Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 I know where I am from in Pennsylvania they pay for all the education stuff too. I apologize if the thing about the government sounded like we can do it all on our own, and I am anti-government. I am not. I would love it if GA paid for all the ABA, PT, OT, etc. The insurance & medicaid here is a pain in the butt. I guess what I was trying to say is that we have to help our kids in the end, and sure it would be great if the government could help out, but we can't always depend on that, and our kids depend on us, not the government to make the right decision. Anyhow... Re: Re: DAN! doc> > > > The expense is one reason I think we have to work for early dx and help with the medical expense of "recovering" these kids. It is a tremendous expense all at one time and most families cannot afford it....but if we look at the life span of our child and how much we have to spend to just keep the going (sometimes....I do know that each child is different as are each parents expectations and hopes). If the government would look at the dollars that they will have to put out over the life time of a person with autism and use some of that money as soon as the child is dx'd to help them biomedically we might get them on the ladder to being at the highest potential possible for them and them be able to skip some of the steps along the way (i.e., some kids talk after chelation/which would eliminate some speech therapy). Does this make sense to anyone else but me?> > We wish we had know about chelation when Wynn was first dx'd and had been chelating while he was getting ABA...I think it would have worked faster.> > What I am saying is that if we could clean up the child biomedically and supplement them so that they could use the nutrition they get from foods and supplements (be able to absorb it) then go from there with behavioral, speech and OT the children could make more progress faster...> > Just the thoughts of a Nana!> > > > > > H. Cale> Vice President, Unlocking Autism> 770-463-4475-home office> 866-366-3361-toll free> www.unlockingautism.org> NanCale@a...> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 We were always able to buy a lot of what Dr. Hicks recommended from health food stores around here. The only ones we couldn't get were ones that were compounded specifically for our son from a pharmacist. Re: Re: DAN! doc > > , > I agree with you. Though I think meds, for our family, were not the first > choice by a long shot, there came a time when they were necessary for the child > to live in the family. Hopefully, as the child progresses the meds can be > eliminated to one degree or another. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 I tried to email you off line but your address marieostensson@... and the one for katietony92@... come back as "failure delivery". Sorry! katietony92 <katietony92@...> wrote: I'm really curious- what is so upsetting about Dr NL. I've been taking my son to her and have been very pleased. I've gone as far as to recommend her to a few others who have also been pleased. Is there something I'm not aware of?> > > Stay with Dr. Tanner...DON"T GO TO DR. N.L. Email me privately > and> > we can discuss it!__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 We all need to bombard our elected officials, in a respectful and educated way, as to what we need for our kids. The Government's money is our tax dollar and their jobs depend on our vote. There are those on this list who are much better educated to make this statement than me and I beg them to pipe in! Send letters, e mails, faxes to you local and federal representatives. You can make a difference! The congressional hearings on autism, the Autism Caucus, the personal testimonies in Dan Burton's DC hearing room....all stem from parents who would not give up! Remember that we each have a voice and a vote. Make yours count for your child and mine. Yesterday, at the Rome Resource Fair, Rep Gingrey of the 11th District did show up ..late but he did make it. Christie and the UA Reps from Rome told him what they wanted him to know about the needs of our kids, we rolled out the UA GA Picture boards and I think he was "impressed" with our beautiful kids. I was able to tell him a little about my grandson, his first six vaccines that had toxic levels of mercury and how at 15 mos, after the MMR, we lost Wynn to autism. We all have a story.. Write yours down..make it real, tell him your struggles, your pain, all the work it takes to fight for your child and how much you love you child. List what your wish list would be for services in GA. Enclose a picture of your family! Put a face on autism and the families it affects. Our kids and adults with autism have so much potential..we just need to get them the services, therapies and my wish: early, early diagnosis, early and intense intervention and the choice to have subsidized Dan! testing and biomedical intervention. All our kids are different, but they have one thing in common: we love them without reserve and without conditions. If you live in the 11th District contact Gingrey, in not find out who represents you and contact them. I think there may be those on this list who could put together a sample letter. Contact your representatives now and vote in Nov. Make your voices heard....Together we can make a powerful statement for the 1/166 who are now dx'd with autism! H. Cale Vice President, Unlocking Autism 770-463-4475-home office 866-366-3361-toll free www.unlockingautism.org NanCale@... Quote Link to comment Share on other sites More sharing options...
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