5 FM, one of the top 10 stations in the nation on Sunday January 2 at 6:45 AM. (Also available online at www.B985.com.) Host Suzi Marsh of the “Addictions, Mental Health and Recovery” show will be interviewing Janice Rossi, Executive Director of The Arc of Georgia and Bowen, State Secretary of the Board of Directors of The Arc of Georgia as well as co-chair of its Statewide Education Committee. They will be sharing with Suzi and the listening audience The Arc of Georgia’s vision for a Partnership for Community Living in which all people with disabilities have real lives, real jobs, real educations, real homes and real neighbors. The hour-long show will also cover a multitude of topics about the endeavors of The Arc with and for adults and children with disabilities, and how community members can become involved. Tune in ~ you’ll be surprised with what you learn!!!!

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Delegation Prayer Breakfast. The event is scheduled for Thursday, Jan

6th at 9am at Ray of Hope Christian Church. The address is 2778

Snapfinger Road. This will be a great time to meet all the

Legislators

from DeKalb County before we return to the General Assembly....

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January 8 10 am to 12 noon

NORTH FULTON AUTISM SUPPORT GROUP / Speakers: Jodi McMahon, CPA, CLU, ChFC , Pam Hoppe, ChFCFinancial Planners, MetDESK® Specialists / MetLife’s Division of Estate Planning for Special Kids / Topic:

Financial and Legal Planning for Special Needs Children

Location:

Summit Learning Center, Colony Park office complex

312 Maxwell Road, Suite 500, Alpharetta 30004

678-624-1696

Adults only please; childcare not available.

To RSVP: Kysar: 770-664-4119 or Email: JKysar@...

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January 10, 2005 from 9 AM until 4 PM / Statewide Independent Living Council of Georgia will hold its Winter Meeting at the Holiday Inn Capitol 450 Capitol Ave Atlanta, GA 30312 . Call 404-591-2000 for more info

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January 14, 2005 Atlanta, GA 1-day seminar, “Nutrition Therapy for Children with Autism Spectrum Disorder”

Speaker: Strickland, MS, RD, LD

Strickland, MS, RD, LD nationally known Nutritionist specializing in nutritional treatment of Autism, will be in your state during the month of January 2005 presenting her 1-day seminar, “Nutrition Therapy for Children with Autism Spectrum Disorder”. The seminar is designed to be beneficial for both parents and professionals seeking reliable science-based information on nutrition interventions for the treatment of Autism and related disorders.

For specific questions regarding the seminar content, contact at email: ASDpuzzle@... or website: www.ASDpuzzle.com

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January 14, 20052-7 PMFinancial Information FairGrayson RoomLawrenceville EastGwinnett County Public SchoolsLawrenceville, GAATTN: Parents of Special Needs Children // Representatives will be on hand to discuss taxes, estate planning, financial planning, insurance and pre-need.For information, contact the Parent Mentors at 678-985-0229

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Jan. 22, 2005 " Emotional Componennts of the Brain " presented by LDAG / 9 am to 4:30 pm / There are costs to this seminar / For information, visit www.ldag.com or call

Jan. 22 adn 23, 2005 / Emotional Components of the Brain / Doubletree Club Hotel Atlanta Airport North / Sponsored by LDG / Vists www.ldag.org for info

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January 22, 2005

Please join us Saturday for a Disability Informational Fair. Many families and individuals and educators will attend this first time Informational Fair benefiting Adults and Children with Learning, Physical and Developmental Disabilities.

Coweta County is seeking service providers to participate in our Resource Fairs. Service providers and event sponsors will have the opportunity to provide participants with information about disabilities services and organizations in the Coweta County area.

What you get with your booth:

· (2) 4-foot tables and (2) chairs

· Access to a target audience

What your organization will need to provide:

· Appropriate signage for your organization

· Appropriate staffing

If you need ideas or have questions please contact

Grabe 770-254-1817 Judy Floyd 770-254-2810

grabe@... judy.floyd@...

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Jan. 24-30, 2005 National Folic Acid Awareness Week / Sponsored by the National Council on Folic Acid / visit www.folicacidinfo.org

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Date: , January 29, 2005

Time: 10:00am – 12:00pm

Location: The Marcus Institute

1920 Briarcliff Road, Atlanta, Georgia 30329

Attend our free class to learn tactics to help children improve their feeding skills.

We ask that you do not bring children to this event.

Pre-registration required, call or email to reserve your spot today!

Phone: 404-419-5000

Fax: 404-419-4015

Behavior Center@...

www.marcus.org

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February 4-5, 2005 / Annual ASA-GGC Autism-Asperger Conference / Gwinnett Convention Center, 6400 Sugarloaf Parkway Duluth, GA 30097 / Fore more info, please visit the web site: http://www.asaga.com

February 10-13, 2005 / The Family Voices National Conference, The Heart of the Matter: A Call to Action / Phoenix Park Hotel, Washington, DC. The Conference Planning Committee is currently working out the details of the agenda, but it's sure to be an exciting few days of networking, sharing, and learning. Registration information is currently available on our website, http://www.familyvoices.org/private/admin/Conference_Feb05.htm, and we will be posting more information there as it becomes available.

Senator Hillary Rodham Clinton has confirmed and will address the opening plenary of our January Health Action 2005 conference. As someone who has long been passionately interested in improving our nation's health care system, Senator Clinton will set the stage for the conference and for the huge challenges we will face in 2005

Feb. 9, 2005 Savannah / Feb. 10, 2005 Macon GA / Feb. 11, 2005 Atlanta GA

Practical Effective Interactive Strategies for Asperger's Syndrome, Non-Verbal Learning Disorders and High Functioning Autism

For more information, please visit www.health-ed.com

Feb. 11-13, 2005

Managng ADHD, OCD and / Tourette Syndrome in the classsroom and at home / hosted by the Tourette Syndrome Assoc. of GA and South Carolina

Hilton Atlanta Northeast in Norcross GA

For mre information, call 770-901-9998 or email tsageorgia@...

Some of the speakers include Shery Pruitt, Warren Walter, Marshall Duke, Gerald Goff and Reisman

Feb. 24-25, 2005

May South and Marcus Institute present " Healthcare in Community Settings "

For information, contact Janice Nodvin at 770-956-8511 Ext. 207 or email jnodvin@...

February 24, 2005 / Disability Day at the Capitol there

Feb. 24-25, 2005 " Health Care in Community Settings, Theory to Practice Reducing Health Care Disaprities for people with DD ". The Conference is in Atlanta. Contact jnodvin@mayinstitute,org for information or call 770-985-8511 Ext 207

Fe. 28-March 2, 2005 The Arc, AAMR, AUCD, UCP and NACDD present a Disability Policy Seminar in Washinton DC. Fore more info, please visit http://www.aamr.org

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March 10, 2005- March 13, 2005 COPAA Conference / Sheraton Midtown Atlanta Hotel, Colony Square

Conference Brochure along with session schedule is now available online at www.COPAA.org . All registrations received prior to February 11, 2005, will receive a $50 discount. You can mail in your registration with payment now to the address listed in the brochure. Online registration will be available sometime after January 5, 2005. Register as soon as possible as we anticipate a large turn out and you don't want to be shut out of the preconference training sessions which have a limited number of spaces.

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APRIL 6 - 8, 2005 HYATT REGENCY MCCORMICK PLACE CHICAGO, IL

For information, please visit

WWW.NHWPC.COM

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April 30- May 1, 2005 ( this is a tentative date ) Navigating towards Success: Solutions for College and Job Readiness / Doubeltree Club Hotel Atlanta Airport North / Sponsored by LDAG / Visit www.ldag.org for information

May 9-11, 2005 A one of a kind gathering of individuals with Spinal Cord Injuries and friends / Washington, DC,/ Renaissance Mayflower Hotel, http://marriott.com/property/propertyPage.mi?marshaCode=WASSH / Additional information will be posted at http://www.spinalcord.org/

Sept. 21-24, 2005 Alliance for Full Participation presents " Many Voices, One Vision " in Washington DC // For more info, please visit http://www.allianceforfullparticipation

October 27-29, 2005 CHADD Annual Conference Dallas Texas / More information will be offered later

EVENTS FOR 2006

May 2-5, 2005 American Assoc. on Mental Retardation presents the International Alliance for Social Inclusion Summit

Montreal , Quebec Canada

For more info, please visit http://www.aamr.org

Miscellaneous Programs

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6 • 10:30 am -12:30 pm : Project KNOWLEDGE- Claussen-HALL County• 6:30 pm -8:30 pm : Project KNOWLEDGE- Sue Koone-Hamilton

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10 • 6:30 pm -8:30 pm : Project KNOWLEDGE- Charlene Gamble-Morrow

11 • 10:00 am -12:00 pm : Project KNOWLEDGE- Sharon Gudger-Sandy Springs

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14 • 10:30 am -12:30 pm : Project KNOWLEDGE- CLaussen-Dahlonega

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18 • 10:00 am -12:30 pm : Project KNOWLEDGE-Becky Milton-Effingham County

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20 • 10:00 am -12:30 pm : Project KNOWLEDGE-Becky Milton-Effingham County• 10:30 am -12:30 pm : Project KNOWLEDGE- Claussen-HALL County• 6:30 pm -8:30 pm : Project KNOWLEDGE- Sue Koone-Hamilton

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24 • 6:30 pm -8:30 pm : Project KNOWLEDGE- Charlene Gamble-Morrow

25 • 10:00 am -12:00 pm : Project KNOWLEDGE- Sharon Gudger-Sandy Springs

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28 • 10:30 am -12:30 pm : Project KNOWLEDGE- CLaussen-Dahlonega

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Beginning in January 2005 in Effingham County, workshops will be available to parents who are willing to commit twice a month to a 12 series workshop. Trainings will consist of IEP clinics, NCLB- No Child Left Behind, The Individuals with Disabilities Education Act, guide to self-determination from Childhood to Adulthood, how to have collaborative mediation, avoid due process, bullying, positive behavior approach, evaluations, Medicaid, SSI, and other critical areas parents must have knowledge of to navigate the sped system and enable their child to reach their full potential and have an independent future. Much time and effort have gone into preparation of each of these topics and each participate who completes the 12 session training will be given a graduation certificate of completion presented by the state of Georgia's PTI -Parents Educating Parents and Professionals. Our mission is to prepare you to help other children while also helping your own. The information and materials participants receive will enable them to advocate effectively for all children in an effective manner. If you are interested in these trainings I must have RSVP's and commitments before you begin so I can be prepared with materials. Please e-mail or call as soon as possible. Leave your name and address so I can mail you materials and information. Space is limited. Thanks. For info, call or email Becky Milton milton.becky@... 912-857-5891 or 912-857-3945

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http://georgiafamilyconnection.org/whoweare/collabs.htm

Website for Family Connections Partnerships in Georgia

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To locate a Medicaid/PeachCare provider , please visit www.GHP.Georgia.gov

Select the "Find a Health Care Provider" link and follow the instructions

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Atlanta Habitat ABILITY HOUSE Build / October 22nd-December 11th, Fridays & Saturdays / 1632 McClelland Avenue, Atlanta GA A typical work day is 8am-4pm, 4 hours shifts are available. A total of 40 volunteers are needed each build day. BellSouth will provide half (20) of the volunteers (non-disabled BellSouth Pioneers) and we will need 20 volunteers with disabilities each build day. Ideally different groups will commit to a particular day, however individual volunteers with and without disabilities are welcome! Feel free to call , Volunteer Coordinator at 404-223-5180, ext. 113 or email her at rachel.clark@... or go to http://www.abilityhouse.com/builds.html , click on CURRENT for additional information about volunteering and ABILITY

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http://www.fvkasa.org/

Kids As Self Advocates, "a national, grassroots network of youth with special needs and our friends, speaking on behalf of ourselves. We are leaders in our communities, and we help spread helpful, positive information among our peers to increase knowledge around various issues. Those issues include: living with special health care needs, health care transition issues, education, employment, and many more. We also help health care professionals, policymakers and other adults in our communities understand what it's like to live with special health care needs and we participate in discussions about how to help each other succeed."

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www.childnett.tv

The Dan Marino Foundation launched Childnett.tv, the first 24-hour web channel dedicated to families living with autism and other neurological disorders. Childnett.tv is an internet access web channel that broadcasts interactive programming 24 hours a day, seven days week via the internet. The lineup includes streaming video related to autism and other neurological disorders. The mission of Childnett.tv is to reach out globally to families, clinicians and educators, connecting them through the internet, to information related to autism and other neurological disorders.

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Click on the link below to go to a 4-minute "what is autism" video. If the link doesn't work, please visit http://www.tacanow.com/VIDEO.htm

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WWW.UNLOCKTHEWAITINGLISTS.COM

The Unlock the Waiting Lists! Campaign is a targeted effort by a coalition of Georgia disability organizations to educate the public and change public policy. The mission is to reduce and/or eliminate waiting lists for thousands of people with disabilities, the frail elderly, and their families who need home and community-based services. This campaign is a grassroots effort with currently over 300 member organizations and over 5,000 individual members throughout the state. Georgians with significant disabilities need essential services to remain with their families and in their communities. These services have not been adequately funded, and therefore individuals with disabilities and their families have been placed on waiting lists. The Georgia Department of Human Resources and the Georgia Department of Community Health keep lists with the names of those people, young and old, who have a disability and have requested help from the state in providing them with services. These lists have grown to crisis proportions. Fore more information, please contact :

Unlock The Waiting Lists 1440 Dutch Valley Place Suite 200 Atlanta GA 30333

Phone: 1-877-WAITLIST / Fax: (404) 881-0094 / unlockthewaitinglists.com

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Kurzweil Educational Systems is the industry leader and innovator of reading, writing, and learning software for people with ADHD, dyslexia or other learning difficulties. Our flagship product - Kurzweil 3000 - is used in school systems across the country and is a powerful tool for helping students with reading difficulties. For parents, this award winning software can help their child access their reading materials more independently at home. Parents no longer need to read tests, books or other assignments to their child, but can use Kurzweil 3000 to read to their child for them. This can cut back on homework struggles and allow a child with reading difficulties to work more independently. In recent months the Kurzweil 3000 has received several industry awards recognizing it as: 1) the Best Educational Special Needs Solution from the Software and Information Industry Association; 2) the Best Software for Special Education from Media & Methods Magazine; and, 3) the Best Software for Secondary Special Education from CompuEd Gazette's BESSIE Awards. To learn more about Kurzweil Educational Systems, request a free Trial CD, and receive a complementary copy of the research summary "Scientifically Based Research Validating Kurzweil 3000", please call us at 1-800-894-5374 or visit www.kurzweiledu.com/attention.asp

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Therapy Dogs of Georgia farm located in Cumming. This summer, they will be offering a summer camp program for autistic and developmentally and/or behaviorally and emotionally delayed children~ ages 5 and up. The camp runs from June 13- July 8th from 8 a.m to 5:30 p.m. It is located at 5150 Oak Grove Circle, Cumming, GA 30040. The camp provides the following activities:

Therapeutic horse back riding and hippotherapy animal assisted therapy activities with our expert teams , agility shows , arts and crafts , sing alongs , and much more . We will have an on-site nurse, occupational therapist, social worker and teachers. It is a new program kicking off in 2005 and we are very excited about it. The cost for the camp is $150.00 per week. For more info, call 678/521-3813.

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ChatAutism.com is a brand-new initiative about autism and Asperger's syndrome and is written by people who have autism themselves who give

a real-life perspective to the facts of autistic spectrum disorders. The site offers support to parents of children with autism and

Asperger¹s, and also has a chatroom to discuss related issues. http://www.chatautism.com/

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FOCUS 770-234-9111 or visit www.focus-ga.org

GAA Special Populations Programs 770-277-9647 - For more information or visit www.gaaspecialneeds.com

Outdoor Sensory Adventures- Clay White- 770-242-8254

Beyond Words Social Skills Training / Counseling 404-633-0250

Fulton County Disability Information Assistance Line 404-730-6900

Family support meetings held the 4th Friday of the month at 12:00 pm at the Georgia Parent Support Network Office . Call 404-756-8525 Ext. 329 for more information

Parent Advocacy Training takes place for parents on the 2nd and 4th Friday of each month immediately following these meetings only at the 1395 Parkway Metropolitan Way, Atlanta address.

North Fulton Family Support meetings are held on the 3rd Tuesday of each month at 11:30 am at 1140 Hammond Drive Suite J1075 in Dunwoody . Call the same number listed above for information.

The Fulton County Commission on Disability Affairs meets monthly on the 3rd Wednesday from 6-8 p,m. These are public meetings. Call 404-730-7390 for information. Meetings for the remainder of this year ( 2004 ) are October 20, November 17 and December 15

Cherokee County and North Atlanta CHADD Schedule / Meetings the 4th Monday of the month 7:00 PM to 9:00 PM / Roswell United Methodist Church- Dodd Youth Bldg. Room 137 . Call 770-993-6218 for info Adult ADHD Meetings , same dates as above

Social skills program Marcus Center STAR - Social Time Arts and Recreation. Contact Dr. Trapani at 404-419-4000 to get more info.

Learning Disabilities Association of Georgia, Gwinnett Council

Dates in 2005 are Jan. 18, Feb. 8, another undetermined date in February. and March 8

Meetings held at the Media Center Lecture Hall of Greater Atlanta Christian School in Norcross GA . For more information on topics for the various dates, contact at 770-995-1599

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A new web site is now online for Georgia parents called Roadmap to Services. This graphical site contains hundreds of pages of information for parents of children with special needs in an easy to navigate format. You can check it out by going to www.parenttoparentofga.org and selecting one of the Roadmap links. The site was developed by Parent to Parent of Georgia with funding support by the Governor's Council on Developmental Disabilities through the Innovative Projects grant.

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The National Center for Learning Disabilities and Schwab Learning have developed a handbook to help parents navigate and coordinate the federal

No Child Left Behind and the Individuals with Disabilities Education acts. No Child Left Behind requires schools to have a plan to help

low-achieving children, including the almost 3 million children with learning disabilities, meet higher academic standards. The new 22-page guide addresses the law's emphasis on accountability, an explanation of the requirement of schools to improve test scores in math, science and reading over the next decade,

and what happens if a school doesn't meet its goals. "Making the `No Child Left Behind Act' Work for Children Who Struggle to Learn: A Parent's Guide" can be downloaded from the Web sites of the Center for Learning Disabilities and Schwab Learning.

http://www.LD.org/nclb

http://www.schwablearning.org

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FREE parent support group / SECOND WEDNESDAY of each month at LULLWATER SCHOOL, DECATUR from 7-9 pm

Facilitator: Joan K Teach, Ph.D. Director, Lullwater School Dates in 2005 will be JANUARY 12 Can Broken Executive Functions be Repaired ? / FEBRUARY 9 How to Drive the Active Adolescent without Losing Your Own Sense of Direction / MARCH 9 Partnerships: Utilizing a Strong Relationship between Home, School and Other Providers / APRIL 20 What do those Psychoeducational Reports Really Tell You? / MAY 11 Managing the Stresses of Summer / REGISTER BY CALLING: 404-378-6643 Lullwater School, Inc. 705 S. Candler St. Decatur, GA 30030 www.lullwaterschool.org

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Professional Seminar Series at the Marcus Institute. Addressing critical issues pertaining to children and children’s services.

January 12, 2005, 9:30-11:30 a.m: The use of medications with children and adolescents, The search for the silver bullet

February 9, 2005, 9:30-11:30 a.m: Early and Periodic Screening Diagnosis and Testing: How to get what children need through existing and unused Medicaid

March 10, 2005, 9:30-11:30 a.m: Oppositional Defiant and Conduct Disorder: You can’t get to special education from here!

April 13, 2005, 9:30-11:30 a.m: Vocational and Life Skills Planning for young adults with Developmental Disabilities. Which way do we go now?

May 11, 2005, 9:30-11:30 a.m: Juvenile Justice and Education: The need for partnership.

Location: The Marcus Institute, 2nd Floor Conference Room 1920 Briarcliff Road, Atlanta, Georgia 30329 Price: Free Registration: RSVP to catherine.trapani@... . First come/first serve. Space is limited. Light refreshments will be served.

Marcus Center Saturday Social skills program called STAR - Social Time Arts and Recreation. Contact Dr. Trapani at 404-419-4000 to get more info.